Hi BigJean,

A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine ,

thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

I’ll let you know how I get on on Tuesday but I am ready to fight 

talk soon xx

Hi WL , 

omg 10 hours that’s a long time . I hope you aren’t in too much pain . I’m so glad it’s all over for you . Onwards and upwards that’s another hurdle done . I’m very nervous about tomorrow not sleeping great but I just keep telling myself this time next week it will be all over . 

Thanks so much for letting us know how you got on . Sending you hugs ️ ️

J xxxx

Hey

I know it's nerve wrecking, I didn't sleep well before my op, but you are in good hands. I think I feel a sense of relief that the little blighter isn't here any more, as well as the pain.

All those months ago I would never had thought we would be here. 

I will be thinking of you tomorrow. X

Hi Woolylamb,

I am delighted to hear that you have at long last got your surgery behind you. You don't get to rest up for long, but this makes it easier for you in the long run.

I found that I was sore underarm for a while after surgery. They only removed 6 lymph nodes and all were clear. I found driving over speed humps was very uncomfortable for a few months.

I am sorry to hear about your temperature and hope that there is no sign of infection.

Thinking of you and wishing you a speedy recovery.

Kind regards,
Jolamine xx

Hi BigJean,

I shall be thinking of you tomorrow and hope that it all goes well. I expect that you'll be relieved to have your surgery over and done with after all this time.

Kind regards,

Jolamine xx

Hi Lorraine,

It must be so difficult caring for your mum when you are going through all this. You must have been so relieved to hear that you have clear margins this time. I am sure that going through chemo and radiotherapy will be another challenge, but you can do it.

I am glad to hear that your leg ulcer has healed, but that your dermatologist has kept you on antibiotics to keep cellulitis at bay. You will be glad that you no longer have any discharge from your leg and that there will now be no further hold up with chemo.

Do please stay in touch and let us know how you get on. Always here for you.

I saw a neurologist on Saturday, as I have had some strange turns recently. I have also experienced a strange effect from the left side of my head, down my neck, shoulder and, into the arm to above the elbow. He has referred me for a brain scan, but I'll have to wait for about 6 weeks to get it. Otherwise, I'm fine thanks.

Kind regards,

Jolamine xx

Hi Lorraine,

Could you please resend your friend request? My computer is playing up and I seem to have lost your request.

Many thanks,

Jolamine xx

oh I really hope it's not anything serious your a real star always replying to all who emails you I hope you get your scan before Xmas and not too serious I was feeling anxious you reassured me more than once it would be okay it's all different to 9 years ago my surgeon mentioned neurologist I'm waiting to see said you have went through change no periods no I'm 58 then said as you have lymphoma and leg ulcer well leg closed but skin not Bonny to look at lol said he put down to refer to them to get injections for my bones said make your bones stronger good against bone cancer I don't have bone cancer but maybe this is just out have you heard of this my nurse away on holidays I'm not sure I've injection or more phoned nurses today they weren't sure either he never said name of injections got my doctor tomorrow she might not know but ask her by the way can't thank you enough phoned my mums ot they coming out tomorrow to give my mum new trolley the one you recommended 2 shekfes brakes on it  my mums 80 and shaky off balance as hardening of the arteries in her head she has had a couple of strokes and early stage of dementia so I'm glad she's getting people and things to help her kind regards Lorraine x

Hi Lorraine,

I had a phone call from the hospital today to see what implants I have in my body, prior to brain scan and, the girl who phoned told me that it is normally about 6 weeks before the appointment will come through. As usual, they are running behind with appointments.

Many ladies become prone to osteoporosis as they become older. Cancer treatment can also affect the bones, so I expect that this is the injection that you will get. Your GP should be able to tell you all about it, as this reduces the chance of broken bones.. It is purely preventative, so nothing to worry about.

I'm delighted to hear that the OT is coming out to see your mum tomorrow and is bringing a trolley for her. Are you or your sister going to be there when she comes? It might be worth getting her to do an assessment of your mum to see if she can give her anything else that could help.

Did you notice my post asking you to apply for a friend request again? I had written a reply accepting you. This just disappeared into the ether and off my pending requests. My computer was playing up at the time, so maybe this was why.

Kind regards,

Jolamine xx

Hi Jolamine, 

surgery finally over . I was first done . Glad it’s all over . Surgeon said it went well . Feeling ok took a turn today think I did too much and got sick so they put me back in bed . 

Bc nurse came up to see me today she said the same that surgery went well and from today I was cancer free . She also said that the type of cancer I have I have a high risk of recurrence. I didn’t say anything to her but I am very emotional now thinking about what she said. 

Sorry to burden you all with this . 

[@Woollylamb]‍ hope you are doing ok 

take care 

j x

Hey

Good to hear from you, I'm pleased it went well and you are on the road to recovery. I'm doing ok, will prob be in here till Monday, still have two drains in and a wired Doppler which they are using to ensure the blood supply is healthy. 
Take it easy, I know it's hard to rest in hospital but take your time to get yourself up and about.

Bit insensitive of the nurse to say that when you've just had an op and your emotions are high anyway. I think once you have cancer you will prob always worry if it's come back, but the positives are that you are now in the system, you'll probably have 6 monthly check ins to start with so anything will get picked up. Allow yourself to take in that you are cancer free..... what an achievement. You should be mega proud of yourself. 
 

sending you a big hug. 
wl

Hey

Good to hear from you, I'm pleased it went well and you are on the road to recovery. I'm doing ok, will prob be in here till Monday, still have two drains in and a wired Doppler which they are using to ensure the blood supply is healthy. 
Take it easy, I know it's hard to rest in hospital but take your time to get yourself up and about.

Bit insensitive of the nurse to say that when you've just had an op and your emotions are high anyway. I think once you have cancer you will prob always worry if it's come back, but the positives are that you are now in the system, you'll probably have 6 monthly check ins to start with so anything will get picked up. Allow yourself to take in that you are cancer free..... what an achievement. You should be mega proud of yourself. 
 

sending you a big hug. 
wl

Hey , 

thank you for getting back to me . Good to hear you doing ok too . The drains are a bit of a pain and it’s taking a while to get used to them . 

I know I don’t think it hit me till she had gone and I realized what she said . You are right I’m not going to dwell on it . 

Thanks so much for your kind words you are doing amazing also . It’s another hurdle down for both of us . 

Mind yourself and take care

j xx

Hi WoollyLamb,

I hope that your temperature is going down now and, that you are getting more used to the drains. They can be a nuisance, but they won’t be in for long. You must be doing well if they are talking about letting you out on Monday.
Kind Regards,

Jolamine xx

Hi @bigjean

How are you getting on? I was discharged yesterday with one drain, and I have a Doppler wire still in situ. Got to go back tomorrow to have both removed so hopefully will be a little freer to move around. Struggling to get comfy to sleep but I prefer to be at home than in the hospital. Hope you are doing ok.

x

Hi [@Woollylamb]‍ I was discharged today ! I still have one drain in too . So glad to be home can’t wait to get into my own bed . So glad you got out too you seemed to be in there a lot longer than me! You rest up and hope all goes well getting the other drain and wire out . I’m back Thursday/Friday to have drain out . 

Another hurdle down . We both did it

Stay in touch . 

Take care 

j xxxx

Hi

I think I was in longer because of the reconstruction, they needed to make sure that the flap didn't die, they were checking me every 15 minutes for the first 24 hours, then every 30 minutes. and my temp was up and down like a yo yo. Just hope they take this stuff out tomorrow As it's painful now.  Managing the rest of the pain with paracetamol. 
 

Glad to hear you are out, makes such a difference to be in your own home. 

We definitely did do it, were nearer the end than the beginning now. 
 

x

Hi Woolylamb,

I found a small heart shaped pillow, which I placed under my arm a great help in making it easier to sleep. You might find this helpful too.

I hope that all goes well with getting your drain and Doppler wire removed tomorrow.

Kind regards,

Jolamine xx

Hi BigJean,

I'm glad to hear that you got home today and hope that you are doing well and are not too uncomfortable.

Thinking of you,

Jolamine xx

Hi woollylamb, bigjean and jolamine 

sorry not been on again but have struggled with this paxotaxin or whatever it’s calked. The pain even with strong painkillers is taking me out of action for a few days but my last cycle is next Friday - whoop whoop!! I’m going to hang off that bell lol x 

glad to hear your ops have gone well ladies. My drain was in for about seven days and was a relief when taken out. If you had lymph nodes removed please do the exercises given but don’t push it, take it nice and easy. At first it’s hard and sore and can’t really move the car but over time it just becomes easier. I would say I nearly have full movement back but now it looks like lymphodema so occasionally I am restricted in movement but they have given me an exercise to do for next few weeks to see if it helps.

thank you ladies for being on here. I know I haven’t supported you as much as I would have liked but for me just reading your comments about your journey and your experiences have given me comfort that I wasn’t on my own and y thoughts/fears are natural x 

Hi , 

hopefully you get all the stuff out today and you’ll be a lot more comfortable. I’m hoping to get the drain out Thursday or Friday! I’ve taken Tramadol for pain but have been given paracetamol too . It’s great being home , own bed and just being in your own surroundings is bliss . 

We are doing great . 

Take care 

j xx

hi jean so you got home and nurse coming into your house to get drain out yes ? That's good no infection I'm happy for you I have to wait until 18th November it's to discuss my treatment 9am in the morning will find out if they put a bus out for you I know when I went see dermatologist they gave me a bus could not walk up steep hill as I was at clinic they dialled a bus for I will phone tomorrow I'm pleased for you yes when I was in I was so cold 1 thin blanket asked for 2 more was still cold put on my housecoat and slept with it on lol xx