Hi BigJean,

A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine ,

thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

I’ll let you know how I get on on Tuesday but I am ready to fight 

talk soon xx

that's good my mum has a prolapse and on pads too my mum refused careers I had phoned them told them she was struggling with meals carrying tea etc I bought her a tray as she complained the trolley on wheels was too dangerous and fast when she was pushing it going to phone occupational therapist see if they come up with something I see a big change in my mum I tell her a thing 2 days later she forgets or asks me again I could not believe it when she was staying with my sister but asking me why I needed a second breast operation explained again breast tissue needed to be removed I should hear from my surgeons secretary on Thursday or Friday giving me appointment for Monday or Wednesday that's his clinic days I'm trying to stay calm had to get my nurse to put in 2 stitches paper ones I burst my tissue scar @ bit lifting washing nurse was nice said no lifting patched up again lol you have had a time of it I'm so sorry you got such short notice with your dad god bless him your mum skin and bone that's the way my mum is going yes my mums hands shake so does her head you would think it Parkinson's disease but no hardening of the arteries in her head no cure just a dispirit to keep the blood flowing causes strokes she's had 3 and a heart attack last year not a big one but she's on heart pills too no my sister gets her daughters or son to drive up she used to drive but got bipolar so not allowed too now  we talk on the phone 3 times a week I phone my mum every day I discussed a scooter but there is a disability shop in golden square big shopping centre beside railway station was I get my treatment etc going to go with her to see if she could work one I'm in a bungalow neighbours brilliant quiet my legs are a big issue lyphodemena in my joints legs swell leg ulcer puffed up wrists too but becaus3 I'm on a wee slope and have 3 steps down my path need flat ground I got new doors on nice second hand doors mahogany nice instead of white panelled doors as it's too expensive getting in painter I used to be @ble to paint now I can't do skirtings bottoms of doors but I feel happier just wiping down doors easier for me in the winter have already prepared sand outside in my wee plastic box so if we get snow which Scotland is famous for just through sand down I use a walking stick my leg is closed but still compressed but not good enough yet for stocking I wear stocking on my right leg it's good of you to explain things to me my mum asked me to look for a good second hand scooter but no I want to see if she can work one first I can't get a scooter because of slope my name is down to get another bungalow but I don't really want to move then I 5hink will I cope god bless if I'm older it's a task ty for replying xx

Hi Lorraine,

What type of trolley was your mum using? We were provided with one with two shelves, which are raised at the edges to prevent spillage. It is on wheels, but it has brakes on the handles so that it doesn't run away. This was given to us by the OT. It is certainly worth asking your OT, as there are other trollies which might be more suitable.

I'm glad to hear that the nurse put in new stitches where your others had burst. Here's hoping that this is a lesson learned - no lifting means exactly that!

What a lot your poor mum has had to go through in the past year. You will probably find that her conversation tends to be repeated more frequently with the passage of time. It is such a cruel condition. I live in a bungalow too and am at the top of a steep hill, but I can still manage to use my scooter. With your legs giving you so much bother, it might be a good idea for you to try a scooter out at the same time as your mum?

Have you any idea how long the waiting time is for a new house? If you have been in your present bungalow for long and are happy there, it won't be easy to move, but it may be for the best in the long run.

Your new doors sound great. All of my doors are white and,  I know exactly what you mean about the painting.

I'm glad to hear that your leg is closed, even if not good enough for a compression stocking yet. You'll just need to be very careful not to knock it against anything, in order to give it a chance to heal completely. I hope that you hear from your surgeon's secretary by the end of this week and that you get your results soon now.

Kind regards,

Jolamine xx

Hi 

so my surgery went ahead as planned, i was I. Theatre for 10 hours! Recovery is going ok so far , got a temp and they don't know why and my right arm is sore where they took lymph nodes from. I was sat in a chair yesterday, they want me to do a bit of walking today. 
 

Wishing you well for tomorrow [@BigJean]‍ 

wl

hi jolamine. Sorry not been on mum was ill been busy doing her shopping cleaning the house etc I will be asking her ot if they have better trolleys ty I saw my surgeon yesterday I was it sleeping too well the thought of another operation terrified me with my low blood pressure etc but I knew it was good news no doctor or nurse with him smiled how are you said still a bit tender etc but fine good news no more cancer tissue you now have clear margins what a relief he said you will need chemotherapy I knew that jolamine  with the tissue being affected told him my hair fell out before but it grew back smiled also said you don't take periods now no 12 years ago I stopped spoke about I will get injections to prevent bone cancer like a flue jag I'm thinking don't know will ask my nurse Linda did not want to ask too much questions I knew he was busy radiotherapy is a must too then he sent a nurse she offered me leaflets said I did not really need them she said if you don't get a letter or call in 4 weeks phone back up here agreed she was really nice and my leg ulcer has healed too so it won't interfere with chemotherapy I kept compressing leg as it was still leaking clear fluid but now had off compression for 2 weeks dermatologist has kept me on antibiotics to make sure cellulites stays out my leg how are you my friend ? Ty for replying asking me your a kind person xx

Hi WL , 

omg 10 hours that’s a long time . I hope you aren’t in too much pain . I’m so glad it’s all over for you . Onwards and upwards that’s another hurdle done . I’m very nervous about tomorrow not sleeping great but I just keep telling myself this time next week it will be all over . 

Thanks so much for letting us know how you got on . Sending you hugs ️ ️

J xxxx

Hey

I know it's nerve wrecking, I didn't sleep well before my op, but you are in good hands. I think I feel a sense of relief that the little blighter isn't here any more, as well as the pain.

All those months ago I would never had thought we would be here. 

I will be thinking of you tomorrow. X

Hi Woolylamb,

I am delighted to hear that you have at long last got your surgery behind you. You don't get to rest up for long, but this makes it easier for you in the long run.

I found that I was sore underarm for a while after surgery. They only removed 6 lymph nodes and all were clear. I found driving over speed humps was very uncomfortable for a few months.

I am sorry to hear about your temperature and hope that there is no sign of infection.

Thinking of you and wishing you a speedy recovery.

Kind regards,
Jolamine xx

Hi BigJean,

I shall be thinking of you tomorrow and hope that it all goes well. I expect that you'll be relieved to have your surgery over and done with after all this time.

Kind regards,

Jolamine xx

Hi Lorraine,

It must be so difficult caring for your mum when you are going through all this. You must have been so relieved to hear that you have clear margins this time. I am sure that going through chemo and radiotherapy will be another challenge, but you can do it.

I am glad to hear that your leg ulcer has healed, but that your dermatologist has kept you on antibiotics to keep cellulitis at bay. You will be glad that you no longer have any discharge from your leg and that there will now be no further hold up with chemo.

Do please stay in touch and let us know how you get on. Always here for you.

I saw a neurologist on Saturday, as I have had some strange turns recently. I have also experienced a strange effect from the left side of my head, down my neck, shoulder and, into the arm to above the elbow. He has referred me for a brain scan, but I'll have to wait for about 6 weeks to get it. Otherwise, I'm fine thanks.

Kind regards,

Jolamine xx

Hi Lorraine,

Could you please resend your friend request? My computer is playing up and I seem to have lost your request.

Many thanks,

Jolamine xx

Hi Lorraine,

Could you please resend your friend request? My computer is playing up and I seem to have lost your request.

Many thanks,

Jolamine xx

hi yes I thought I did it but no so doing it now got a letter in today to go for a muga heart scan not going it was for the 4 th of November they put radiation 2 injections into your hand or arm my heart is okay my heart dropped to 44 as blood pressure was seriously low when I found out I needed second operation was worried more because of this so requested my doctor to phone me went over my medication said stop water pill for a week and off heart pill for 2 days the surgeon said anestic lowers blood pressure too anyway second operation was a lot better still had low blood pressure but not too bad and heart wen5 to 59 instead of 44 which is huge difference if I had chest pain etc would go I have not had angina for 2 years also looked it up on you tube radiation not good if your away to get chemotherapy and radiotherapy it's not a lot of radiation but it stays in body few weeks ty for agreeing to be my friend it makes a big difference when your anxious Lorraine xx