Hi BigJean,

A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

Kind regards,

Jolamine xx

Hi Jolamine ,

thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

I’ll let you know how I get on on Tuesday but I am ready to fight 

talk soon xx

Hi Mejules, 

This must have scared the living daylights out of you, but I'm so glad to hear that it wasn't sepsis or brain cancer. I hope that the CT and MRI turned out ok and that it is just a bad reaction to your antibiotics.

I sincerely hope that this doesn't delay your chemo.

Kind regards,

Jolamine xx

[@Woollylamb]‍ [@Jolamine]‍ [@BigJean]‍ 

hi all hope you are all ok. Had my first chemo Friday and not really moved out of bed. The nauseous is knocking me off me feet. Not really drinking but eating little and often. Just seem to sleep. Hoping sicky feeling won’t last too long. Teeth and mouth but sore but using mouthwash x hope you all x 

hi, good to hear from you. I’m sorry to hear that the chemo is making you unwell. Have you mentioned it to your team, maybe they can give you some different anti sickness medicine?  At least you have the first one over and done with.

im in for my 3rd round tomorrow, so will be half way through then. I’m seeing my oncologist tomorrow so we will see if she thinks it’s having any effect after 2 cycles. So I’m just getting myself prepared, lots of water being drunk, I had a reiki session today as well so will hopefully sleep ok tonight. 

I do hope you feel better soon.

X

Hi woollylamb hope all goes well for your third chemo - whoop half way there ! Well done x 

can I ask did you get very angry through times at chemo? I’m struggling yday and today to keep my emotions in check and I’m shouting at my other half. I don’t want him to hate me for being such a c*w  but I’m struggling and not sure why x 

Hi Mejules, 

great to hear you have started your chemo. Sorry that you aren’t feeling very well after. I was exactly the same after my first one the nausea killed me was worse than morning sickness!!! I got extra anti sickness tablets which really helped , drank loads of water and ate little and often, I found crackers , peanuts , and ginger biscuits really helped . 

Ive finished all 4 AC and had my first Taxol and Herceptin last Friday. No nausea but lots of different aches and pains but can cope with that.

ive been making lots of smoothies and I’m finding I’ve loads of energy and my mind seems to be a lot clearer. 

Hope you are starting to feel a bit better soon . Hope everyone else is doing ok too [@Woollylamb]‍ [@Jolamine]‍ 

take care 

j xx

HI Mejules,

I've been away for a few days, so apologies for the late reply. I am delighted to hear that your chemo has gone ahead, athough I am so sorry to hear that you are having a hard time following your first chemo session.

Make sure that you let your care team know this, as they can give you a different anti-nausea medication which should be more effective.

Do your best to drink as much water as you can, as this makes a big difference. I sincerely hope that your team can overcome your nausea and that things go better for you next time around.

Kind regards,

Jolamine xx

Hi Woolylamb,

By the time you read this, you'll have had your chemo and, will now be half way through. I hope that your oncologist gave you some good news today.

Kind regards,

Jolamine xx

Hi Big Jean,

I'm glad to hear that the new aches and pains are copeable with and, that your mind is clearer and energy levels higher with the Taxol and Herceptin.

Just keep taking those smoothies.

Kind regards,

Jolamine xx

I ha£ all my hair shaved off too as it fell out in clumps I did try the cool cap could not bear the ice cold lol it grew back I’m waiting fo4 another Brest tissue operation on Tuesday I’m praying he gets it all don’t want a 3rd operation the surgeon said it might require 3 operations trying to stay positive I’m on daltrapan injections only one more tomorrow morning I go into hospital 2pm tomorrow operation Tuesday morning I’m not worried about chemo just get past this cancer jean x

Hi Lorraine,

I shall be thinking of you on Tuesday and, hope that your surgeon gets it all this time.

Kind regards,

Jolamine xx

Hi Lorraine,

I shall be thinking of you on Tuesday and, hope that your surgeon gets it all this time.

Kind regards,

Jolamine xx

ty jolamine started sneezing today took paracetamol and hot black current drink wee bit of honey in it as it tells you if you get a bad cold contact them see what I’m like in the morning my nose is dripping and red they can’t give you anestic if you have a bad cold fingers crossed ty jolamine replying I hope so getting a wee bit of pain friom breast I want it over and done with I hope this cold is better in the morning  x

Hi Lorraine,

I sincerely hope that your cold disappears in the morning. A delay in surgery is NOT what you need at this stage.

Fingers crossed for you.

Kind regards,

Jolamine xx

ty jolamine I hope so too want it don3 I’m hoping if cold gone he get it all and no third operation I was feeling low people on here are kind because you know what it is like I hope you are okay lorraine xx

Hi Lorraine,

Did you manage to go ahead with surgery or not?

I sincerly hope that you did.

Kind regards,

Jolamine xx

hi yes ty so much for caring yes got my operation on Tuesday morning 2 hours the surgeon said did quite a bit of work inside breast took away fair bit of breast tissue went into same wound said only it’s a bit bigger about 5 inches got dissolving stitches also paper stitches waterproof dressing on stitches come ou on Friday I get my nurse to do it my surgeon off for 2 weeks holiday go back in 3 weeks was worried about my treatment until he explained it was safe enough as he was still doing work on breast I know I had to be cancer free he said wait until your test comes back from lab how are you my friend ? Kind regards Lorraine x

Hi Lorraine,

I am so glad to hear that all went ahead. It's just as well that you got it done before your surgeon went off on holiday. I can appreciate that you now have a worrying 3 week wait for the results from pathology, but sincerely hope that this will turn out to be good news.

Kind regards,

Jolamine xx

ty very much yes a bit on edge until I hear him saying breast okay treatment ty again for grpetting back to me it makes a difference Lorraine x

hi yes got my operation was looking up clear margins on you tube they use a whole device once tumour is removed they put it on breast tissue if it bleeps changes colour etc the tissue needs removing the USA  had it first my surgeon told me he is trying to raise funds for it save him doing more surgery and patients like myself I got told he did a fair bit of work inside breast he's hoping it's all gone won't know for 2 weeks my surgeon off on holiday said don't worry you will get treatment once we got all cancer breast tissue out hopefully he said you won't need a third I hope not I'm not sleeping good until I get told clear margin and my treatment can be started sorry device called margin probe it's in Manchester hospital so here's hoping we get it too in Scotland also my surgeon said I knifes with special light on end if it can show him where cancer cells are so they are gettin* more results I'm going to raise money for my hospital  I will do a raffle buy something worth 200 pounds see if I can raise 500 hand it to my hospital do you know  jolamine where I can get information on raising funds etc ty I'm praying no more surgery and my results comes back clear this time x

Hi Lorraine,

Waiting for pathology results to ensure that you've got a clear margins is always a worrying time, but it is imperative that you do get them. I have had 2 bouts of breast cancer. First time was 10 years ago when I had a lumpectomy. I was told that the pathology results showed that my surgeon hadn't got a clear enough margin, but he assured me that he had realised this at the time and had removed an extra sliver, which would overcome this problem.

I was informed that I had pure mucinous breast cancer, which was a less aggressive form. However a year later, I had a second bout and had a double mastectomy. We will never know for sure, but I suspect that there still wasn't enough removed first time around. I know that it's a pain to have to return for more surgery when your surgeon hasn't achieved a clear margin, but it's way easier than having to go for more radical surgery because he didn't go in again.

Three weeks is a long time to wait for your results, so I hope that you can keep yourself busy enough in the meantime.

It is so good of you to try and raise some finance for your hospital. I am no expert in fundraising and, there are so many different ways of doing this. Could you ask someone well-known or famous to donate something that you could auction? You could ask a number of people for donations and hold an auction night. This would boost funds. Smaller donations could either be raffled or put into a Tombola. A go fund me page on Facebook might also generate some money. What about holding a dance for relatives and friends? Many venues will offer the venue free if there is a bar to bring up their takings. I sincerely hope that you have success with this.

Don't forget to let us know how you get on.
Kind regards,
Jolamine xx

oh I'm so sorry to hear you went through what I'm going through I too had aggressive breast cancer 9 years ago the tumour was only 2 cm I'm always breast aware because I have had cousins who has died from it so when I turned 30 always examined myself I was 49 when I found first tumour tiny but hard had the surgery removed 4 lymph nodes got chemo all m6 hair fell out but it grew back then like yourself found tiny lump on front of breast tumour but invasive my mammogram showed lesion on both went to see surgeon got 2 biopsy on both breasts thank god right breast was scar tissue from 9 years ago then I got blood test to see if I was carrying the gene but no but was still told inherent from my mums side I was so worried when I got biopsy in left they kept going over my armpit finally I said what's going on is it in my nodes said swoop lymph node but when I got ultrasound the doctor said no cancer under arm thank god I thought like my right breast 9 years ago operation treatment but no was told no clear margins  they went back in same scar but it's bigger got my stitches out yesterday my surgeon is on holiday for 2 weeks said be 3 weeks to get my result yes I'm not sleeping great but I watch tv if I can5 sleep I'm so sorry you went through what I'm going through yet had to lose your breasts my heart goes out to you  he said to me if I was carrying gene was going to remove mine I said 2 operations if I need a third would it be better to lose it not that I'm brace I hate being knocked out low blood pressure I have to get bags of water my heart beat drops too but the surgeon said he wasn't too fussed about that on warfarin for previous leg clots so I gave myself daltrapan injections so instead of going in on Thursday like 9 years ago admitted 5 days early they change things for the better I'm glad I gave people to chat too I hope your fine now and stay healthy you been through a lot xx