Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
  • I’m sorry to hear you’re going through this, I am 27 found a lump last week and have been referred to breast clinic on Thursday. I am petrified and I still have a chance of being lucky. I have found myself analysing every inch of my body to the point that I’m convinced I’ve just found a dodgy mole above my hip in the same side as the breast with lump, so now my head is being all stupid. 

    I hope you’re appointment went well today and it was some positive news. Thoughts with you xxx

     

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    Hi Kmj,

    Welcome to the forum.

    I am sorry to hear about your lump, but glad to hear that you have been referred to the breast clinic and, that you are due there on Thursday.

    Don’t forget to let your GP look at your mole, as this will need to be referred to a dermatologist if anything suspicious is noticed. It can take longer to get an appointment with a dermatologist, so the sooner you see your GP, the sooner you’ll be seen by one.

    I do hope that all goes well on Thursday, but please don’t expect to get a definite diagnosis straight away. You will possibly have tests done to see if your lump is malignant or benign. The results of these tests then take 1-2 weeks to come back to the clinic, so you are likely to have an anxious wait for that time.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

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    Hi Woolylamb,

    I am so sorry to hear that session 5 caused you to end up back in hospital. What a pity that you didn't even get out for that lovely weather. Here's hoping that session 6 is less dramatic.

     Have you got your MRI results yet and what have they shown? It will be really great if it coincides with the findings of your ultrasound.

    To be able to choose between a lumpectomy and a mastectomy is more than you expected, so it must be even better to hear that you can have your reconstruction done at the same time, if you need one. Of course, if you have a lumpectomy, you may not even need reconstruction.

    I am keeping my fingers crossed for you that your MRI results concur with your ultrasound ones.

    I am on holiday at present with limited wi-fi access, but am thinking of you and hoping for more good news.

    Kind regards,

    Jolamine xx

     

  • Hi woollylamb big jean jolamine and all 

    sorry not posted for a while . Have struggled with chemo on the low days. Didn’t want to drag anyone down with me especially if you are on good days x had my fourth chemo yday. They thought I had a clot in my arm as I’m getting a random skin rash where I thought I’d been bitten a few weeks ago but it keeps coming back and spreading up the arm. They weren’t concerned about rash but just by my join on the elbow I was quite tender so they wanted me checked out. So after having. Blood test which came back positive then luckily the sister at the ward pulled some strings to get me fast tracked for a scan on the arm I was given the all clear. Had been in for chemo at 930 got it started at 230 but it’s done and that’s the main thing. Slept and today it’s just the normAl sicky and tired feeling x I can’t believe how sick I feel but still have an appetite . I have put on so much weight I dread to think what I will end up being. I’m worried re money as my wage wil half this month how I pay the bills, two children birthdays coming up and the other dreaded x word Christmas! X counting the days til the good days return on this cycle then they change the chemo and then it’s every two weeks not thre. Dreading it as I guess just as I’m feeling ok I’m back in for next cycle but I’m looking at it that it will be over quicker x hope you are all sending my love to each and every one of you amazing inspirational women/men xx 

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    Hi Mejules,

    I am sorry to hear that you have been having such a hard time with chemo. Have you mentioned how sick you feel to your care team?  There are a number of different medicaments that can be prescribed for this. If one doesn't work for you, it's always a good idea to try another.

    Finance can be a big consideration for many cancer patients. There are some benefits available, and not all of them are means tested. Most hospitals have a Macmillan advice centre within them. They can help you to decide what to apply for. If they don't have a presence in the hospital, you can phone them and arrange to meet up.

    I also found the.local Citizen's Advice Bureau very helpful. I do hope that you get some help from one of these sources, as you could certainly do without money worries on top of all that you're going through.

    I am glad to hear that your arm scan didn't show up anything untoward. Here's hoping that all this chemo will be worth it in the long run.

    Thinking of you and hope that you get some of the better days back soon.

    Kind regards, 

    Jolamine xx

  • Hi Jolamine

     

    No MRI results yet, I’m seeing the oncology nurse before my chemo tomorrow so she may have them.

    How is your son?

     

    WL

  • hi Mejules

     

    It’s good to hear from you, I have been thinking about you over the last few weeks and how you are getting on. 

    Sorry to hear you are having such a pants time with your chemo. Please don’t feel that you would be dragging us down, we are here to listen, even if you just want to have a rant and a moan.  It’s ok to feel low, I do sometimes as well. I’ve got my last chemo tomorrow and I’m dreading it as I’m worried I might end up in hospital again....

    Sending you a big hug.

    wl

  • Hi Woolylamb, I shall be thinking of you tomorrow and hope that all goes well for you this time. I do hope that your nurse can give you your MRI results then. My son is doing as well as can be expected thanks. Unfortunately, he's not got any feeling back in his hand, but all has turned out so.much better than it could have done and we're grateful for that. Kind regards, Jolamine xx
  • hi

    Hope everyone is doing well. I’m just starting to feel ok after my last round. I’m pleased itsnover as I was starting to struggle with it. 

    Got my MRI results, they can’t find any evidence of cancer in the breast. And my nodes have reduced. I’m so delighted with the results it’s difficult to believe it’s real.

    so surgeon again this wed coming to agree surgery options and get a date booked in.

    ive been a bit low the last couple of days which I guess is understandable, feel like my life has been put on hold and I would like it back so I am going to start taking it back now I’m through the worst bit.

    wouls be great to hear how you all are.

    x

  • hi I had my breast tumour removed on the 3rd of September also 5 lymph nodes it was my second tumour had aggressive in right breast it was 2 cm got chemo all m6 hair fell out still it grew back I have the surgeon this wed afternoon find out what my results is might need chemo this time it’s an invasive tumour but he said everyone gets radio therapy that’s for the breast  please remain positive I know it’s hard but you have had good news up to now I’m lorraine  I sometimes say why me had 4 leg ulcers too this last 9 years and 2 breast cancer tumours what gets me through it I think some people need to have there breast off etc keep in touch I hope you get good news on wed I see surgeon then too x

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    Hi Woolylamb,

    It must be great to have your chemo behind you and, to have had such a good result with it. I hope that all goes well on Wednesday, as you discuss your surgery options.

    Feeling low is part of all you've been going through, but you can start taking back control now. I see each day as a bonus and welcome each dawn as a challenge.

    Kind regards,

    Jolamine xx

     

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    Hi Lorraine,

    I'm glad to hear that your surgery is behind you now. I hope that you get good news on Wednesday. I too have had 2 bouts of breast cancer. first time I had a lumpectomy, but a year later, I had a double mastectomy. Unfortunately, due to previous non-cancer-related surgeries, I couldn't have reconstruction, but losing both my breasts was a small price to pay for my life.

    It is all too easy to sink into "why me?" mode, but it does nobody any good. I see each day as a bonus and welcome each dawn as a challenge.

    Hopefully, you'll soon be able to do this again too.

    Kind regards,

    Jolamine xx

Reply
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    Hi Lorraine,

    I'm glad to hear that your surgery is behind you now. I hope that you get good news on Wednesday. I too have had 2 bouts of breast cancer. first time I had a lumpectomy, but a year later, I had a double mastectomy. Unfortunately, due to previous non-cancer-related surgeries, I couldn't have reconstruction, but losing both my breasts was a small price to pay for my life.

    It is all too easy to sink into "why me?" mode, but it does nobody any good. I see each day as a bonus and welcome each dawn as a challenge.

    Hopefully, you'll soon be able to do this again too.

    Kind regards,

    Jolamine xx

Children
  • Hi I’m sorry to hear that I know there’s people worse than me I was terrified of operations as I have terrible low blood pressure after my operation I was put on 4 big bags of water as fluids is only thing that keeps it up my heart was only 44 it was at 65 which is normal got no sleep that Tuesday night every 45 mins taking my blood pressure then had a lady doctor twice taking a heart screening asking me did I have chest pain etc but no luck I did not ty for replying to me I wish you good health for the future xx
  • so sorry to hear that  jolamine a double mastectomy  is what I was going to get if 8 had been carrying the gene but it came back negative I have had a lot of trouble with the left breast another operation on Tuesday here. I have terrible low blood pressure and my heart beat drops touch wood nochest pain last time the nurses were taking my pulse every hour got no sleep on Tuesday thank god by wed lunch time went back up the anestic lowers it as well I was looking at a video clear margins breast tissue cancer the USA have a white device it scans the skin called a prod so when tumour is removed they scan the tissue there and then if it’s still cancer they remove the skin there and then the uk is so behind  I listened as a lady surgeon explained no clear margin the patient has to have further surgery what is getting to me I saw him on Wednesday my surgeon he said it’s still better than losing the breast then said you may require 2 more operations did not cry but I did when I got home they are good they sedated me down there inject you to relax you the mask too takes your mind off it I suppose everyone be the same Mooney likes operations lol  my right breast was straight forward. 2 cm tumour removed 4 lymph nodes and chemo was fine for 9/12 years then I found tiny lump on left breast pea sized but over an inch after biopsy’s the right breast was scar tissue at first they thought I had tissue cancer there but no you have been through worse than me god bless you I know what you mean each day is a bonus xx