Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

Parents
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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • Hi WL, 

    great to hear you have started on your treatment. 

    Thank you for your words of encouragement too that your oncologist said . 

    I tool the plunge and got my hair shaved, I felt much more in control as it was very upsetting as it had started to come out quite a lot over the weekend. It feels a bit weird with the hair gone but hey it will grow back . 

    Take as much anti sickness tablets as you need and get plenty of rest and drink lots of water. 

    Take care of yourself. 

    Xxxxxx

     

     

     

  • Hi big jean

    i was thinking ahead about when my chemo journey starts if to shave and take control rather than wait and after reading your journey I think I will follow your choice. I hope you are ok and resting x

    take care 

  • Hi Mejules , 

    I’m so glad I did it . I thought I would have been upset but I wasn’t my Hairdresser did it for me , my husband was there with us we ended up having a good laugh ( he told me it took years off me !! ) . 

    The tiredness has hit me big time but am feeling really good . 

    Hope you are keeping well too and resting. 

    Take care xxxx

  • Hi big jean

    That sounds - not sure this is the right word -  lovely and I would likely my partner and kids there too. To be part of the journey. I am toying with the idea of going quite short now I’m readiness for the shave.

    glad you are not feeling too bad albeit very tired x 

    take care

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    Hi BigJean,

    I'm glad to hear that you have done the deed and that you feel good about it. It's almost like taking ownership and control back over your own body, rather than leaving it to fall out as and when it likes.

    I'm glad that your hubby went along to the hairdressers with you and that you had a good laugh about it all. Sorry to hear about the tiredness - that's one thing that I haven't found a cure for. Just give in to your body's needs and rest/sleep whenever you need to.

    Thinking of you.

    Jolamine xx

  • Hi Mejules , 

    i still have a bit of “stubble “ , so not too drastic! 

    It was good to have my husband there as support even though he did try to put me off doing it . 

    Best of luck with yours and let me know how it goes  

    j xx

  • Hi Jolamine, 

    yes im v glad I did it now and your are right I feel much more in control. 

    I can cope with the tiredness just about it’s hard to have to give in to my body’s telling me I need rest when I never sit still !! But it could be worse and I’m thankful I’m able to rest when I need to . 

    Thank you as always for your lovely message. 

    Hope all well with you 

    j xxx

  • Hi

    jolamine

    just letting you know I had my drain out yesterday as it was leaking after bottle changed day before. Unbeknown to me I had pulled the tube out quite far and the drainage holes that should have been inside me were actually on the outside - hence the leakage- ouch! Back tomorrow to check for a setoma but tick against another step to starting treatment. 

    Bit worried about results Wednesday particularly the lymph node results but have to remind myself it is what it is - nothing I can do to change it. 

    Take care all x

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    Hi Mejules,

    Sorry to hear about the drain leak. I had one of these the second day after my surgery when I was taking a shower. Fortunately, I was still in hospital at the time and a very helpful nurse came and sorted me out. - It must have been more difficult for you to have to deal with this at home?

    Still, I'm glad that this led to getting your drain out altogether. Here's hoping that there is no sign of a seroma tomorrow.

    This is always a scary time, waiting for results, but no amount of worry will change anything. Still, you can hope for the best and, I sincerely hope that this turns out to be the case.

    Roll on Wednesday!

    Kind regards,

    Jolamine xx

  • Hi BigJean

    Notices you mentioned tiredness, one of the tablets I was given I was recommended to take in the evening rather than the morning asnit causes drowsiness, just wondering whether that is something to talk to them about....bit of a long shot.

     

    i had my head shaved today, no emotion at all which I was surprised about.

    Touch wood, the only side effect I have had is heartburn, so I am knocking peppermint tea back at the minute. Give myself my first injection today so not sure what impact it will have.

    Hope all is well with you.

    WL

Reply
  • Hi BigJean

    Notices you mentioned tiredness, one of the tablets I was given I was recommended to take in the evening rather than the morning asnit causes drowsiness, just wondering whether that is something to talk to them about....bit of a long shot.

     

    i had my head shaved today, no emotion at all which I was surprised about.

    Touch wood, the only side effect I have had is heartburn, so I am knocking peppermint tea back at the minute. Give myself my first injection today so not sure what impact it will have.

    Hope all is well with you.

    WL

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    Hi Woolylamb,

    I'm glad to hear that  the head shaving went without a hitch today and, that it wasn't too emotional for you.

    It's great to hear that heartburn is your only problem at the moment. Here's hoping that the rest of your treatment is plain sailing too.

    Kind regards,

    Jolamine xx

  • Hi WL , 

    thank you for your advice re the tablet for tiredness I will check with them this week when I am there . Can’t believe this Friday I’ll be having my 3rd session of chemo! Weeks are flying by !!

    im so glad you got your head shaved and you weren’t emotional it feels good to be in control. 

    Hope you are keeping well and had a nice weekend. 

    I went to my brother in laws 40 th was very self conscious about wearing the wig and was more worried if anyone said anything!!! 

    I don’t think anyone noticed ( well if they did they didn’t say anything!!) anyway had a good night . 

    Take care 

    j xxx

  • I ha£ all my hair shaved off too as it fell out in clumps I did try the cool cap could not bear the ice cold lol it grew back I’m waiting fo4 another Brest tissue operation on Tuesday I’m praying he gets it all don’t want a 3rd operation the surgeon said it might require 3 operations trying to stay positive I’m on daltrapan injections only one more tomorrow morning I go into hospital 2pm tomorrow operation Tuesday morning I’m not worried about chemo just get past this cancer jean x

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    Hi Lorraine,

    I shall be thinking of you on Tuesday and, hope that your surgeon gets it all this time.

    Kind regards,

    Jolamine xx

  • ty jolamine started sneezing today took paracetamol and hot black current drink wee bit of honey in it as it tells you if you get a bad cold contact them see what I’m like in the morning my nose is dripping and red they can’t give you anestic if you have a bad cold fingers crossed ty jolamine replying I hope so getting a wee bit of pain friom breast I want it over and done with I hope this cold is better in the morning  x

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    Hi Lorraine,

    I sincerely hope that your cold disappears in the morning. A delay in surgery is NOT what you need at this stage.

    Fingers crossed for you.

    Kind regards,

    Jolamine xx

  • ty jolamine I hope so too want it don3 I’m hoping if cold gone he get it all and no third operation I was feeling low people on here are kind because you know what it is like I hope you are okay lorraine xx

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    Hi Lorraine,

    Did you manage to go ahead with surgery or not?

    I sincerly hope that you did.

    Kind regards,

    Jolamine xx

  • hi yes ty so much for caring yes got my operation on Tuesday morning 2 hours the surgeon said did quite a bit of work inside breast took away fair bit of breast tissue went into same wound said only it’s a bit bigger about 5 inches got dissolving stitches also paper stitches waterproof dressing on stitches come ou on Friday I get my nurse to do it my surgeon off for 2 weeks holiday go back in 3 weeks was worried about my treatment until he explained it was safe enough as he was still doing work on breast I know I had to be cancer free he said wait until your test comes back from lab how are you my friend ? Kind regards Lorraine x

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    Hi Lorraine,

    I am so glad to hear that all went ahead. It's just as well that you got it done before your surgeon went off on holiday. I can appreciate that you now have a worrying 3 week wait for the results from pathology, but sincerely hope that this will turn out to be good news.

    Kind regards,

    Jolamine xx