Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • hi Mejules 

    Glad you are recovering and getting the drain out helps it made me feel more normal again

    your q is interesting as yea it should b the end so I’ll b interested in what people say as I’m having this done in next week or so  

    my armpit and arm are still numb I’m exercising but I wonder should I also visit a physio for extra support ?

    im still taking gabapentin for nerve pain and ibuprofen as it gets uncomfortable r u taking pain relief 

    when can a person drive after this op my arm still weak but advice really appreciated.  

    Good luck with results thinking of u 

    Swiperbaby

  • Hi swiperbaby

    i know I have to have chemo and radiotherapy but yes like you thought resullts would be to say they took it all out. I know with lumpectomy they have to have clear margins etc but surely there is no clear margin with my op?

    i stopped the pain relief when I came out of hospital thinking I was ok haha needless to say by the next day I was popping the pills on a regular basis. I’m just taking paracetamol and ibrofren and it seems to be doing the trick. The nerve pain is a shocker when it happens. I’ve actuallt been known to let out a little yelp  

    when do you get your results? Mine is 5th June x 

    with regards to driving I was told when I can do an emergency stop and be in control of the car. My mom had a lumpectomy and waited a week and was ok to drive but I think it’s the node clearance that seems to be worse. I was hoping to do short journeys by end of this week x 

    take care x

  • Hello

    my breast nurse said the same thing when you can do emergency stop  I drove day 6 after lumpectomy but this s different thing as I’m having tightening down inside of arm I need to do more physio I know here doing it now and it’s hurting when I push the stretch but if I don’t do it I’ll end up with poor range of movement    I plan to drive in a few days I’m heading for a walk now 

    My margins ended up terrible this time and I’ve been told I need mastectomy my nodes were clear I have one badie but after node clearance the rest were good thank god I was more worried about this I’ll get over the mastectomy now 

     

    Regards s

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    Hi MeJules,

    You've caught me out with this question. It's been so long since I had my mastectomies that I cannot honestly remember. If I'm  correct, all post-op tissue is sent to pathology and, is again analysed to ensure that it concurs with your biopsy results and to see that the entire tumour has been removed. If any lymph nodes are removed at the same time, this is when you'll find out if any more are infected.

    I can recall getting a lot of details about my lumpectomy, but not much at all about my mastectomies. Perhaps someone else can answer this for us?

    I am sure that you will be glad to get your drain removed tomorrow. I still have discomfort in my arm and underarm after all this time. I think that most of us do, but we can cope with it.

    Kind regards,

    Jolamine xx

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    Hi Swiperbaby,

    I was referred to a physiotherapist after I came home following my lumpectomy, but left to my own devices following my double mastectomy. It certainly helped me to see the physio and, I didn't need to attend for long.

    The nerve pain can certainly stop you in your tracks, but watch out for the side-effects of Gabapentin. I had to stop it when I found myself getting forgetful and having difficulty in concentration.

    As far as I know, you can drive as soon as you can safely do an emergency stop. However, you are possibly best to confirm with your consultant, preferably in writing, that you are safe to do so, as we live in a very litigous society.

    Kind regards,

    Jolamine xx

  • Hi jolamine

    no drain out today. They decided to leave it in til Friday as still too much coming out. 

    I asked about what results I will get next Wednesday and the cancer nurse said in effect it should be it’s all out and how many lymph nodes were infected. The less nodes affected the less chance of reoccurrence so I’m hoping it’s low. Also they will be able to say if it there were precancerous cells in the chest wall , what grade and what stage. Not going to lie thought it would only be good news hereonin and start the chemo/radiotherapy so bit of a reality check for me. Just got to wait for results next Wednesday and take it from there . 

    Hope you are ok x 

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    Hi Mejules,

    I'm sorry to hear that you have to wait until Friday to get your drain out. I know that this is disappointing when you were expecting it out today, but you will probably benefit from keeping it in for a few more days, if there is still a lot of fluid coming out.

    I'm glad that you asked the nurse what to expect of your results next Wednesday. It is always wise to ask your care team about anything you don't understand.

    Here's hoping that it is all good news for you then.


    Kind regards,

    Jolamine xx

  • Hi everyone 

    Thought I would let you know that I started Chemo today, my wound still isn’t healed but we decided we needed to get going otherwise delaying it further could impact on the outcome for the cancer. 

    Bigjean, my onco said today that mine is treatable and curable... thought I would let you know as it is language they would use.

    I have had a really long sleep, and I’ve got a lot of tablets to take and I have to do some injections for 5 days starting Thursday, not really looking forward to that but needs must. And regular visits to the nurse to have my dressing changed. 

    How did the head shave go? 

    Take care.

    WL

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    Hi Woolylamb,

    I'm glad to hear that you are on your way at last. Here's hoping that your wound heals up soon.

    I hope that all goes well with your chemo and that you don't have the same bother as BigJean had to start with. Be good to yourself and rest/sleep when you need to.

    Kind regards,

    Jolamine xx

  • hi WL 

    good news you have started your chemo And good to hear your cancer is both treatable and curable.

    hope your wound heals quickly and chemo doesn’t swipe you off your feet too much me lovely x

     

    take it easy and take care of you x

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