Recently diagnosed with breast cancer

Hi everyone , I’m 44 recently diagnosed with Breast cancer DCIS and also hormone positive . Its in my lymph nodes aswell . Had CT , Bone Scan and MRI . I’m back on Tuesday to find out results . I’m freaked out having pain in the middle of my back and kept thinking it’s spread . Everyone says it’s stress . I’m fairly healthy never smoked . Just wondering has anyone any advice please . Xx

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    Hi BigJean,

    A very warm welcome to our forum, although I'm sorry for the reason you've joined. I hope that your results on Tuesday can help to put your mind at rest. Even if the news is not so good, it helps to know what the next moves are and puts a more positive slant on things.

    I suspect that the pain in your back is consequential to your diagnosis. We always seem to think the worst and develop all sorts of additional symptoms. In most cases this seems to be due to stress.

    I have lost my mum to breast cancer and, have had 2 bouts myself within the past 9 years. Waiting for results is always one of the most stressful times of a cancer journey. Try to keep yourself distracted by other pursuits and do your best to stay away from Google. The fact that you are healthy and have never smoked, should stand you in good stead with any treatment needed.

    Do please keep in touch and let us know how you get on on Tuesday. We are always here for you.

    Kind regards,

    Jolamine xx

     

  • Hi Jolamine ,

    thank you for your kind words . I’m so sorry you lost your mum and you going through it twice . I am not going to let it get me down just back from a big walk with my family and I feel great . That’s the weird thing I don’t feel sick at all . 

    I’ll let you know how I get on on Tuesday but I am ready to fight 

    talk soon xx

  • Hi WL , 

    im in much better form today . Not going to let it get me down. Feeling great after chemo this weekend taking plenty of anti sickness tablets and they working great .

    am getting my head shaved tomorrow my hair coming out very quickly today and it’s annoying me now , 

    hope you start your treatment this week and you best of luck with your head shave too . 

    Talk soon xxxxxxx

  • Hi Rileyroo , 

    thank you for your reply . My breast surgeon too said treatable ,which I was very happy with but the oncologist did say curable. 

    Xx

  • Hi Jolamine, 

    i just want to say how much an inspiration you are . I too like [@mejules]‍ didn’t realize how long you have been fighting this . 

    You always take the time to reply to our posts especially mine lately!! , while you are going through this yourself . I want to sincerely thank you for all your advice and amazing support. 

    Im in really great form , haven’t felt nauseous all weekend extra anti sickness tablets working a treat . Im not going to let it get to me what my friend said . 

    Ive decided to get my head shaved tomorrow as it’s coming out quite quickly. 

    Thank you again . 

    Take care 

    j xx

     

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    Hi Mejules,

    Thank you for your kind words. I lost my mum to breast cancer 22 years ago and, thought that I was prepared should the worst happen. Little did I know about how I would feel, until it happened. I had a massive meltdown myself when I was first diagnosed and got tremendous help from a group of people on the site, all sadly no longer here.

    As a result of this, I know just how scary all the waiting for results can be, alongside all the lifestyle changes, financial worries, etc. A cancer diagnosis carries a lot of baggage with it. It is for this reason that I do my best to try and ease some of the uncertainty and fear surrounding our cancer journeys.

    It is always good to hear that my efforts have been appreciated and, I thank you once again for taking the time to let me know.

    How are you feeling now? I hope that the soreness is settling down. Do you still have your drain in? I hope that all goes well when you get your results this week. Are you are bringing someone with you to your appointment? This is always a good idea, especially when you are going to get your results.

    Kind regards,

    Jolamine xx

    Kind regards,

    Jolamine xx

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    Hi BigJean,

    I am delighted to hear that you are doing so much better this time and, that you haven't felt nauseous all weekend with your new tablets.

    You're quite right to put what your friend said behind you and to just get on with things. As usual Rileyroo has come up with some good advice. You don't need negativity in your life now. Stick to being positive and it will make your journey so much easier.

    As to your hair. I'm sorry to hear that it is coming away quite fast now. This tends to happen. I am glad to hear that you have bitten the bullet and are going to get it all shaved off tomorrow. I think that you will find it easier doing this as opposed to having it come out in clumps.

    Thank you for your kind words. It's always reassuring to hear that people find my posts of some help.

    Kind regards,

    Jolamine xx

     

  • Hi jolamine

    you truly are inspirational to us x can I pick your brain again as bit confused as to what they will be telling me when I get my results from my op. I was kind of hoping that they will say the masectomy went well and all out. What other results will I get? X

    drain is due out tomorrow thankfully. Getting abit more movement and feeling back to my arm but still numb in the armpit and underarm .

    take care me lovely xx 

  • hi Mejules 

    Glad you are recovering and getting the drain out helps it made me feel more normal again

    your q is interesting as yea it should b the end so I’ll b interested in what people say as I’m having this done in next week or so  

    my armpit and arm are still numb I’m exercising but I wonder should I also visit a physio for extra support ?

    im still taking gabapentin for nerve pain and ibuprofen as it gets uncomfortable r u taking pain relief 

    when can a person drive after this op my arm still weak but advice really appreciated.  

    Good luck with results thinking of u 

    Swiperbaby

  • Hi swiperbaby

    i know I have to have chemo and radiotherapy but yes like you thought resullts would be to say they took it all out. I know with lumpectomy they have to have clear margins etc but surely there is no clear margin with my op?

    i stopped the pain relief when I came out of hospital thinking I was ok haha needless to say by the next day I was popping the pills on a regular basis. I’m just taking paracetamol and ibrofren and it seems to be doing the trick. The nerve pain is a shocker when it happens. I’ve actuallt been known to let out a little yelp  

    when do you get your results? Mine is 5th June x 

    with regards to driving I was told when I can do an emergency stop and be in control of the car. My mom had a lumpectomy and waited a week and was ok to drive but I think it’s the node clearance that seems to be worse. I was hoping to do short journeys by end of this week x 

    take care x

  • Hello

    my breast nurse said the same thing when you can do emergency stop  I drove day 6 after lumpectomy but this s different thing as I’m having tightening down inside of arm I need to do more physio I know here doing it now and it’s hurting when I push the stretch but if I don’t do it I’ll end up with poor range of movement    I plan to drive in a few days I’m heading for a walk now 

    My margins ended up terrible this time and I’ve been told I need mastectomy my nodes were clear I have one badie but after node clearance the rest were good thank god I was more worried about this I’ll get over the mastectomy now 

     

    Regards s

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    Hi MeJules,

    You've caught me out with this question. It's been so long since I had my mastectomies that I cannot honestly remember. If I'm  correct, all post-op tissue is sent to pathology and, is again analysed to ensure that it concurs with your biopsy results and to see that the entire tumour has been removed. If any lymph nodes are removed at the same time, this is when you'll find out if any more are infected.

    I can recall getting a lot of details about my lumpectomy, but not much at all about my mastectomies. Perhaps someone else can answer this for us?

    I am sure that you will be glad to get your drain removed tomorrow. I still have discomfort in my arm and underarm after all this time. I think that most of us do, but we can cope with it.

    Kind regards,

    Jolamine xx

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    Hi MeJules,

    You've caught me out with this question. It's been so long since I had my mastectomies that I cannot honestly remember. If I'm  correct, all post-op tissue is sent to pathology and, is again analysed to ensure that it concurs with your biopsy results and to see that the entire tumour has been removed. If any lymph nodes are removed at the same time, this is when you'll find out if any more are infected.

    I can recall getting a lot of details about my lumpectomy, but not much at all about my mastectomies. Perhaps someone else can answer this for us?

    I am sure that you will be glad to get your drain removed tomorrow. I still have discomfort in my arm and underarm after all this time. I think that most of us do, but we can cope with it.

    Kind regards,

    Jolamine xx

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