Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

  • I was referred to gynaecology in April 2020 I was 45 then. This was after I had biopsies taken from my womb in march while I was in hospital, they were the ones who also told me I had cancer,  and saw me through my treatment. My periods had stopped for 2 years, only to start up again, they were really heavy prolonged bleeding with lots of blood clots, I was so anaemic  I needed a blood transfusion (4 units), and had had a heart attack, the heart attack most likely saved my life, because of it they found my cancer early, I had to wait a while for my heart to heal, they put me on hormone therapy to stop the cancer growing, I have just had a hysterectomy, this January, which went well, and it looks like they got it all, they will keep an eye on me for 2 years

    I was never seen by oncology.

    Immediately after my biopsy results came back they rang me and asked me to go into see them 2 days later, this was at the beginning of lockdown, so no-one was allowed in with me, that's when they told me I had cancer, then they arranged a CT Scan, and the hormone therapy, I then had a long wait while they waiting for me to be fit enough for surgery.

  • Thank you so much for taken time to reply. I just always assumed oncology would tell you if you had cancer. I hope your better soon. Pam

  • Hello again, could you tell me how bad a womb biopsy is? Just my doctor said it was not pleasant which I thought god it must be bad! Thanks again Pam

  • For me it was a little like getting a smear, but more painful, people since then have recommend taking paracetamol and ibuprofen before the biopsy, but at the time they did not really explain what they were doing, just taking some samples, I did not really worry about them until I got a phone call asking me to attend an appointment 2 days later, the biopsy results took about 3 weeks to come back, the waiting is the hardest bit.

  • Hello

    I'm new.

    Looking for some help. Im 51 just had a minor bleedi ast week after 2 years of no periods. I have a cancellation app tomorrow at the hospital tmw to follow this up. The receptionist said the app should take no longer than 20 mins. What can I expect at the first app? Trying not to worry until I have something to worry about. 

    Thanks

  • Hi

    thank you for replying I have heard it’s painful. I had a colonoscopy last week and that was really painful. I chose to take no sedation bad mistake told result of that 5 weeks. I have to see a Dr at Gynaecology on Tuesday. My Dr thinks they will arrange for a womb biopsy after the meeting. 

  • I believe some tests are taking longer than usual because of covid, I hope all goes well for you, please let me know how you get on, the waiting and not knowing is the hardest, just take one day at a time, I struggled with not being able to concentrate on anything for long, once they did my CT Scan they found lung nodules and a lump in my breast, I had more tests and waiting to go through lucky enough neither appear to be cancerous, be kind to yourself and feel free to talk about it.

  • Sometimes it turn out to just be a hormonal, but always best to get checked out, for me I had 2 years of no periods, so when they started again I did not realise that I should of gone to see my drs, instead I ignored it, they were really prolonged and heavy, in the end I was so anaemic that I had a heart attack and needed a blood transfusion, that when they decided to investigate and found I had grade 2 endometrial adenocarcinoma. I'm now cancer free as of this January, I'm still recovering from the hysterectomy, I had trouble with infections afterwards, but it's all now cleared up and I'm doing well, if you have any questions feel free to ask, and please let me know how you got on. I know this is a very scary time, I wish you luck at your appointment, they will probably ask you loads of questions, they may examine you, that's what they did with me, they may want to take biopsies, not sure if they will do that on that day, which is what happened to me, or arrange to do them at another appointment, I did not to through the usual procedures as they did all mine while still in hospital with my heart attack. I hope everything is ok.

  • Thank you so much for helping. My Gynaecology appointment has been brought forward to Tuesday 16th.I will defo let you know what happens.

  • Good Evening

    Sorry to jump on this post..

    I'm Kelly, I joined yesterday. 

    I'm 42 in March. I have 4 children. I finally went to the doctor back in November regarding some symptoms I had been having for around 6 months. Irregular periods (either every 2/3wks or going 6/8wks being super heavy and lasting upto 10days) spotting in-between periods, bleeding after intercourse. Pain constantly over left Ovary. Pain during intercourse. Bloating, weight loss. I was sent for a ultrasound and to have a smear. When I went for my smear the Nurse decided to send me straight to Colposcopy clinic due to previous history of CIN3 & GCIN in 2014 and the fact I started to bleed as she took a sample. I was fast tracked to the clinic. I had another ultrasound as they didn't have results which showed my lining to be 14cms thick and a small cyst on Right Ovary. Left despite the constant pain couldn't be seen, which they said is a good thing as its likely stuck due to adhesions. As I suffer with Seizures (FND) they arrange to do a hysteroscopy & Biopsy under GA and a CA125 blood test. I had my procedure 25th Jan. Beforehand I saw 2 doctors. 1 saying they thought I had polyps and having a moan about me not wanting an IUD. 2 saying my CA125 was 43 so they did think there was an issue with the cyst (but not necessarily cancer) and that they would have a good look and together with Biopsy result make a plan of action. In recovery room I was told I didnt have any polyps and all looked good. I would receive my biopsy results in 3 weeks. On Friday I had a call from the MRI dept asking me to come in yesterday. I was waiting for a MRI for my shoulder so naturally assumed it was for this. I've had no paperwork come through. Yestwrday I went to find it was for a Pelvis MRI with contrast. I argued I wasn't there for it but they explained that my notes said the Consultant had arranged it as something was picked up on Ultrasound that needed further imaging.

    So now I am assuming the worst because everything I have read says you have a MRI as part of the diagnosis to determine what grade it is.... 

    Has anyone had a MRI alongside investigations that wasnt part of a diagnosis?