Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Wow your post is truly an inspiration and following my diagnosis of stage 1 today it's just the tonic I needed.  I had slight spotting for half a day, was sent to the hospital for biopsy, a blood test to check my ovaries, a polyp removed from my cervix which I thought right that's where the bleeding came from.  I had a CT of my whole torso, as I had free fluid on my transvaginal scan and they couldnt locate my left ovary.  After 2 weeks and still no news and attended my CT, an hour after my CT the consultants secretary rang to call me in. I was told my CT, bloods and polyp were all fine but I had abnormal cells in my lining which were type 1.  I am to have a total laprascopic hysterectomy on the 15th December and the surgeon will inspect my womb after to see if I need any further treatment.  I take it stage 1 is hopeful?  It is still a blur today but feel more relieved the speculation is over.  Thank you again for your fab post Susan 1953 xx

Hi,

You can have the option of gas and air if you find it uncomfortable. Take paracetamol and Ibuprofen 20 minutes before your biopsy as well if you can.  It will be over in a flash.  I think there is an option of local anaesthetic around the area too.  Good luck xx

Hi ladies! 

Sorry to jump on post but I had a hysteroscopy today and a flexible sigmoidoscopy on Monday! My symptoms are much like yourselves: heavy bleeding (with A LOT OF CLOTTING) , painful intercourse, lower back pain, nausea, pelvic pain, pain in legs, severe anaemia and bleeding from the back passage.

My GP was great and I had scans which found thickened and heterogeneous endometrium so was referred to the hospital. The appointment took three weeks. 

The doctor I saw today (before procedure) made me feel silly for being there and basically told me they wouldn’t find anything to worry about as I’m only 38! 

Anyway they found a polyp, too large to remove at the time so I’m to go back to be put to sleep to remove it. I also had biopsies taken as I did on Monday with the sigmoidoscopy.

I know that most of the time polyps aren’t a cause for concern but I also know that when they are large risk of malignancy is  increased and also with the symptoms I have especially the worsening anaemia doesn’t paint a good picture.

can anyone offer some words of wisdom or reassurance? Xx 

Hi I am so sorry about your diagnosis. I hope my question is ok.  I was told I had thickening of womb wall I am 54 stopped periods 2.5 yrs ago. Due to this had a transviginal ultra sound on Friday 2 days later got an appointment to see a Dr at Gynaecology Dept on 23rd? My friend said if I had cancer I would have got a quicker appointment and she also said if they had found cancer I would be referred to oncology & not a gynaecologist? Could you tell me what happened to you? Or what you think? Thank you Pam

Hi wonder if you could answer question please at ctvscab picked up i had a thickening of lining of womb I am 54 finished my periods 2.5 years ago. I went for a transvaginal ultra sound on Friday and on Monday I received a letter to see a Dr at Gynaecology on 23rd. I just think that was very quick and am a bit concerned I have had two blood transfusions recently due to very low haemoglobin levels and that is why I got loads of tests done under 2 week pathway for cancer I have already had a growth cut from bowel & sent to pathology. But the quickness of this letter worrying me. Pam

I was referred to gynaecology in April 2020 I was 45 then. This was after I had biopsies taken from my womb in march while I was in hospital, they were the ones who also told me I had cancer,  and saw me through my treatment. My periods had stopped for 2 years, only to start up again, they were really heavy prolonged bleeding with lots of blood clots, I was so anaemic  I needed a blood transfusion (4 units), and had had a heart attack, the heart attack most likely saved my life, because of it they found my cancer early, I had to wait a while for my heart to heal, they put me on hormone therapy to stop the cancer growing, I have just had a hysterectomy, this January, which went well, and it looks like they got it all, they will keep an eye on me for 2 years

I was never seen by oncology.

Immediately after my biopsy results came back they rang me and asked me to go into see them 2 days later, this was at the beginning of lockdown, so no-one was allowed in with me, that's when they told me I had cancer, then they arranged a CT Scan, and the hormone therapy, I then had a long wait while they waiting for me to be fit enough for surgery.

Thank you so much for taken time to reply. I just always assumed oncology would tell you if you had cancer. I hope your better soon. Pam

Hello again, could you tell me how bad a womb biopsy is? Just my doctor said it was not pleasant which I thought god it must be bad! Thanks again Pam

For me it was a little like getting a smear, but more painful, people since then have recommend taking paracetamol and ibuprofen before the biopsy, but at the time they did not really explain what they were doing, just taking some samples, I did not really worry about them until I got a phone call asking me to attend an appointment 2 days later, the biopsy results took about 3 weeks to come back, the waiting is the hardest bit.

Hello

I'm new.

Looking for some help. Im 51 just had a minor bleedi ast week after 2 years of no periods. I have a cancellation app tomorrow at the hospital tmw to follow this up. The receptionist said the app should take no longer than 20 mins. What can I expect at the first app? Trying not to worry until I have something to worry about. 

Thanks

Hello

I'm new.

Looking for some help. Im 51 just had a minor bleedi ast week after 2 years of no periods. I have a cancellation app tomorrow at the hospital tmw to follow this up. The receptionist said the app should take no longer than 20 mins. What can I expect at the first app? Trying not to worry until I have something to worry about. 

Thanks

Sometimes it turn out to just be a hormonal, but always best to get checked out, for me I had 2 years of no periods, so when they started again I did not realise that I should of gone to see my drs, instead I ignored it, they were really prolonged and heavy, in the end I was so anaemic that I had a heart attack and needed a blood transfusion, that when they decided to investigate and found I had grade 2 endometrial adenocarcinoma. I'm now cancer free as of this January, I'm still recovering from the hysterectomy, I had trouble with infections afterwards, but it's all now cleared up and I'm doing well, if you have any questions feel free to ask, and please let me know how you got on. I know this is a very scary time, I wish you luck at your appointment, they will probably ask you loads of questions, they may examine you, that's what they did with me, they may want to take biopsies, not sure if they will do that on that day, which is what happened to me, or arrange to do them at another appointment, I did not to through the usual procedures as they did all mine while still in hospital with my heart attack. I hope everything is ok.

Hi just had my biopsy today as I had thickening, consultant didn't say how much and I didnt ask. Due to covid the expect tge results to take 8 weeks. The only parting comment he left me with was it happens to 5 or 10 per cent of women my age and if it is cancer its very easily treatable. So I cannot get this comment out of my head that he is pre warning me. Can they see anything other than the thickness when they carried out the scan. I just have to out it to tge back of my head and wait 8 weeks.

Same here...was told mine was thicker than it should be but no detail. Also small cysts on ovaries they are not worried about due to normal blood tests. Patch on cervix was an extra - never missed a smear test but did have a cervical erosion about 30 years ago  Appintments have come through very quickly so far so grateful for that. Was told 2-4 weeks for results but should probably expect longer.  

The waiting is the worse part, the not knowing, it weighs heavy on your mind, I had a 3 week wait from my biopsy results, but at the time they did not really say what they were testing for so therefore I was not really worried, that is until they rang me. I do know some areas are quicker than others with testing but do know Covid is slowing everything down, I had to wait an extra 3 months for another CT Scan.

They usually catch womb cancer early due to the bleeding issues that go with it, most people go to see their GP pretty much straight away.

I had a total laparoscopic hysterectomy my ovaries and cervix were also removed, all tests afterwards ( came back within 3 weeks) say all my cancer is gone, so I do not need any other treatments, which is a great big relief, but they will keep an eye on me for next 2 years, I was told to look out for unexplained weight loss and any vaginal bleeding, any of those and I'm supposed to go see my drs. They will do a 6 week and a 6 month check, the first one will be a phone consultation, the second is an appointment.

Thanks for your reply its always good to share stories and experience. Think a stiff drink tonight is in order. I didnt have bloods taken. Im also based in scotland so will be interesting to see how far apart our results arrive. A lot of people on this forum post and never come back on possibly due to good news so I've convinced myself ill be in that percentage bracket that mine is cancer. I too am pleased how fast I've been seen and glad I went to the gp after 1 bleed and didn't dismiss it.im sure I will tackle it face on positively whatever it maybe just is rather know one way or the other and sooner. Im currently supporting my sister in law who was diagnosed with stage 2 breast cancer 3 days before Xmas and it was only picked up on mammogram she had no symptoms. She had her surgery a week ago. 

Will follow your story and see what your outcome is 

Hello - nearly 3 weeks in and no news. How are you doing? 

Hello just added you as friend so I could message you. nope nothing from me as yet just as well as I have some stressful stuff going on right now. I had a full mot at that time so my thyroid has came back fine and they ran some other tests when I was bleeding at the GPS and they have come back fine. 

Hi, had some great news...my biopsies came back clear.  I have to have another colposcopy booked for the 30th March to remove a lesion but no nasty cells.  I was given the option to leave it but decided I wanted to get rid!  Hope you're not waiting too much longer and you get some good news too. 

My biopsy came back clear today too I waited 10 weeks on the results so relieved I had a bleed after being through the menopause and my womb lining was 5 cm the waiting all those weeks is terrible 

Hi Leilani

I hope you are well 

I hope you don't mind me asking 

have you been ok since your op ?

im having my op in 2 weeks 

thank you