Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hi wonder if you could answer question please at ctvscab picked up i had a thickening of lining of womb I am 54 finished my periods 2.5 years ago. I went for a transvaginal ultra sound on Friday and on Monday I received a letter to see a Dr at Gynaecology on 23rd. I just think that was very quick and am a bit concerned I have had two blood transfusions recently due to very low haemoglobin levels and that is why I got loads of tests done under 2 week pathway for cancer I have already had a growth cut from bowel & sent to pathology. But the quickness of this letter worrying me. Pam

I was referred to gynaecology in April 2020 I was 45 then. This was after I had biopsies taken from my womb in march while I was in hospital, they were the ones who also told me I had cancer,  and saw me through my treatment. My periods had stopped for 2 years, only to start up again, they were really heavy prolonged bleeding with lots of blood clots, I was so anaemic  I needed a blood transfusion (4 units), and had had a heart attack, the heart attack most likely saved my life, because of it they found my cancer early, I had to wait a while for my heart to heal, they put me on hormone therapy to stop the cancer growing, I have just had a hysterectomy, this January, which went well, and it looks like they got it all, they will keep an eye on me for 2 years

I was never seen by oncology.

Immediately after my biopsy results came back they rang me and asked me to go into see them 2 days later, this was at the beginning of lockdown, so no-one was allowed in with me, that's when they told me I had cancer, then they arranged a CT Scan, and the hormone therapy, I then had a long wait while they waiting for me to be fit enough for surgery.

Thank you so much for taken time to reply. I just always assumed oncology would tell you if you had cancer. I hope your better soon. Pam

Hello again, could you tell me how bad a womb biopsy is? Just my doctor said it was not pleasant which I thought god it must be bad! Thanks again Pam

For me it was a little like getting a smear, but more painful, people since then have recommend taking paracetamol and ibuprofen before the biopsy, but at the time they did not really explain what they were doing, just taking some samples, I did not really worry about them until I got a phone call asking me to attend an appointment 2 days later, the biopsy results took about 3 weeks to come back, the waiting is the hardest bit.

Hello

I'm new.

Looking for some help. Im 51 just had a minor bleedi ast week after 2 years of no periods. I have a cancellation app tomorrow at the hospital tmw to follow this up. The receptionist said the app should take no longer than 20 mins. What can I expect at the first app? Trying not to worry until I have something to worry about. 

Thanks

Hi

thank you for replying I have heard it’s painful. I had a colonoscopy last week and that was really painful. I chose to take no sedation bad mistake told result of that 5 weeks. I have to see a Dr at Gynaecology on Tuesday. My Dr thinks they will arrange for a womb biopsy after the meeting. 

I believe some tests are taking longer than usual because of covid, I hope all goes well for you, please let me know how you get on, the waiting and not knowing is the hardest, just take one day at a time, I struggled with not being able to concentrate on anything for long, once they did my CT Scan they found lung nodules and a lump in my breast, I had more tests and waiting to go through lucky enough neither appear to be cancerous, be kind to yourself and feel free to talk about it.

Sometimes it turn out to just be a hormonal, but always best to get checked out, for me I had 2 years of no periods, so when they started again I did not realise that I should of gone to see my drs, instead I ignored it, they were really prolonged and heavy, in the end I was so anaemic that I had a heart attack and needed a blood transfusion, that when they decided to investigate and found I had grade 2 endometrial adenocarcinoma. I'm now cancer free as of this January, I'm still recovering from the hysterectomy, I had trouble with infections afterwards, but it's all now cleared up and I'm doing well, if you have any questions feel free to ask, and please let me know how you got on. I know this is a very scary time, I wish you luck at your appointment, they will probably ask you loads of questions, they may examine you, that's what they did with me, they may want to take biopsies, not sure if they will do that on that day, which is what happened to me, or arrange to do them at another appointment, I did not to through the usual procedures as they did all mine while still in hospital with my heart attack. I hope everything is ok.

Thank you so much for helping. My Gynaecology appointment has been brought forward to Tuesday 16th.I will defo let you know what happens.

Thank you so much for helping. My Gynaecology appointment has been brought forward to Tuesday 16th.I will defo let you know what happens.