Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

Parents
  • Lines hope things are going well for you and hope your coping virtual hugs 

  • hi, hope you don't mind me jumping in on your thread, i just wondered if you have had a diagnosis? I have the same symptoms as you bright red bleeding like a period followed by brown discharge on and off, and i am worried sick, I can't have a biopsy due to having had an ablation. i have had a couple of scans one which showed a endometrium of 12mm and then the other that showed an endometrium of 4mm. If you don't mind replying that would be great. I'm 53 years old and haven't had a period for so long! x

  • Hiya

    Sorry hope you dont mind me jumping on all your threads. I'm 45, pre-menopause, was told Sept 2018 that I have Endometrial Hyperplasia and so had a coil fitted. Periods stayed normal and nice and regular for a while. Doc said Sept 2019 when I was ready for a hysterectomy let her know and she'd refer me, but at the time I was looking after my dad. So 2020 came and Covid set in. My periods are now continuous and have been for 5 months, back pain, legs ache. So I've been back onto my GP and I've been referred but I dont know how long things will take as I'm now waiting for a phone consultation. We've got a son so we're not worried about a hysterectomy. I've got family history of early hysterectomy's, so think theres a bit of a theme going on. Hope you're all staying safe xx

  • I have just had my diagnosis and got the all clear its now just sorting out the  lining  whuch will be treated with meriva coil and maybe some tablets I still have the discharge and occasional bleeding but know its nothing too worrying. I still find it weird to have stomach pains bleeding abd discharge long after the menopause but it should be better with treatment. I have atrial fibulation, angina and had a stroke abd several Tia,s  and thinning of heart  wall which they think might be hole They dud my biopsy using a spinal injection which meant I could feel nothing from waist  down felt very strange but was much safer. Maybe ask your consultant if its possible ti do  biopsy  using spinal methid I also have degeratuve soine so they had to be careful . Uts worth asking to put your mind at rest I wish you all the best please keep in touch xxx hugs

  • Hope they are able to sort it for you. I had meruval coil fitted some time back to stop heavy periods it was fabulous for first 4 year I expected my go to contact me when it was due fir removal they did not and I never realised I was having continual water infection and stomach pain they investigated abd at that time fiund I had a dermoid cyst 6mm in size in my left ovary so I had coil taken out and left ovary and cyst removed whuch cleared up my UTI,s 

    However I now have UTI,s again I hope tgey sort it fir you mand I wish in a way they had given me a hysteroscopy and I would not have had to go through all these ussyes during covid which is scary and worrying I wish you all the best di stsy in touch I hope they can do you operation sooner rather than later

  • Hiya

    Thanks for your replies. I'm not normally a flapper and still not really, but it's there in the back of my mind. Just because I know what it can develop into to. It's not helping that the coil hasnt settled my periods down, when I rang the doc on Sept 15th they had it on screen to refer me and I had a letter within a week from the hospital to call them, so I did and now it's a phone consultation but no date yet. So I dont know, if that's moving quickly or not? I also know it can take years to develop into Cancer if it does at all. Xx

  • They put me on a two week program whuch is normal to be in safe side but try not to panic cross each bridge as you get to it and keep talking uf it helps I was worried and si was my husband and family its a nice feeling to be  given the alk clear but I think I read too much on Internet on how thucknesd of womb lining can turn to cancer scary stuff...try yi stsy positive the sooner tgey see you the more you will know. I was worked up because I had to go in on my own i have issues undressing and dressing and nurses u did nit know heloed me but my husband kniw whuch way is best and ti stop rest di more etc so thus civud thing us making things seem worse but support from family and friends and people who have been through it helps  I am glad things are moving fast less time to work yourself up hugs xxx

Reply
  • They put me on a two week program whuch is normal to be in safe side but try not to panic cross each bridge as you get to it and keep talking uf it helps I was worried and si was my husband and family its a nice feeling to be  given the alk clear but I think I read too much on Internet on how thucknesd of womb lining can turn to cancer scary stuff...try yi stsy positive the sooner tgey see you the more you will know. I was worked up because I had to go in on my own i have issues undressing and dressing and nurses u did nit know heloed me but my husband kniw whuch way is best and ti stop rest di more etc so thus civud thing us making things seem worse but support from family and friends and people who have been through it helps  I am glad things are moving fast less time to work yourself up hugs xxx

Children
  • Hi Ladies just thought i would jump on the post hope you dont mind. 

    Back story, I have very heavy periods and started having heavy bleeding during sex. Went doctors LUCKILY and she could see something on my cervix. Refered to gyne very fast who could see something but didnt bleed when she was checking which she said was odd. Had scan on womb and coloscopy. Lining of womb was 12.5mm she didnt seem to concerned. During coloscopy she took biopsies of womb lining to rule that out causing the bleeding.

    2 weeks later get letter to go back to the hospital 1 week later thought wow thats fast, then googled the consultant he was the cancer specialist.

    Went for my app Luckily no cervical cancer phew BUT I have pre cancer cells in my womb thought oh not bad bit of treatment job done little did i know that there arr 2 types of womb cancer Type 1 which is slow growing and a coil can be fitted to help with hormones and can sort them selves and then there is type 2 which is aggresive fast growing and fast spreading and wont just go away. Of course i would have type 2  

    Only resolution is treating it the same as it is cancer so now at the age of 37 i am booked in for a gold star hysterectomy within the next 4-6 weeks to remove everything pre op next Tuesday so dont think it will be too long 

    I am very lucky to all ready have 2 children and a very supporting husband amd family. Im dreading due to covid doing it all alone in hospital but at least I will be alive

    I am so lucky the consultant did those womb biopsys. 

     

    Sorry for the long post and thank you for reading. 

  • Hi everyone hope you are all doing well 

     

    I have surgery on the 6th of November to have a polyp and the thickened lining of my womb removed and tested. 
     

    it all started October 2019 when I had a massive bleed and some sort of mass, me only being 24 I thought maybe it was a miscarriage, I went to a&e, was told nothing and sent home, I then visited my GP who was very reluctant to offer me a ultrasound, but I managed to get one out of her. I had 2 ultrasounds as they wanted to be sure, they told me I had a 7mm polyp and would need it removed and that's it. I was told around 4 months later that I was put on a waiting list but I was looking at over a year. My grandmother was very worried as she had womb cancer and was concerned and paid for me to see someone private, I saw an amazing doctor who put me on 20mg provera as I was bleeding consistently for 2 months and having week breaks in between. He hoped that the pills would help with the thinking of my wall to see if there was a polyp or not. I had a scan done early October 2020 and people soon became concerned when the realised my womb had a thickness of 24mm I was quickly rushed in to have the polyp and the thickness removed and tested. I am very worried about the chance of cancer because I have been experiencing great pain. Also worried about the surgery as it is my first surgery, all your messages and posts have been very informing and has helped me a lot, I hope you are all well xxx fingers crossed it comes back negative! 
     

     

    stay well, stay safe x

    molly

  • Hi.

    Iv been reading all what has been happening with everyone on here.I hope your all doing as well as possible .

    I am 49 years old and only started having really heavy and long periods about two months ago,also I started getting pelvic pain and lower back pain.I spoke to a GP at my surgery on the phone(not actually seeing anyone because of covid)this was on the Monday 9th of November,she said she would refer me urgently for a transvaginal ultrasound.I had that done on Saturday 14th November and my GP rung me on Monday 16th to say I had endometrial thickness mass so she will be referring me to a gynecologist to get a biopsy and maybe a D&C procedure.What I forgot to ask was would I get this done quickly so not hearing anything more I called my doctors surgery to ask if there are any more details.I spoke to a very annoyed sounding receptionist who told me I need to be patient as there is a back log of people who need to be seen because of covid.Has anyone else had to wait a while because of covid to go for a biopsy?Tia xx