Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hysteroscopy results from Dec mentioned atrophic womb and now transvaginal saying 12.5mm thickness are these 2 separate things or as my womb gone from one extreme to the other I'm getting confused with it all and googling all sorts 

Bless ya you have really been through the ringer your on the right track and I'm sure they will call you in when it's safe to operate and oh the nightmare of blood thinners I've been on clopidogrel for 10 yr following a heart procedure 

Hi Marth, I wish I could help but I'm really not sure but I do know that atrophy of the womb/vagina is common in post menopusal women due to hormone changes and these changes can also affect thickness of womb lining.  Hope you get an appointment soon. x

Same one I'm on too, I think I will have to stop them before they do the hysterectomy, wishing you the best hopefully you will get the information to answer your questions, your pain sounds similar to what I'm now getting, is it possible that an infection got into where they removed the polp?  I would not have a clue about my womb thinkness its never being checked to my knowledge, 

Thankyou for your help x

Hi I've had to stop mine 2 week prior surgery before but never stopped them during tooth removal and I was fine no excess bleeding etc should only be on it for a year post surgery  but my consultant decided to keep me on it indefinitely due to them helping my migraines been on it 10 yr now no problems and regards the polyp removal anything is possible with my hospital wishing you well with the hysterectomy and that things get back to normal quickly regards covid x

hi

tks for replying to my story

it must be so very worrying for you not being able to have the surgeries you require due to covid restrictions.

I hope you have faith & trust in you gynae team - i was very fortunate and trusted all my carers / team completely, even now if i have an issue  , 12 months on, i am able to contact them with any concern and they can  advise from there.  Obvioulsy face-to face appts may become much easier  to do with visits etc wearing PPE to go to appts etc - so hope this will ensure you get to see the specialist sooner.

thinking of you

x

Hi , sorry to be a bit of a pain but I'm going out my mind here regards  last post where transvaginal found a 12.5mm thickening my gp did a advice and guidance referal with the consultant that i seen back in Dec who diagnosed atrophic womb after hysteroscopy consultant as got back to gp and he wants to see me urgently the pains I'm experiencing are chronic soreness and pain over my left pelvic bone which can then shift to a dull heaviness almost like a water infection x 10 (I've had water tests no infection ) I get like little electric shock type prickles over pelvic area with a watery clear discharge almost as if water are breaking I also have a feeling of trapped wind in the womb area which I know it's not ive taken that many wind tablets and ibs pills to be sure but my question is can I ask what your symtoms are and should I be worried and I dont mind straightness I would sooner be told straight I hate the waiting game 

Hi I'm going through same symptoms did you find out your results yet worried sick x

I was diagnosed with womb cancer on 14 Feb. My operation has been cancelled 5 times. Because I have other health issues I need an ITU bed after surgery and because of covid they didn't have any.  My stress levels are through the roof. I'm now told if my blood sugars improve in the next 3 weeks I might get my op in August. I'm petrified about surgery had bad experience years ago. The waiting is like torture. Good luck to you all in your journeys xx

I was diagnosed with womb cancer on 14 Feb. My operation has been cancelled 5 times. Because I have other health issues I need an ITU bed after surgery and because of covid they didn't have any.  My stress levels are through the roof. I'm now told if my blood sugars improve in the next 3 weeks I might get my op in August. I'm petrified about surgery had bad experience years ago. The waiting is like torture. Good luck to you all in your journeys xx

best of luck to you Princess69

hope all goes well

x

Thank you x