Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Hi there may I ask wht stage urcancer was please ? X

Hi there, hope you are well.  I am new to this site and came across your post and wonder if you can share your experiences of radiotherapy/brachytherapy. I had radical hysterectomy for womb cancer in Jan 2020, one session of chemo and consultant is suggesting 25 radiotherapy and 3 brachytherapy sessions.  The side effects concern me and wonder how you getting on!  Any info / advice would be appreciated.  Thank you so much.

Hi hope your doing ok can i ask what your symtoms were I had a hysteroscopy in Dec 19 due to post menopausal bleed struggled doing the test because of tilted cervix he just said I've seen enough womb is atrophic but dry and cracked due to menopause no biopsie was taken   and a benign polp removed fast track to now and I'm in excruciating pelvic pain radiating down my leg and round lower back I cant even rest my hand over one specific area lower abdomen I have an urgency to wee all the time but no bleeding I've had a repeat transvaginal which as shown endometrial thickening 12.5mm with trace of fluid and a very small 1cm cyst in right ovary I'm petrified and thinking the worse doc wants a repeat hysteroscopy but the pain last time was horrific 

Hi Marth, hope you are ok, its not east waiting for results, but keeping busy does help.  To be honest apart from very severe bleeding and fatigue/breathlessness I had no other symptoms.  I was prescribed iron tablets for anaemia which was why doc said I was tired and breathless.  My bleeding continued for 2-3 years and I was told it was due to perimenopause.  After seeing yet another doctor I had an ultrasound and transvaginal ultrasound. Radiographer said she was referring me fora hysteroscopy as she could see fibroids and polyps in my womb and my womb lining was thickened.  I was on the 2 week pathway but I waited 17 weeks for the hysteroscopy appoibtment then 7 weeks for the biopsy result.  I was called in for my results to be told I had endometrial cancer.  But can I just say that fibroids/polyps/thickening does not necessarily mean cancer.  But even if it does, they will come up with a treatment plan and as long as you take each part step by step, you can do it.  Treatments have come a long way in recent years.  I was diagnosed Dec 2019, had my op endJan 2020 and finished my treatment this week.  I know its difficult but try not to worry.  I am here if you have any more questions or just want to chat. Take care. x

Thankyou for your reply and glad your treatment as gone well for you   I had fibroids last yr but they have gone due to menopause and the polyp was removed off my cervix which was benign it's the pain I'm in everyday for the last 2 week that's worrying me I've always had a dullache almost like a constant urine infection for 4 month  but last week I had the dog leant against my pelvic bone and pelvic area (hes a small jack russell)  and I've been in terrible pain had no bleeding just a very wate like clear discharge  I've been checked for infection etc I'll just have to see what the next plan is just hope i get to see a gynae face   to face but dont hold much hope during covid thankyou so much for replying and wish you well x

I have just recently ( in April 2020) being diagnosed with womb cancer grade 2 endometrial adenocarcinoma and waiting for a hysterectomy.

For years I have had really heavy prolonged bleeding for my periods, I have never had regular periods, and when I did I had about 1/3 periods a year sometimes my periods lasted for months, with my longest one being 4 months, at the time they told me my underactive thyroid was causing them.  In about 2017 my periods completely stopped I thought it was due to early menopause, In 2019 they started up again I assumed it was the ovestin cream I had being prescribed that had caused them to start up, I thought if I stopped using it, they would stop, then in Jan/ beginning Feb 2020 I started a really heavy period, this continue into march and I ended up in the hospital (Heart Attack) I needed a blood transfusion, they asked me a lots of questions and I explained about the heavy bleeding and the history of it, they then decided to do a biopsy, which for me was like having a smear but a little more painful, especially when taking the samples, they did not quite tell me what they were doing, or what they were checking for, so I did not really worry too much, I got a phonecall in the beginning of April asking me to come in and speak to them, (at this point, this is where I got worried) I also had to go in alone (due to covid19) then they dropped the bombshell I had cancer in my womb, introduced me to a Macmillan nurse, I really did not take much in from there, I was in complete shock, and could not really believe what I was hearing, I wished they had let my husband in with me. Since then I've being put on hormone therapy they have said this is to buy time until they can do a hysterectomy, which they are unable to do just yet due to my recent heart attack and being on bloodthinners after they put a stent in my heart and also due to covid 19, they said surgery for me would be far too risky,  they have to work closely with cardiology, I also have other health issues that they have to take into consideration, This past 2 weeks I have had really light bleeding on and off and a feeling like really bad period pains which vary from hour to hour, pain goes through to lower back.

I dont think I would of visited the drs I just assumed it was just related to my underactive Thyroid, my periods had always being really bad, I had seen numerous drs over the years, I had kinda given up, I did not think they could offer anything new to help. If not for the Heart Attack, the cancer would of being much worse before I went to to drs

Good news is the cancer seems to be contained in my womb ( consultants words) but it has highlighted a couple of other areas they going to keep an eye on, there are a few nodules in my lungs ( they going to monitor them for changes I will have another CT scan in 3 months). They spotted something in my left breast, which they think is fibroadenoma, they could not do a biopsy again due to bloodthinners I'm on, but they do not think its anything to be worried about, I'm not so sure I feel the same way they do, I like to know either way.

I am still a little worried/ concerned about leaving the cancer in my womb until its safe to remove it, they said it would be months not weeks before they could remove it, hence the hormone therapy, I just want the cancer removed, it feels wrong leaving it in, and very scary, you worry it going to spread and feel a little paranoid.

Hi Marth, you say your womb is atrophic. Im not a doctor but that in itself can cause urinary problems and if it has been like this for a while that could be causing your symptoms. Put your trust in your doctor and if you need more tests or investigations then there will be a reason.  They are covering all bases.  Here if you need to talk. x

Hysteroscopy results from Dec mentioned atrophic womb and now transvaginal saying 12.5mm thickness are these 2 separate things or as my womb gone from one extreme to the other I'm getting confused with it all and googling all sorts 

Bless ya you have really been through the ringer your on the right track and I'm sure they will call you in when it's safe to operate and oh the nightmare of blood thinners I've been on clopidogrel for 10 yr following a heart procedure 

Hi Marth, I wish I could help but I'm really not sure but I do know that atrophy of the womb/vagina is common in post menopusal women due to hormone changes and these changes can also affect thickness of womb lining.  Hope you get an appointment soon. x

Hi Marth, I wish I could help but I'm really not sure but I do know that atrophy of the womb/vagina is common in post menopusal women due to hormone changes and these changes can also affect thickness of womb lining.  Hope you get an appointment soon. x

Thankyou for your help x