Endometrial cancer

Hello everyone - world turned upside down with a diagnosis of cancer in womb yesterday. Only went to see GP a week ago about water infection and scan yesterday revealed otherwise. Op arranged in 10 days time so all happening incredibly fast and I’m a bit she’ll shocked and I know I haven’t listened properly to GP etc about what is going to happen so I’m consulting Dr Google which is a stupid thing to do. If anyone has had endometrial cancer post menopause I would appreciate any information especially if it is known to spread. Thank you 

Parents
  • Hello!

    thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

     

    I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

  • hi laney

     

    Appreciate your reply

    I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

     

  • Hi Sally

    I was thinking about you last week wondering how your hysteroscopy went. I didn't want to keep asking:-).

    Oh no!  that's such a dissapointment, after all that waiting they only called you in  for a chat. So are you now booked in for this Wednesday? 

    I am still waiting for my biopsy results. The saying goes...... no news is good news !!!! I hope and pray this is the case.

    I have booked an appointment to see the GP next week for my bad back so i will ask about the biopsy results.  

    My immediate family are aware, however I am not openly talking about the situation, or my emotional state. Like I said, everyone is in their own bubble struggling with their own battles. I have good moments and then there are moments when i start planning for the weeks ahead, only to stop in my tracks, because i dont know what will be happening. Will I need more tests, will I need surgery, chemo,radio everything is uncertain and on hold!!! Then one thought after another takes me on a downward spiral. I can deal with things once i know. I just wish the results could be made available a lot quicker

    2 weeks after my hysteroscopy I am ever so slightly spotting. No pain but im sure I do feel the mirena coil or maybe im just imagining it.

    Please do let me know how it goes on Wednesday. Wishing everything goes well for you.

    All the Best

    Nikki

     

  • Hi Sally

    How are you? Hope your  hysteroscopy experience wasnt too traumatic 

    Thinking of you.

    Best wishes 

    Nikki x

  • Hi Nikki 

    Sorry I meant to post last night but fell asleep! 

    It was very painful, took 2 attempts but I'm so pleased I persevered as it turns out it's all perfectly normal the consultant didn't even bother taking a biopsy as she said it was all healthy

    She was disgusted in what I'd been told by he gp and is putting in an official complaint about it! She said all I should have been told was it was a possibility but that it needed more investigations. I shouldn't have been told it was and then shown the different treatment plans for the different grades!!

    As you can imagine I'm over the moon and have slept soundly for the first time in a few weeks

    I will check in to see what your results are and I'm keeping my fingers crossed that it's also good news

    Thank you so much for your support on here 

    Sally xx

  • Hi sundial, MY first visit to this site. Had a full hystorectomy  due to cancer found in womb, now all clear,all went really well, and trying to decide about Brachytherapy and the after effects re. Bladder and bowel. How was it for you? 

    N.b. Wish all you brave ladies all speed for a successful recovery,big hugs xx 

     

     

  • Sallllyyyyyyy thats fantastic news i am so happy for you honestly.. Wish there was a dancing emoji I could use lol.

     What a relief, a whole weight lifted off your shoulders. But all that waiting, such an emotional roller coaster of feelings.  Yes the consultnt is doing right, i dont think the GP explained the process correctly, It could have been worded correctly.

    Me, well im still waiting........... I'm back at work this week so trying to bury my head in all the paperwork.

    I will keep you updated.

    Thank you for your support.

    Best wishes Nikki xx

  • Hi Laney

    Can you tell me did the womb lining biopsy hurt. I have mine in three days and fee panicked. Thank you

  • Hi there, so sorry to hear your ordeal. Sadly, iv been told I have thickening of the womb plus a ton of nasty symptoms and need a biopsy of womb lining. My question is... I'm worrying, does the procedure hurt. Honesty is what I'm looking for. Thank you

  • I feel for you love, I'm at the same stage, I have to have a womb biopsy and have to say, dreading it. Have you had this, does it hurt

  • Thank you, you don't know how your post has helped me!! I'm in total panick, not about any results but about the "thickening womb biopsy"

    Just the thought of it hurting is awful, that's because iv had cervical pre cancer cells in the past and the biopsies were very very screamable painful, therefore I'm dreading this procedure, please tell me more how it was for you. I have it done on 11/11/2019 maybe you won't see this by then, but hopefully you may, thank you x

  • hi

    my womb lining biopsy did not hurt, just slightly uncomfortable, like a crampy feeling and a slight tug of the lining, told to `cough` when took sample.

     

    hope all goes ok for you

     

    x

Reply Children
  • Bless you thank you for replying, that gives me hope. Thank you so much, its nice to read all the people who understand your fears etc. Thank you again

  • I have posted previously as I was post op following a hysterectomy for endometrial cancer on 8th Oct and awaiting histology reports to see if further treatment, eg radiotherapy was required..

    I have a six week consultant appointment on 18th Nov but did not want to wait so long for the result. I e mailed my cancer nurse at the hospital to request that she let me know ASAP if the result came through.

    They have a multi disciplinary meeting with relevant people to discuss each case and decide on the way forward once the result is through.

    The specialist nurse phoned yesterday to say that they had managed to eradicate the cancer with the op alone and I need no further treatment. Massive relief.

    if you are waiting for a result phone or e mail to chase it up.

    Also tell all women friends and family to go to their GP for any changes in their body however small, 

    I had the tiniest whisper of staining on my pants, post menopausal. It would have been so easy to ignore or to "wait and see" but I went straight away and caught it at what has been finally diagnosed as stage 1, grade 1. It was caught so as soon as it possibly could have been.

    We all have family committments, work responsibilities, plans or head in the sand attitudes that make us put things off. I had my daughters wedding BUT putting off checking potential cancer risks the disease progressing and being much worse in the long run.

    I have had a lucky escape and look forwatd to continuing in good health for many years to come.