Hello!

thank you for responding- we are in the same boat. I am annoyed with myself for not going to GP earlier - I now look at symptoms and so many things should have told me to go to GP and I simply went cause I could not shift a water infection. May I ask what prompted you to go to GP? I had to wait ten days for my scan - but I drove home from that scan and as I walked through front door my GP phoned me to say I was on cancer pathway via NHS - go back on 17th but I cannot fully remember what she told me. I will call tomorrow and see if she will repeat what she told me on Friday.

I am 54 - post menopausal, can remember the GP telling me lining of womb was in excess of 10mm. I did have to call hospital and progress my appt for scan and they had the wrong address for me - apparently hospital has different database to GP!! Letter went to where I lived four years ago! So glad I phoned to find out what was happening. Take care to you too and maybe it’s worth phoning hospital to check your referral is there?

hi laney

Appreciate your reply

I thought my `pains` were part of my ME / CFS, so did not really think they would be anything else, cos got sick of being told ` its the CFS / ME / FM`.  We also had a lot of upset with my dad recently being very ill very quickly and subsequently being diagnosed with leukemia - thankfully all is going well for him at the moment, with monthly check ups etc.  I had pelvic pain, which i put down to pelvic arthritis issues, hip arthirtis etc, but then started with agonising pain in my rectum at the same time as the frontal area.  When pains were bad i had frontal discharge which was pinky, and not pleasant.  I went to GP and had an ultrasound which showed a polylp and thickening of the endometria / womb lining .  Went for hysteroscopy, the polyp was too large to take out in an outpatients setting, so did biopsies.  A week later got a call on a friday aft to see consultant on monday.  Told womb cancer, biopsies `very abnormal` - treatment  needed within a 4 week period.  Went for MRI to see if spread to other pelvic areas , etc, thankfully has not.  Got my pre-op date and pencilled in surgery date - all just one day over the 4 wek period.   Hoping the hysterectomy can be done by key-hole, quicker recovery etc .  Thanks for your response, take care, x

Good morning Kezzer,

I don't know if you did the read more bit as I am afraid I wrote rather a lot!

It was a bit of therapy I think writing it but you will see I am a bit further along than you as I am 3 weeks post op this coming Tuesday.

I think it is quite natural to think you will be one of the lucky ones and not an unrealistic thought. A couple of friends got to the hysteroscopy phase and discovered it was just a polyp which was removed there and then, job done.

When I was in the admission suite there were about 8 or 10 of us and only two of us had endometrial cancer. The rest had had the same initial symptoms which caused their referral but just had polyps or fibroids and they were day cases.

The Specialist. Gynae Cancer Nurse  Told me most of the people who come through the clinic just have fibroids or polyps.

Equally it would be a bit head in the sand to totally discount cancer but you just have to think about this possibility or deal with it as suits your personality. It might be you don't want to think of this possibility until it is confirmed.

I would counsel you not to be frightened or anxious if you do have cancer, just crack on and deal with it as guided by the Consultant. It isn't a death sentence nowadays. The NHSis marvellous and all the staff so kind and helpful. We have a new NHS women and young children unit at our local hospital which is fab.

You will feel rubbish for a couple of weeks afterwards if you have a total hysterectomy but just prepare yourself for being out of action as a way of taking control rather than letting your emotions control you.

I appreciate everyone deals with things according to their nature but personally activity rather than dwelling on it worked for me.

My husband and I did a big clean up, ordered a Tesco on line shop of ready meals( I normally cook from scratch) , cancelled a weekend away and got a refund, reorganised dental appointments and got everything done for my daughters wedding. I made sure my mum and dad's cupboard and freezer were full and bought new stuff for hospital and chose a book to read.

Sort out the fact you won't be driving or doing any demanding physical activity

I am lucky to not have too many responsibilities so was able to do these things.

In conclusion, good luck and hopefully it is just something minor but if not, it isn't the end of the world. Just take as much control as possible to alleviate feelings of stress.

Three weeks on I am fine. I am sitting in the bath with a purple hair colour on and looking forward to a visit from my newly wed daughter who is bringing my naughty lovely 3 year old grandson to stay the night so I can look after him when she is at work tomorrow. 

Purple hair? Well why not.

Susan

Hi Nikki, 

Same here. urgent referral for biopsy, consultant says large uterine tumour may be malignant. Results tomorrow in clinic (they offered phone, but opted for knowing a date and time!) - this week has been horrendous. I'm a freelance writer and getting anything done has been impossible. I'm the most laid back person I know but now so worried I feel sick all the time. But I think it's 100 per cent normal to worry - you'd have to be mad if you didn't. I don't mean to sound pessimistic but I've actually found it comforting to plan practically what I'll do if the result is bad. Who I'll tell, what work arrangements I'll make. It just makes me feel a bit more in control rather than all at sea. Mind you,  I've booked the whole day off work, so good or bad I think I'll be going straight to the pub with my bestie! Hope all goes well with you... X  

Hi Niki, 

i did read your post & your positivity is fab. 

I just wondered how many of the ladies above fared. I think the odds are good for me, as she possibly spotted a polyp. It is the uncertainty tho. 

Best wishes xx

Hi,

I'm a bit confused about who is responding to who in this thread as they don't seem to follow in the right order 

however

good luck to all and if anyone wants to know anything practical about post hysterectpmy from someone who has just been through it ( bowel expert!!!!!)  and I can help please e mail and I will  see if I can answer.

Susan

Hello - I was part of this thread back in April. After a visit to GP I was sent for a scan within a week and before I even arrived home after scan my GP phoned to say I was on cancer pathway and hysteroscopy booked for 7 days time. That procedure was brought forward and I was seen in four days - I convinced myself it was cancer. First hysteroscopy wasn’t successful as tissue from the thickened womb wall wouldn’t come away but they removed a polyp. All the time I was at hospital they kept talking about a mass in my womb. A second hysteroscopy was booked under anaesthetic the following week. The NHS was great but it always felt disorganised. I had to phone and chase things up all the time and letters were sent to my previous address. I had to phone for my results and after ten days they told me to call my GP; when I called my GP she said they hadn’t taken enough tissue but she was reading from my first hysteroscopy. I echo what we all say on here - it’s the waiting that drives you mad. The process lasted 11 weeks from initial GP visit until I got a letter to say biopsy was clear - just have a womb full of polyps and thick lining. I have not forgotten the fear of that time and have changed lots of things in my life since that time - have just come back from a holiday in Vegas! Cannot thank NHS enough for the speed i was treated even if it was a bit disorganised at times. I feel lucky that I was clear and that I’ve had a wake up call that this isn’t a dress rehearsal. My GP has hinted I should consider a hysterectomy in the near future as she feels the womb lining will keep thickening.  So I wish everyone in this thread well  ~ sorry if I sound evangelical but it was a big wake up call for me and my life since April has completely changed.

I’m going to unsubscribe from this forum as it’s for women  who are going through this now. I found the charity The Eve Appeal very informative during my 11 weeks and I would recommend it to anyone going through this process. Any weird changes after the menopause - always check with GP. I openly talk to all my menopause friends about bleeding/spotting now (must drive them up the wall) but women need to be aware of subtle changes and not just think it will go away or is part of menopause.

Hope you all have good news; fast treatment and treat yourselves well during the process.

x

hi niki

just thought id check in to see how youre doing and if youve had your results, i hope youre getting suport from people close to you

i went for my appointment on thursday, turned out that they didnt have the time to do the biopsy and it was just to make sure i was seen within the 2wk pathway, so im booked in for my biopsy on wednesday now, more waiting, then waiting for results, such fun!

trying to keep positive but it is hard and like you im finding myself very tearful over the most ridiculous thing!

hope youre ok

sally xx

Hi Sally

I was thinking about you last week wondering how your hysteroscopy went. I didn't want to keep asking:-).

Oh no!  that's such a dissapointment, after all that waiting they only called you in  for a chat. So are you now booked in for this Wednesday? 

I am still waiting for my biopsy results. The saying goes...... no news is good news !!!! I hope and pray this is the case.

I have booked an appointment to see the GP next week for my bad back so i will ask about the biopsy results.  

My immediate family are aware, however I am not openly talking about the situation, or my emotional state. Like I said, everyone is in their own bubble struggling with their own battles. I have good moments and then there are moments when i start planning for the weeks ahead, only to stop in my tracks, because i dont know what will be happening. Will I need more tests, will I need surgery, chemo,radio everything is uncertain and on hold!!! Then one thought after another takes me on a downward spiral. I can deal with things once i know. I just wish the results could be made available a lot quicker

2 weeks after my hysteroscopy I am ever so slightly spotting. No pain but im sure I do feel the mirena coil or maybe im just imagining it.

Please do let me know how it goes on Wednesday. Wishing everything goes well for you.

All the Best

Nikki

Hi Sally

How are you? Hope your  hysteroscopy experience wasnt too traumatic 

Thinking of you.

Best wishes 

Nikki x

Hi Nikki 

Sorry I meant to post last night but fell asleep! 

It was very painful, took 2 attempts but I'm so pleased I persevered as it turns out it's all perfectly normal the consultant didn't even bother taking a biopsy as she said it was all healthy

She was disgusted in what I'd been told by he gp and is putting in an official complaint about it! She said all I should have been told was it was a possibility but that it needed more investigations. I shouldn't have been told it was and then shown the different treatment plans for the different grades!!

As you can imagine I'm over the moon and have slept soundly for the first time in a few weeks

I will check in to see what your results are and I'm keeping my fingers crossed that it's also good news

Thank you so much for your support on here 

Sally xx

Hi sundial, MY first visit to this site. Had a full hystorectomy  due to cancer found in womb, now all clear,all went really well, and trying to decide about Brachytherapy and the after effects re. Bladder and bowel. How was it for you? 

N.b. Wish all you brave ladies all speed for a successful recovery,big hugs xx 

Hi sundial, MY first visit to this site. Had a full hystorectomy  due to cancer found in womb, now all clear,all went really well, and trying to decide about Brachytherapy and the after effects re. Bladder and bowel. How was it for you? 

N.b. Wish all you brave ladies all speed for a successful recovery,big hugs xx 

Hi there may I ask wht stage urcancer was please ? X

Hi there, hope you are well.  I am new to this site and came across your post and wonder if you can share your experiences of radiotherapy/brachytherapy. I had radical hysterectomy for womb cancer in Jan 2020, one session of chemo and consultant is suggesting 25 radiotherapy and 3 brachytherapy sessions.  The side effects concern me and wonder how you getting on!  Any info / advice would be appreciated.  Thank you so much.

Hi hope your doing ok can i ask what your symtoms were I had a hysteroscopy in Dec 19 due to post menopausal bleed struggled doing the test because of tilted cervix he just said I've seen enough womb is atrophic but dry and cracked due to menopause no biopsie was taken   and a benign polp removed fast track to now and I'm in excruciating pelvic pain radiating down my leg and round lower back I cant even rest my hand over one specific area lower abdomen I have an urgency to wee all the time but no bleeding I've had a repeat transvaginal which as shown endometrial thickening 12.5mm with trace of fluid and a very small 1cm cyst in right ovary I'm petrified and thinking the worse doc wants a repeat hysteroscopy but the pain last time was horrific 

Hi Marth, hope you are ok, its not east waiting for results, but keeping busy does help.  To be honest apart from very severe bleeding and fatigue/breathlessness I had no other symptoms.  I was prescribed iron tablets for anaemia which was why doc said I was tired and breathless.  My bleeding continued for 2-3 years and I was told it was due to perimenopause.  After seeing yet another doctor I had an ultrasound and transvaginal ultrasound. Radiographer said she was referring me fora hysteroscopy as she could see fibroids and polyps in my womb and my womb lining was thickened.  I was on the 2 week pathway but I waited 17 weeks for the hysteroscopy appoibtment then 7 weeks for the biopsy result.  I was called in for my results to be told I had endometrial cancer.  But can I just say that fibroids/polyps/thickening does not necessarily mean cancer.  But even if it does, they will come up with a treatment plan and as long as you take each part step by step, you can do it.  Treatments have come a long way in recent years.  I was diagnosed Dec 2019, had my op endJan 2020 and finished my treatment this week.  I know its difficult but try not to worry.  I am here if you have any more questions or just want to chat. Take care. x

Thankyou for your reply and glad your treatment as gone well for you   I had fibroids last yr but they have gone due to menopause and the polyp was removed off my cervix which was benign it's the pain I'm in everyday for the last 2 week that's worrying me I've always had a dullache almost like a constant urine infection for 4 month  but last week I had the dog leant against my pelvic bone and pelvic area (hes a small jack russell)  and I've been in terrible pain had no bleeding just a very wate like clear discharge  I've been checked for infection etc I'll just have to see what the next plan is just hope i get to see a gynae face   to face but dont hold much hope during covid thankyou so much for replying and wish you well x

Hi Marth, you say your womb is atrophic. Im not a doctor but that in itself can cause urinary problems and if it has been like this for a while that could be causing your symptoms. Put your trust in your doctor and if you need more tests or investigations then there will be a reason.  They are covering all bases.  Here if you need to talk. x

Hysteroscopy results from Dec mentioned atrophic womb and now transvaginal saying 12.5mm thickness are these 2 separate things or as my womb gone from one extreme to the other I'm getting confused with it all and googling all sorts 

Hi Marth, I wish I could help but I'm really not sure but I do know that atrophy of the womb/vagina is common in post menopusal women due to hormone changes and these changes can also affect thickness of womb lining.  Hope you get an appointment soon. x

Thankyou for your help x