Just been diagnosed with breast cancer

I'm 59 years old and was called back after my usual 3 year mammogram, follow up showed small area 11mm stage 2 breast cancer. Had a great consultation was feeling very optimistic,  obviously not what I wanted to hear but caught early. My excision booked for 31 December, in I went spoke to surgeon then anaesthetist, up to have wire inserted to guide the surgeon. All ok so far then they did another mammogram to check wire positioned correctly. Oops the doctor had guided it to an area of concern she saw on the ultrasound and not the area that was previously biopsies and what would have been operated on

Basically then this is 2nd area of concern so operation cancelled, wire removed, another biopsy taken.

I don't think I have ever felt so deflated and sad, I think I was coping really well before but this has knocked me for six. New biopsy results not due till 10th, I'll ask then if this area was one that was missed on original mammogram or the follow up. I really just want the whole thing to be over with, I just don't have the energy to play the blame game unlike my husband lol

  • Hi Anjeda,

    Welcome to the forum, but sorry you had reason to join us!

    It sounds like you coped really well with the initial finding, and one of the things with coping well is that it can hit you that bit harder when you have a good idea in your head of what is going to happen and that then gets thrown off by something new.  Apart from that it is still early days so you will still probably be processing the whole idea of having cancer, which is hard enough without more bad news coming along.

    I won't say too much just now as it's early days for you still, but just know that we are here.  The initial stages, like you are in just now, are among the hardest with lots of waits and then planning.  It seems to take forever as you just want to get on with things, but it will happen soon enough and then everything will speed up.  Once treatment gets underway it can be a bit easier as at least you know the cancer is now being tackled.

    Best wishes,

    LJx

  • Thanks TwinTwo,

    The waiting is definitely the worse part, strangely for a bit of a control freak like myself I completely surrendered to the fact that I had zero control over what would happen after the biopsy results and I was OK with that.  I think I'm now doubting anything I'm being told because of the 2nd area being missed. It's definately a mental stress but I know I'll be fine

  • Oh bless you, I understand....I too am a control freak, it's really difficult to surrender your body and hope the professionals do a good job with it! 

    I am so sorry you have this extra worry and stress, this forum has been a god send to me...the ladies here are lovely.....

    I had a lumpectomy yesterday and now await the results in 2 weeks....yes....the waiting is defo the worse part....good luck with it all and keep us posted xxx

  • Totally understand your concern given that they seemed to have missed something.  Once your new biopsy results are back and you sit down with your oncologist to form a plan you might find that they explain at that point what happened (whether something was missed or whether there is another reason for their findings).  With all the tests and scans we have we get snippets of information but we only tend to get the full picture when seeing our oncologists or breast surgeons, so any information I overhear or am given I tend to treat with a pinch of salt but take a note to ask my oncologist about it when I next see him.  It's important to have faith in the people that are treating you so hopefully they are able to put your mind at rest about their capability and about what they found.

    I'm also a control freak so I get that bit too!  If you know that you're going to be having chemotherapy or radiotherapy then there are some practical things you can start doing now.  Even if you don't yet know about radio/chemotherapy it's simply moisturising twice a day, getting any necessary dental work done ASAP, and drinking lots of water, so you could start it anyway.  I knew I was going to be having chemo (and probably radio) and it just helped me feel a bit more like I was doing something useful to start the moisturising etc.

    Not long now till your results, fingers crossed the new area of concern isn't anything concerning after all!

    LJx

  • hi, I’m 29 and also recently just been diagnosed with stage 2 grade 3 breast cancer, triple negative. It’s a very scary ride to join, I start chemo either this week or next, we can do this! we will beat it and come out the other side better than before. I think what’s really hard is thinking about the what ifs, but I do believe our inner strength will get us through, we are stronger than we realise! sending hugs x

  • Thank you for those kind words. Yes it's definitely a time where you need to be mentally strong. I have amazing friends and family which is a great emotional support as well as fantastic staff at the hospital.

    Sending you positive thoughts as you move through your treatment, let me know how you are doing x

  • Thanks for that advice. Yesterday I had results of 2nd biopsy so it's a very small grade 1 type and on opposite side of the nipple to my grade 2 mass also small. On the plus side they are both towards the front of my breast and not near the chest wall. I was given the option of therapeutic mammaplasty or the more extreme mastectomy. The mammoplasty will remove both areas obviously with a wider clean area around them thus leaving a gap in the breast. The surgeon brings this together and reshapes and lifts the breast. I did comment that the last time my breast would have been that perky was circa 1976. Was offered the chance to have other breast done to match either at the same time or later down the line.

    I felt the complete removal of the breast at this time was maybe too much, obviously in the future if cancer reappears in the same breast then that would be my option then. I probably won't go for the other breast being reduced either but good to know it's an option later on. Also the surgeon said that's the advantage of having a larger cup size as mammoplasty wouldn't be an option in my case if I was say an A cup.

    Because they missed the second site he wants to reassure me that they've got it 100% right this time so are giving me another mammogram and ultrasound on Monday then I'll have the operation in the next 10 days or so.

    I am very satisfied with this outcome and at last it seems that my husband has lost most of his fears.

    Thanks again for your advice and best of luck with your journey x

  • Thanks Marlyn I saw the surgeon yesterday and am having a therapeutic mammaplasty, basically a breast reduction with the area excised and breast lifted. Perky breast yay me Also offered other breast to be reduced at same time but they can do it later if I change my mind so I'm just going with what's necessary.

    The staff at my Breast Care Unit at the Hospital could not be nicer, i feel really supported and have the loveliest surgeon.

    Best of luck waiting for your outcome, keep us posted x

  • Hey ellie1989, 

    Hope u don't mind me popping by.. I noticed ur comment, I've been diagnosed with grade 3 triple negative breast cancer as well, I'm in the early stages of getting ready for treatment, I'm having a mental insertion Tom and then lymph nodes taken out next Wed..

    Was just messaging as wanted to send u a virtual big hug and to see how u r getting on xxx

     

  • Hello TwinTwo

    I hope you don't mind me jumping in to this thread. 

    I am awaiting Ocotype results to see if I need chemo ( i am 6 weeks post LWE) and was curious re your advise re dental work. prior to chemo.  Are you able to say a bit more about this as i put off having dental work just prior to my surgery which  I need to pick it up with again, any info would be appreciated

     

    many thanks

    kxx