Stage 2 breast cancer and 2 lymph nodes.

Hi everyone 

I'm after any help and information you can give. After being told I had microcalcifications on my mammogram, I have been told today that I have stage 2 grade 3 breast cancer. I am in total shock. It seems like ages until I get seen again too. I need to have a ct scan and a bone scan and I'm terrified that it has spread. I also had a biopsy of the skin on my breast as it is red from what I thought was an infection. I'm so scared. Please help.

Xxx

  • Hi LunaMuna,

    Please have some virtual, sherpa-blanket-cosy hugs from me then, with a big mug of hot cocoa too :)

    I know sometimes it's hard to take comfort from cold, hard numbers, but the survival rates for stage 2 really are exceptionally high.  Obviously you still have treatment to get through though.

    Still, I've just noticed that you are my age (I was diagnosed early summer) and I have to say that youthfulness is definitely a help in terms of tolerating the treatment.  It can still be tough at times but the fact that your skin is still quite young etc. means the treatment is less likely to have a negative effect on it.  That goes for other body parts too.  My mum went through the same chemo as me 8 years ago (she was early 60s) and it definitely took more of a toll on her body.  I don't think chemo has had any long-term effects on my body, well if it has I haven't noticed them.  Also, the treatment plan really does look like it goes on for a long time when it's presented to you, but it's ridiculous how fast it goes.  I was only diagnosed early summer and here I am feeling well, enjoying the run-up to Christmas and with a funky cropped hairdo (it's come back so quickly it needs neatened up for Christmas :D ).

    I don't know if you're the kind of person who would be helped by starting to do practical things that will help you long term?  If you are then there are a couple of things you could start doing immediately.  One is moisturising morning and night, particularly taking care of your hands and feet.  Drinking lots of water.  Starting to look after your dental hygiene even more than usual and, if you need any dental work then getting it done asap.  You skin and gums are the main way for bacteria and infection to get into your system which is obviously a risk if you are to be on chemotherapy, so the more preventative action you can take now the better.  And sometimes it does help to feel like you're taking control over at least some part of the situation, no matter how small it may seem.

    I can't see any way that you'll be starting treatment before Christmas.  So, much as you're still suffering from the shock of diagnosis, you can enjoy all the Christmas food etc. as normal, and you might as well make the most of it.  I promise once treatment starts the time will fly by, this part that you're in just now really is the slowest, most dragged-out part but it's best that they do take the time and get the best treatment plan in place for you.

    We all know what you are going through, if we can help at all just shout!

    LJxx

  • Hi LJ

    Thank you for all your great advice. Its fab to hear that you are feeling well now. Have you finished your treatment?

    I've been told chemo first, that's all I know. I'm so scared that my lymph nodes haven't done enough and that cancer has spread everywhere. 

    My youngest, who is 4, has been a rock. Even though all he knows is that mummy has a sore boob, he's been looking after me and calls himself mummy's teddy. I've got to fight this for my children but it seems so scary and daunting right now.

    I can't keep it out of my head that it's spread and I won't be able to beat this and its destroying me. 

    Thank you for the hugs, it really does feel better to hear positive stories like yours. 

    Xxx

  • I totally understand all your emotions (we all do) before Monday (when I was diagnosed) I felt pretty normal.....whatever normal is.....but since Monday I can feel every pain ache tingle you name it I can feel it! I am telling myself it has spread....then I have to pull myself together.....I won't know for sure until after surgery.....just be assured we all " know" also what I keep thinking of is my dear mum who had a radical mastectomy followed by alsorts of treatment....her cancer was very advanced..they had to take out most of her lymph nodes and part of her chest wall....she survived cancer......sadly we lost her 5 years ago...but the cancer didn't get..... xxxxxxx

  • Hi Maryln

    So sorry to hear about your mum, she sounds like a very brave lady. 

    I'm totally with you about the aches and pains, I feel like I've aged 50 years since my diagnosis on Monday.

    Do you have plans for Christmas? I'm trying to be brave especially for my 4 year old who is a Christmas monster at the moment!

    I see you have dogs on your picture, hope they are looking after you. My dog, who is a lurcher x border terrier won't leave me alone!

    Positive thoughts xxxxx

  • She was a very strong woman my mum....all " stuff and nonsense " if you know what I mean.....

    we are having a very quiet crimbo but I am determined to enjoy it, you sound like you will have your hands full! I think it will help you enormously....

    we only have the black and white one now, we lost diva a few months back. Rubi is my little nurse and seems to know something is up.

    onwards and upwards my friend....we can do this! Xxxx

  • Hi maryln

    Dogs are great, so intuitive. My dog fell in love with me the day I rescued him and has been my solid, constant companion ever since. 

    We too are having a quiet one, just for the kids really. Trying to be brave..... 

    Lots of hugs

    Xxxxx

  • I am holding your hand, I know you can't feel it but it's there.......xxxxxx

  • Hi LunaMuna,

    Not finished treatment yet.  I've still got radiotherapy to go early next year and 10 years of Tamoxifen as well as some prophylactic surgery (my cancer is genetic).  There is a chance I'll have more chemo too although I've turned down an experimental chemo for the moment as it would delay starting Tamoxifen (but not necessarily work either), so oncologist and I agreed starting Tamoxifen was the more pressing matter.

    My cancer was caught at stage 3 and that has turned out to be too late in my case, although it isn't too late in everyone's case.  8 of my 10 axillary lymph nodes were cancerous (now removed) and the chemo wasn't very effective for me (same type worked wonders for my mum) so we have reasonable certainty that I have cancer cells roaming around looking to set up a new home.  Still, I currently have no tumours and the Tamoxifen works to stop tumours forming so I will be around for a good while yet, and depending where a secondary forms it could be treatable/operable, so I could be around for a very long while yet :)  Since, like anyone else, I could die tomorrow in an accident I can't see any point in me worrying about when another tumour is going to form and whether that will be the one to get me.

    Sorry if that isn't as positive and upbeat, I am genuinely positive and upbeat about the whole thing just stating the facts in my case.  None of my situation changes the fact that at stage 2 your chances are exceptionally good.  Also, my mum has now beaten breast cancer twice and in both cases it was very aggressive and I grew up with so many friends of the family beating breast cancer that is actually the 'norm' for me.  I was just unfortunate in that I've been pushing to start early screening for 5 years and been refused.  My gut told me my mum's cancer was genetic and that I would get it young too (they always refused to test my mum for mutated genes).  Surprise, surprise on diagnosis I pushed to be genetically tested and it is genetic so my only real upset is the impact of that on my identical twin, and that my older sister has now been tested too and has the mutated gene.  Anyway, when found a teeny weeny lump in March (which disappeared a week later) I went to the GP and said I wasn't leaving without a referral for early screening, two weeks later diagnosed with stage 3.

    Still, I am well, I feel the best I've felt in a long time, I've had a wonderful year and am looking forward to many more wonderful years.

    You've got this, you really do.  It's hard to not worry but it will become easier once treatment starts.

    LJx

  • Thanks maryln, i'm holding yours right back xxxxx

  • Hi LJ

    Gosh, that must be so hard. But I really admire your positivity. In sure mine will come with time... 

    My GP was rubbish, she told me to cancel my first appt at breast clinic as I was 'getting better'.

    Im sorry to hear that it is something that has affected you and your family for so long. What a diabolical disease this is. There really does need to be a massive shake up in the NHS, I really felt my gp knew nothing. 

    Kind thoughts being sent to you and your family

    Xxxxx