Not coping with stoma bag

I’m 39 years old and on 20th Aug I was told I had bowel cancer. I’ve just returned home from hospital after lower anterior operation and have a bag, which I pray can be reserved In a year.  I’m really struggling with my stoma, even looking at it makes me feel ill. I’m wondering how I’m ever going to cope.  I absolutely despise it all and changing my bag is just horrifying. My husband has had to change it for me since we’ve got home and I just feel humiliated by the whole thing.  Will it ever get easier? Will I be able to cope on my own and accept it? Just wondering if anyone else felt like this! 

Parents
  • I am sorry you feel this way. After a stick test 5 years ago for bleeding, I was fast-tracked to a London Hospital. Following a colonoscopy I was instantly told I had a rectal tumour and there was only one operation and it would be to remove the anus, this would mean my anus/rectum being removed and stitched up without the chance of a reversal and I would have a stoma for life. Of course I was very upset and after many trials and tribulations I have had to come to terms with my stoma, my choice was taken away from me. The bowel does settle down and you do become adjusted to it, there could be a lot worse things you could have. I admire young girls who have shown their stomas off to the public.

    You maybe one of the people who can have a reversal, but there are many many people who cannot, like me, but that doesn’t mean we don’t lead normal lives. People are really shocked when I tell them I have a stoma, as they have never noticed it, I wear dresses, trousers, leggings, swimsuits and it really isn’t much of an issue.

    i hope you can face up to the reality that it could be a lot worse.

Reply
  • I am sorry you feel this way. After a stick test 5 years ago for bleeding, I was fast-tracked to a London Hospital. Following a colonoscopy I was instantly told I had a rectal tumour and there was only one operation and it would be to remove the anus, this would mean my anus/rectum being removed and stitched up without the chance of a reversal and I would have a stoma for life. Of course I was very upset and after many trials and tribulations I have had to come to terms with my stoma, my choice was taken away from me. The bowel does settle down and you do become adjusted to it, there could be a lot worse things you could have. I admire young girls who have shown their stomas off to the public.

    You maybe one of the people who can have a reversal, but there are many many people who cannot, like me, but that doesn’t mean we don’t lead normal lives. People are really shocked when I tell them I have a stoma, as they have never noticed it, I wear dresses, trousers, leggings, swimsuits and it really isn’t much of an issue.

    i hope you can face up to the reality that it could be a lot worse.

Children
  • I had same operation has you had anus rectum removed, it is 8 weeks since i had stoma bag fitted. my problem is i seem to pass my poo on a night nothing through the day , also it is like a paste which sticks at the top of the bag , ive tried putting baby oil round inside of the bag but still the same , im using more bags and my skin round stoma very sore , just wondering if you have had any problems like this thanks