Results delayed

Hi all.

Me again. I posted the other day introducing myself an explained my story. Very brief summary Im Sam, 38, had trouble eating to the point I had to put myself on a liquid diet and as a result of a gastroscopy on 17th March I was diagnosed with suspected esophageal cancer subject to biopsy results and results of a ct chest, abdomen and pelvis.

My specialist nurse was supposed to be calling me today to give me the results, tell me what stage im at and what the treatment plan will be. No phone call by 430 so I called and left a message. Ive been dreading today but also looking forward to finding out wtf is going on and what treatment I will need. They will probably phone me tomorrow. But the extra day of stress and worry is proving difficult!

  • We're totally disgusted with the amount of time wasted!! They talk about aggressive cancers yet dont seem to act very fast 

     

    shocking and embarrassing to say I'm a nurse in the NHS 

  • We're in the same boat. My dad was diagnosed with oesophageal cancer two weeks ago and we've been waiting for 4 days to find out about a scan date, and a plan of action in terms of treatment/surgery etc. I know they're trying their best and there's more than him on their case load, but waiting is the hardest part. Stay strong x 

  • Hi Sam

    sorry to hear you are still waiting for your results as I know its a difficult and stressful time. Just to say that the waiting time is the worst time but the decision re treatment plan can only be made by a team - the oncologist, ENT surgeon, speciaist radiologist etc at what they call an MDT medti g so that may be the reason for the delay. My husband got his initial diagnosis of squamous cell ca in his lymph nodes in his neck ? Where the primary was on the 8th Dec 2015 and we didnt get his treatment plan until Jan 4th and he didnt start treatment until Feb 8th as there is alot of preperation prior to go through prior to this.

    Good luck and hope you get some answers soon . Feel free to ask us any questions re treatment you might have.

    best wishes

    emma