Lung cancer confirmed - adenocarcenoma

 

This afternoon after 5 weeks of tests and scans my husbands doctor confirmed that he has inoperable lung cancer which has spread to his lymph nodes and right adrenal gland.

Gutted beyond words.

Within 90 minutes we were attending an appointment in oncology to discuss radiotherapy and chemotherapy to try to buy him some time. He is being offered pemetrexed and cisplatin in conjunction with radiotherapy. The oncologist also told us that government  funding for this chemo is being withdrawn on 11th July so even if he tolerates it well and gets good results he wont get further treatments unless we can self fund or have medical insurance which we cant and don't. For a few scary moments I thought husband was going to refuse treatment (he told me later he was trying to decide if it was fair on me to have to care for him for longer...) Im so relieved he decided to take the treatment but I have said that if the regime  is too much for him and he decides on quality not quantity then so be it. I will support him in that descision.  

I seem to have done nothing but cry for the last 11 hours. He has cried a little but mostly seems stunned.

How can this be fair? We were supposed to get old and grey together

Inula 

 

 

 

 

  • Hi Netty, so sorry to hear of hubby's admission yesterday (I hope both he, and you, managed some sleep overnight?). Fingers crossed the antibiotics do the trick and that the CT scan goes well this morning. Will be thinking of you both. Sue xx

  • Hi Netty

    Just popped on here to say will be thinking of you both and hope that you managed a little sleep.  Sounds like his medical team are keeping a good eye on him (of course, he will wish he was at home or enjoying that drink with his mate) and like Sue has said hope the CT scan gives best possible outcome this morning and that the IV antibiotics will make him more comfortable (bet he is saying he's fine). Hugs. Jules xx

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    Hi Netty - I was so sorry to read your post this morning and know how worrying these 'blips' are just when you think everything is going smoothly and treatment is imminent.  I hope the CT scan results are encouraging and that it is just an infection which can be dealt with swiftly.  Thinking of you both today and have everything crossed for good news.  Speak soon xx

  • Hi Netty,

    I am new to this site, but I have been reading your posts about your husband. I just wanted to say that I have been thinking of you both and hope that you receive some good news today. Don't forget to take care of yourself and get some rest, though I know that is not easy to do during times like these. Sending you all the virtual hugs in the world. 

    Take care,

    Liz

     

  • Oh Netty,
    So sorry to read your update.  Looks like the medical team are looking after hubby well which is reassuring.  Hope you can get some kip, and he will be back home soon.
    Sending you my love
    Kathy xx
     

  • Thank you all for your kind replies. I think I had about 3 hours sleep last night. It wasn't as bad as I expected  being on our bed alone - It took me back many years to when husband was in the forces and often spent months on unaccompanied tours. And of course I wasn't truly alone because I have my 2 dogs. 

    Hopefully I will fare better tonight and with luck I will find time to email my good friends who offer me so much support :)

    Still waiting for CT scan. It was booked for 11.30 so they are 20 mins  late already! The IV antibiotics started this morning. Very worried that this setback will impact on his planned chemo/RT which has already been cancelled this Monday. 

    Watch this space as they say!

    Hugs to you all, 

    Netty