Dear Inula, I cannot begin to imagine how devastating this news is for you and I would like to add my name to what will I am sure be a long list of people here who will be thinking of you both and sending lots of hugs . Sue xx 

Hi Inula,
How sorry I am to read your post.  Have been in your position so fully understand what you are going through.
It isn't fair how our future plans get tossed to the wind but it's out of our control unfortunately.
When does hubbys treatment start?
I wish I could give you a big hug.
Kathy xx
 

Dear inula ,

I understand completely I've just finished the exact same chemo as your husband .....it will help him , well I can't say for sure but its help me .

My tumour was 5/cm and now shrunk to just over 1cm .

The treatment is tough but worth it ....I'm determined to fight as I'm only 51 and I have a lot on my bucket list !!

Mine is stage 4 so no operation for me either , but I should go on a trail at addenbrooks soon ....always hope .

I've had to stay strong for my family and my gut determination will see me here for some considerable time !! 

Stay strong and shout if you need too 

Best wishes Christelle xx

Dear Inula ,

Your e mail will be removed I'm sure ! 

In brief the chemo is tough , I guess it affects us all in different ways .

My main problems were with sickness and tiredness ,its a long 8_9 hours of being hooked up due to the amount iof fluid your hubby will need to have .

Recovery for me was approx a week to 10 days , tell him just to go with how ever he feels and rest as much as possible . he'll come out the other side slowly !! I guess I learnt to gage my body and how it felt after the first treatment .

​tell him to stay positive as the new trials are really encouraging , I'm due to see my consultant tomorrow to see if I've been accepted at addenbrooks ...fingers cro 

​ssed 

​best wishes Christelle x

Hi Inula,
Unfortunately I was too slow and I think your email address has been removed.  Never fear we will work on that one.
You will find the strength required as needed honey, in the meantime fight on.  I am a real shortass 4 foot 11 and hubby was 6 foot 3, just the right height for him to rest his pint glass on, we used to joke off 30 years ago.
 We continually hear of success stories so remaining positive is a real plus.
Kathy xx
 

Hi Kathy

Email address was removed along with the whole of my profile (accidentally  & mod did say sorry but still feels like a bit of a kick in the teeth)
Just right now I dont have the mental energy to rewrite the whole lot again but hey ho you break the rules you pay the consequences! ;)

Inula

Hi Christelle

yup you were right... email was removed along with all else in my profile :(  Lets hope they get pm up and running again soon. But I digress...
8-9 hours is a long long time. I didnt realise. We were given some treatment details but I only remember seeing that 1 drug took 15 mins to administer and the other took 2 hours. Im about to re-read all the paperwork as I read it when I was in a very bad mental place. Not that Im in a much better place now but Im a little more clear headed. I presume you were given anti sickness drugs so its worrying that you report sickness as being a problem.

We are already adapting our daytime habits to suit our new reality. Napping whenever because we arent sleeping at night and eating whatever and whenever.

Good luck with your appointment with your consultant. Addenbrooks eh? Is that for trials? Fingers crossed for you
Warm wishes

Inula

Hi Inula,
Positives , you have an action plan in place.  Christelle is and can help with knowledge of treatment.  Other forum members will communicate showing their support.
You are doing the correct thing, snoozing and eating as you can.  This forum is truly great for support.  There is usually someone on line willing to listen.  You and hubby are not alone.  You are with virtual friends.
Kathy x
 

Dear Inula

Like Kathy (and so many others) I too have been where you are now.  My heart goes out to you both. My hubby had a couple of sessions of chemo  which he agreed to in the hope that it would give him longer with a good quality of life.  Though he did not finish the course because his body reacted  badly it did hold back the cancer and gave us nearly three years together to make more valuable memories.  I hope that once your husband has a chance to  begin treatment he will feel able to do what he enjoys whilst he is able to do so and hang on to the fact that  new treatments are often in the pipeline. Radiotherapy was not an option for my hubby so hope this is an added help in prolonging the quality of your time together.

My husband and I cried together initially and a few times along the way but am sure we both did so alone too (well I know I did).  This forum's support during that time was amazing (still is) and come and chat anytime you need to offload. Its hard and so unfair and I send you a big virtual hug. Jules x