Your cancer sounds so much like mine. Started left breast, lymph, left scapula, left femur head, ribs and T6 vertebra. I am on Denosumab. No talk of operation for me yet. Last CA15-3 marker test showed marker up and recordable hormone levels, I am on Zoladex to stop ovaries as my cancer is ER and PR positive and HER2 negative.

Hi. I'm still figuring out how to work this chat sight so not sure how to get replies back etc. but I think monkey at is replying to me. I'm Triple Negative BC so my cancer is not hormone fed so they haven't got anything they can give me. Taking Capecitabine now along with Denosamab, I have ct scan tomorrow very concerned as bloods showing liver under some stress and C 153 on 90.

niki

Hi again Niki

Like you I’m TNBC.  My CA15-3 results were the opposite to yours in the summer (around 19 & 20).  By August I was seeing physical signs of cancer activity with the secondaries in my neck bubbling up again, despite the low CA 15-3 results.  However, it was the scan in September that finally convinced the hospital that something was happening.  Of course that meant more chemo - paclitaxel.  So what I would say is that the cancer markers might well be a reliable indicator for you, giving you an early heads up.  I hope your CT scan is ok but you'll need to be ready for a less than clean sheet.  There are quite a few different chemo treatments they can try so I’m sure they will have something to offer if it is necessary.  Please do post again to let us know, on this thread is fine.  Gill

Hi Monkeycat  There are quite a few similarities with my cancer though you have the option of hormone related drugs.  As I mention to Nikip above, the cancer markers are not particularly reliable in my case.  Glad that the cancer didn't get too far into your bones, from my reading about denosumab that should prevent further weakness once you have been on it for more than 3 months.  Anyway you've truly achieved survivor status at 5+ years! By the way I have something else in common as professionally I was in audit. :)

I am very confused with this site I thought I was replying to Boat Girl. To try and make things easier my name is Andrea ( monkey cat). I wanted to say good luck with your scan today. Every scan I have ages me 10 years with the worry. Praying for the best possible results for you.

Monkeycat, I'm replying to you.  You can reply to any poster in a thread by pressing the reply button below their post.  It will then show the date and time...in response to (chatname).  So this post will show I'm replying to you. Niki will be able to see that you wanted to pass on your good wishes regarding her scan although you replied to me last time.  I hope this helps you with the forum - keep posting!

Gill

Hi Gill...my names Sinead only new to this chat but trying to get the hang of it..your cancer sounds same as my mums.she is 55 had breast cancer 17 years ago&got breast removed,4 years ago it returned secondary into her bones!it has went from her back,ribs,shoulder&hips.however there weakness in her right foot they debated operating on it as bone was wearing away but would be too much on her as her legs are getting worse but it may be wear&tear with her but she getting full bone scan head to toe to see whats going on in legs.at her last onc aptment they have said something now in her bowels which she has to get investigated.cant believe how many people on this have same type as mums.always here to chat.thanks.Sinead x

Hi Sinead, you are right, there are a surprising number who end up with secondary cancer in the bone. I'm glad they have organised a full bone scan for your mum, then they will be able to see how far the cancer lesions have penetrated. If they haven't got too far in then drugs like denosumab are very advanced and might well be all that is required. I hope everything turns out alright for your mum. I find I manage ok with the bone mets if I do weight-bearing exercise each day and also I try to avoid getting too tired. Gill 

Hi.

Not sure if you are still reading these posts but my father has been diagnosed with Bone Metastases (primary in the lung) with no obvious symptoms until lower back pain and shortness of breath.

Best wishes to you,

Rob.