Urethral Neuroendocrine Cancer

My Wife has recently been diagnosed with Urethral Neuroendocrine Cancer It was discussed a couple of years ago in hospital and she was told that it was a Caruncle and to leave it be. Anyhow, 2 years down the line someone higher up the food chain suggested removal with a biopsy where the biopsy suggested Neuroendocrine Cancer. I'm having a problem finding any literature due to the rarity of the cancer. Has anyone come across this type before?

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  • Welcome to Cancer Chat SteveeandLes, although I'm sorry for the reason you're joining us.

    You can find out more about neuroendocrine cancer on our website but if you or your wife have any further questions about your her diagnosis you can give our cancer nurses a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very well informed, and with their knowledge and insight they will do all they can to give you the information you seek and make you aware of any further literature that can be found about this type of cancer that you may like to read up on.

    Some members within our community have also been diagnosed with neuroendocrine cancer, so you're not alone SteveeandLess, and hopefully a few of them will stop by when they can to offer their support and advice.

    I hope this helps, and that you won't have to wait too long to find out what happens next.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Since posting this it has been something of a rollercoaster ride. All of the scans proved to be clear so we breathed a sigh of relief. She was discharged from the local hospital into the care of a specialist hospital. A week or so after that she received a call saying that they didn't think the initial lump was cut away cleanly enough so she underwent surgery at that hospital to increase the safety margin and was told that she would receive the results in around 3 weeks. 3 weeks is up and she had a call today saying that it will be another 2 weeks before she gets an update.

  • Hello Steveeandles

    I'm sorry to hear that, despite initially being told scans were all clear, your wife then had to undergo further surgery at the recommendation of the specialists. I can understand that this must be a worrying and frustrating time while you're both still waiting to hear the results of that surgery. 

    Hopefully, when she next hears from the team, they will be able to give you both some good news and reassurance about her health. If it would help to talk things through with our nurses at any point, you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Do keep in touch and let us know how things go. We're here for you both. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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  • Hello Steveeandles

    I'm sorry to hear that, despite initially being told scans were all clear, your wife then had to undergo further surgery at the recommendation of the specialists. I can understand that this must be a worrying and frustrating time while you're both still waiting to hear the results of that surgery. 

    Hopefully, when she next hears from the team, they will be able to give you both some good news and reassurance about her health. If it would help to talk things through with our nurses at any point, you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Do keep in touch and let us know how things go. We're here for you both. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

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