Urethral Neuroendocrine Cancer

My Wife has recently been diagnosed with Urethral Neuroendocrine Cancer It was discussed a couple of years ago in hospital and she was told that it was a Caruncle and to leave it be. Anyhow, 2 years down the line someone higher up the food chain suggested removal with a biopsy where the biopsy suggested Neuroendocrine Cancer. I'm having a problem finding any literature due to the rarity of the cancer. Has anyone come across this type before?