Liver cancer diagnosis today - how do I prepare for my appointment next week?

Ive just been told the 10cm lesion on my liver is cancer. In shock. No symptoms at all. Got an appointment at the hospital on Tuesday. Any help/advice would be very much appreciated.  

  • Hello GSS,

    having read your previous posts l think the lesion on your Liver has spread from your bowel rather than Liver cancer. l had similar 12 years ago, again with no symptoms.

    You need to ascertain its position, is it operable and will surgery be an option

    l had 60% of my liver excised, within a year you would never know, the remaining healthy tissue will grow/expand to compensate for the loss.

    l hope the news is better than you currently fear and that Tuesday will answer all those terrible doubts that currently trouble you,

    David

  • Hi David thanks for your reply.  I have had colonoscopy which is clear and shows no sign of cancer. I had chest ct scan Thursday to see if the cancer has spread from this area. I really dont hold out any hope as the tumour is so large. My daughter and grandson are coming over on prearranged visit from Australia next month and I am in bits.

  • Hello GSS,

    thank you for explaining more fully, l can now appreciate your understandable distress.Given the circumstances my best advice would if possible go accompanied because l am in little doubt that a lot of what is said will pass over your head, equally a lot of what should have been asked will be left unsaid.

    If it is possible to record the conversation, this might be a good idea, providing your consultant agree's,failing that writing down bullet pointsalong the way may help in recalling what is said in hindsight.

    l hope your consultation goes better on tuesday than you currently expect, and there is some light penetrating through your darkness of gloom,

    David

  • Thanks

    My husband will be with me. 

  • Find out about clinical trisks and options for treatment. You can do this. Make a list of questions to ask on Tuesday at the appointment in question. Good luck. Discuss surgeries and healthy life styles. 

  • The good news is that you've been diagnosed before you have symptoms so it will be treatable. Had liver cancer discovered by accident in a CT for kidney stones and surgery was all I needed and it kept it away for nearly 4 years.  it has recurred but is kept in check with immunotherapy.  you will still worry but there are many worse outcomes.  Please let us know when you are in a better place  it will be soon  John  

  • Thank you for your kind words- much appreciated.  

  • These are not kind words as you face difficult times and your family should not make it harder - so tell them so.  when i was first diagnosed i fell apart and a stonemason who was fixing my dad's memorial plaque responded when i explained my problem.  he had incurable neck cancer but a brave surgeon had fixed him  if you listen to radio 4 thank you saturday morning live you will hear my story 

  • Not sure i understand your comments about not kind words from liverme or about my family. They are not making it harder - the cancer diagnosis is.