Hi anyone here with stage 4 grade 4 aggressive endometrial cancer? Hopefully starting chemo and immunotherapy next week. Feeling very low and anxious as have been told this is terminal. I am 61 and not ready to die.
Hi anyone here with stage 4 grade 4 aggressive endometrial cancer? Hopefully starting chemo and immunotherapy next week. Feeling very low and anxious as have been told this is terminal. I am 61 and not ready to die.
Hi Rosiecat. I am sorry to hear about your diagnosis. I don't have the same cancer as you but I do have stage 4 secondary breast cancer with mets in all of my bones including pelvis, spine , ribs and skull. When I went to see the oncologist he asked me what I understood about my cancer. I said I know it is terminal and he said it is not terminal. It is not curable but it is treatable. I was 47 first time I had cancer at 47 and then was diagnosed last year with secondary cancer at 59. So many people are living with cancer these days and with all the new drugs, medication and trials coming out, there is a lot of hope for us. It is frightening in the beginning but it does get easier. There is a forum on Macmillan for womb cancer and there are ladies on there with endometrial cancer which might be helpful for you. Good luck with your treatment next week. Sending you hugs.
Lee x
Many thanks Lee this feels overwhelming at the moment do you have hospice or ongoing cancer care support in the community my GP has told me there is nothing available except elderly dementia care
Hi Rosiecat, I am currently doing a zoom course with Penny Brohn who are a cancer charity. They do lots of courses regarding cancer. I also phoned Macmillan and they organized some counselling for me which helped. Maggies centres also are a great help and if you have one near you, you can just walk in to see what they offer otherwise also online. My GP has also referred me to the local hospice but I haven't heard anything from them yet. I am lucky that I really like and trust my oncologist and can discuss anything with him. You are still in very early stage of diagnosis and it is a lot to deal with in the beginning. Once treatment starts next week, you sort of get into a rhythm and routine and it does get easier Your GP doesn't sound very supportive, there is help and support out there.
Lee x
I will try the zoom option thank you fir suggesting. We don't have a Maggies centre nearby. Thank you for your encouragement. Chemo and immunotherapy next week I am very grateful for your reply gwenx
I will try the zoom option thank you fir suggesting. We don't have a Maggies centre nearby. Thank you for your encouragement. Chemo and immunotherapy next week I am very grateful for your reply gwenx