Newly diagnosed stage 1 womb cancer

Hi All

I am recently diagnosed with stage 1 womb cancer at 57.

A hysteroscopy biospsy identified this and I also have a lesion on my ovary that needs a urgent MRI

Since then, a week and a half ago I have heard nothing, I have no idea how long an urgent MRI takes or when treatment will start (I am told I will likley need a hysterectomy)

Any guidance appreciated , still feeling very confused and no idea what happens next, I am based in Yorkshire.

Parents
  • I have just today been diagnosed with endometrial cancer after hysteroscopy on 29 August.  I have an appintment to discuss tomorrow and MRI was requested also for tomorrow.  No idea of staging yet, until after scan.  MDT discussing my case for staging this coming Friday.  I am 66.  I am worried as will likely need hysterectomy and other treatments.  I am sure you will hear soon.  Best wishes

Reply
  • I have just today been diagnosed with endometrial cancer after hysteroscopy on 29 August.  I have an appintment to discuss tomorrow and MRI was requested also for tomorrow.  No idea of staging yet, until after scan.  MDT discussing my case for staging this coming Friday.  I am 66.  I am worried as will likely need hysterectomy and other treatments.  I am sure you will hear soon.  Best wishes

Children
  • I was diagnosed yesterday after a positive hysteroscopy and removal of polyps. I am 56 and very worried. Waiting for MRI appt. It’s so hard.

  • It is very hard and a burden to bear whilst waiting.  I had my MRI and CT scan and thankfully it is very early stage 1a.  I am meeting my consultant who will carry out a robotic laparoscopic hysterectomy in the coming weeks.  The high-grade serous carcinoma is thankfully contained within the womb eith no spread.  I am so grateful and relieved.  Not looking forward to surgery, but trust I am in good hands.  I wish the wait will soon be over and you too get some relief with the best outcome.  Best wishes

  • Got the results of my MRI - I am also in the scenario that’s it’s contained as far as they know. I am also booked in for a robotic laparoscopy hysterectomy and ovary removal. Best Wishes to you too

  • I have surgery planned for 2 October.  Will be glad when this is over and hopefully no sign of spread or need for post op treatment 

  • Yes hopefully no spread outside and we can all get back to our daily routines, good luck

  • How are you feeling now that you are post op?  Are you having to have anti-coag injections?  I do, and full of abdominal bruises, which is where I am injecting.  I hope to get the histology results sooner rather than later and hope that I have the all-clear, and for you too.  Health-wise I feel fine, though still a little tender after the op and getting out walking every day. How about you?

  • Yes I have 28 days of the jabs - I’ve had them before after a big spell in hospital so I knew they would sting and bruise! Not sure how I’ll have space for 28.

    i feel a bit rough if I’m honest - I’m very bruised below one of the entry points. I also think my skin may not be tolerating the ‘glue’ as it’s very red.

    I had some odd blood results so have had extra tests back at the hospital but all OK now. I do feel like a beached whale trying to get out of bed! It’s a week for me post op and we went for a reasonable walk yesterday.

    1. Sorry you are feeling rough with odd blood results.  I am in a fairly good recovery phase really atm just 10 days post op.  I have been sleeping in my spare room as didn't want to get knocked by hubby.  This has helped when I was awake during the night.  I am getting up OK now and wounds healing.  Walking for around 3,000 or so steps daily.  I have a hospital telephone review today.  My bloated stomach has reduced and dont have much gas now, which was painful initially.  We will get there.  Its still very early days.  I am going shopping later to look at more proteins for my diet.  I have to reduce carbs due to diabetes 2 but good job I like veggies.  Hubby will be doing any lifting though.  Have a good day.