Pembrolizumab

Does anyone have any experience of Pembrolizumab immunotherapy treatment? I’ve been told my cancer has gone but because there was 20% Clear cells in the tumour I meet the criteria for treatment but there haven’t been any studies on the type of tumour I’ve had, I’m an anomaly apparently, are the side effects as scary as they seem? If I didn’t have the 20% I wouldn’t have been offered any preventative treatment just monitor over the next few years.

So confused, the doctor said there’s no right or wrong answer & to just toss a coin to decide if I want to go ahead.

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  • Hi Lynnie

    There are lots of people on this forum who have related their experience of Pembro, mostly good things. A forum search should bring them up.

    This medicine can be life changing for the better, do not worry about the long list of side effects, you most likely will get very few.

    I am on a similar immunotherapy drug Cemiplimab, I get fatigue which I can manage with resting once or twice during the day and early to bed 10pm, and an itchy rash, which is managed well with creams and lotions. The upside is after just 4 months multiple 5mm tumors are now just pinhead size or vanished altogether. I feel better knowing the cancer is being beaten back and I'm making the most of life, having just had a holiday between treatments and off for a long awaited visit to see my family.

    Id say to you give it a try. You can always discontinue it or even have a short break if you do not tolerate it well. You team will monitor you closely with regular blood tests and scans when required. You will be given a direct 24 hour contact number should you have any concerns. Obviously it is your choice but with cancer always take the belt and braces approach to minimise any recurrence.

    Ed

  • Hi Ed,  I was just wondering what creams and lotions you are using for your rash.  I have a chemo rash which is driving me crazy.  I have tried Moogoo, Aveeno, had steroid creams, nothing seems to work.  I have to have my chemo dose lowered I think because of this rash.  I am hoping you can give me advice as to what you use.  Many thanks

    Lee x

  • HI Lee

    I use mometasone steroid cream,  e45 anti itch cream or balneum which can be available on subscrition. Also use e45 or oilatum bath oil instead of soap which can dry skin out leaving it itchy. You can use oil in shower by putting some on a wash cloth. Be careful as it makes shower base slippery.

    Hope this is of help

    Ed

  • Hi Ed,  thank you for the information, I had mometasone cream before for eczema so I might ask doctor for repeat prescription for this.  I will also get some E45 anti itch cream.  I am on chemo tablets indefinitely as I have secondary cancer but just cant stand this itch.  Thanks .

    Lee x 

Reply
  • Hi Ed,  thank you for the information, I had mometasone cream before for eczema so I might ask doctor for repeat prescription for this.  I will also get some E45 anti itch cream.  I am on chemo tablets indefinitely as I have secondary cancer but just cant stand this itch.  Thanks .

    Lee x 

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