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Pembrolizumab

Lynnie52
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Does anyone have any experience of Pembrolizumab immunotherapy treatment? I’ve been told my cancer has gone but because there was 20% Clear cells in the tumour I meet the criteria for treatment but there haven’t been any studies on the type of tumour I’ve had, I’m an anomaly apparently, are the side effects as scary as they seem? If I didn’t have the 20% I wouldn’t have been offered any preventative treatment just monitor over the next few years.

So confused, the doctor said there’s no right or wrong answer & to just toss a coin to decide if I want to go ahead.

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    High Lonnie,  I had my first dose of Pembro, that’s how the nurses etc. refer to it, last New Year’s Eve. At least it’s easy to remember.  Doctors told me, as they probably did you too, of all the horrible possible side effects, including life threatening, that can happen. Then they said it’s up to me to decide, won’t give advice.  How do you make a decision like that.?. I found it very difficult.  It was talking to people on Cancerchat that reassured me .sSide effects for so far have been fairly mild. I do get very tired easily,but being retired I can have a nap in the afternoon, and easily confused over silly things. Also I forget to do things so I leave myself notes all the time.  All in all I am coping with it and believe I made the right decision to go ahead.  Best of luck. Tony

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    High Lonnie,  I had my first dose of Pembro, that’s how the nurses etc. refer to it, last New Year’s Eve. At least it’s easy to remember.  Doctors told me, as they probably did you too, of all the horrible possible side effects, including life threatening, that can happen. Then they said it’s up to me to decide, won’t give advice.  How do you make a decision like that.?. I found it very difficult.  It was talking to people on Cancerchat that reassured me .sSide effects for so far have been fairly mild. I do get very tired easily,but being retired I can have a nap in the afternoon, and easily confused over silly things. Also I forget to do things so I leave myself notes all the time.  All in all I am coping with it and believe I made the right decision to go ahead.  Best of luck. Tony

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