Hi Karen

Thank you for asking :-)

He has been extremely fatigued so not able to do much. 

From blood tests  he has  low iron ( another side effect) which they can treat so Im hoping that improves the tiredness for him.

Hard seeing our loved ones struggling I can only imagine how it must be as a Mum.

Hugs 

Sending positive vibes to everyone 

Hi ya  Boxbrain0 

Thanks for your reply 

Yeah hubby is struggling this time round. 

They are prescribing sone meds to help with the pain.

Just hoping this will ease off and its worth it 

( hubby treatment is palliative)

Hope the iron gives your hubby more energy. No need to answer if you don't want to but did your hubby have treatment a while ago and then it came back?

Hi again. Dean is not one to ask much of the medical team (roll eyes emoji if I knew how to post one here) I try not to go on at him and he says the pain and soreness is going away now - but he has the chemo again this coming Monday so it could all start up again. I have said he needs to ask Monday when he goes, and I recommend calling the actual oncology team. The daft thing is that for a few weeks before the chemo he felt the tumour had shrunk a bit due to other alternative things he started about 6 weeks before. Since chemo session it feels like were back about 2 or 3 months

His problem is the mucous he says, as it just sits there and when he eats, most of the food stays down (he doesn't eat much at a time though) but the water he's taken with it will come back up, along with saliva or mucous he says. Anyway I will 'bully' him to call them. I am praying that it's simply inflammation from the response to the chemo drugs and that it settles down and he can notice shrinkage soon as bl***y hell he could do with a break. He looked so sad yesterday. Yes, as mom its heart breaking. But heart breaking to see any loved one suffer.

Hi Karen

I think its a male thing they are brought up to be tough ( society we live in) and so I think they dont like to complain.

Hubby does same he didnt tell the Dr how bad things are ......

Hubby says he is getting more saliva ? I know there are meds /patches that can reduce this so hopefully Dean can benefit from this...

He should have a scan after treatment to see whats happening.I would ask to have copies of medical letters sent home if not already getting them. Our area doesnt unless you opt in but only found out recently.

Macmillian are good can chat online to nurses or counselling to support Dean if he is open to it.

Also for his partner and yourself 

Its a marathon so support is crucial.

I have sons too so Mum hugs Karen 

I hope some of this is useful

Best wishes RB 

Thanks a lot Rhubarb (Do you like rhubarb?) Yes its helpful even to chat to someone who knows and gets what this is like. Hugs back to you.x

Hi Karen its okay

To clarify and to lessen your worry by comparing to something that doesnt apply....

Hubby has been palliative  treatment from the get go. He has secondaries else where

So yes he had treatment which gave him some relief for a few months

Athen it has grown again hence more treatment. .

The first time after completing the chemo the neurothapy improved  somewhat which was good and able to be more active etc.

The side effects are cumulative so this has flared it up for him 

Its hard to watch let alone go through it. And nothing I can do nor say makes it better .

Encourage Dean to be open and honest They can reduce the doses to make them more tolerable. 

It really is one day at a time Karen rotten cliche that it is 

And I looked it up the term for all this rollercoaster of emotions is anticipatory grief .....our loved ones are going through it and so are we 

It helped to know its a real thing

Any how I hope Dean gets some relief on Monday

Hubby turn Tuesday

Take care 

You're so right about nothing you can say or do makes it better, but we keep trying don't we, and we are there if they need us. Dean always says how lucky he is to not be going through this by himself, as he knows there are plenty of people who have absolutely no one & go home to an empty house.

Best vibes for Tuesday

Thankyou Karen 

Ditto for Dean