Newly diagnosed with oesophageal cancer and the Fear

Hi I was diagnosed with oesophageal cancer last month and I have had a laparoscopy and having an endoscopic ultrasound tomorrow. I wondered if anyone has any ideas how I can help the absolute overwhelming fear that I am experiencing. I am having really bad dreams and hardly sleeping. The smallest mention of cancer on TV sends me into a panic and I am so worried about upsetting my wife and 20 year old son. It seems to never leave my thoughts. 

Parents
  • Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

  • Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

  • Eat what you want whilst you can !

    Sending positive vibes for Thursday 

  • Well basically they are being poisoned the chemo is toxic eek

    Did the med team give your Son meds for the tummy trouble?

    The fatigue is part of it too

    Depending on the chemo they can get very sensitive to cold too. 

    So gloves

    Does your Son have a Pic line in?

    The temporary tattoo "arm" covers make a great and cheaper and less medicalised way of keeping it covered. 

    We take each day at a time 

    And I get out for a walk as often as possible to have some head space otherwise it is all about cancer...

    Sending positive vibes

    Take care  

  • Sorry to have missed this message Mouser. I thought about you this week more than once while at work of all places, remembering you have the op on 10th. Hope its gone well and I know you won't be up to message us all back yet but let us know how you are doing when u can. Great idea about the chair.

  • Hi, yes he does have a picc line. His tummy upset only lasted a few days but now he's just tired a lot. I keep trying to get him out for walks especially with the weather being so good the last 2 weeks. I go at least 3 times a week after work to the forest by where I live as yes, everything else is about cancer. Its not Dean making it that way, its me I find it hard not to think about it.

  • Hello Mouser 

    Hope all went well and your recovery is smooth as possible

    Sending best wishes

    Ps recliners are great 

  • Hope you are good. Just wanted to ask, Dean had his first chemo and I think we may have expected too much re him being able to eat better. I know it will be different for everyone. He has had a sore mouth & throat (fairly common with chemo) so that eating has felt painful & scratchy for the last about 8 days. You did say didn't you that you could eat a lot better about day 10 of the 1st chemo cycle?

    There is something called mucositis which is fairly common from chemo as a side effect which it could be - Dean will ask when he goes for 2nd chemo on Monday14th. His oncologist called him today and asked if hes noticed any shrinkage, but he couldn't say because hes had the painful throat and mucous production. He did say prior to the soreness that food seemed to be going past better where the tumour is. Not sure though. We were hoping it'd be a case of yay I can eat better. He seems a bit down about it which I hate to see.

  • Hi Karen 

    Im sorry to hear Deans suffering with this it must be really painful and frustrating.

    Did the Dr suggest any medication to help with the ? Ulceration?

    I would give his 24/7 contact a call if not and ask for some advice....it will be a long uncomfortable weekend otherwise 

    Can he tolerate cool foods

    plain yogurts? Most important 

    His he drinking,/ keeping fluids up 

    Hopefully once on top of the sore mouth etc he will be able to judge better re eating.

    I think it will be very individual my hubby has to have lots of sauce gravy with things to help them go down ....and often has pureed things like stews etc.

    I hope this helps a little bit 

  • Hi Karen

    Thank you for asking :-)

    He has been extremely fatigued so not able to do much. 

    From blood tests  he has  low iron ( another side effect) which they can treat so Im hoping that improves the tiredness for him.

    Hard seeing our loved ones struggling I can only imagine how it must be as a Mum.

    Hugs 

    Sending positive vibes to everyone 

  • Hi ya  Boxbrain0 

    Thanks for your reply 

    Yeah hubby is struggling this time round. 

    They are prescribing sone meds to help with the pain.

    Just hoping this will ease off and its worth it 

    ( hubby treatment is palliative)

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