Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

You're totally right about life becoming just about the cancer. Dean had his first chemo Monday - so far feels fine except tired he says. Anyway I'll put it out there what we're doing - some of it you may well think we are mad but bear in mind we have researched the hell out of all of these things and put together a protocol based on the evidence and the advice seen on videos or read from articles made by doctors (some are oncologists).

First thing he started taking was liposomal nano curcumin. Curcumin is shown in controlled studies to kill cancer cells by apoptosis and to interfere with most of the cancer cell pathways. Its found in turmeric spice but its not water soluble or very bioavailable in it's usual form so a bit useless like that. When its 'wrapped' in a lipid (fat) layer and made into extremely tiny grains (liposomal nano), its up to 2000 times more absorbable to the body. 

If you go to Youtube and enter Repurposed drugs for cancer you will find information and evidence there (ivermectin & fenbendazole) One such video here: Repurposed drugs

These drugs work by interfering with the cancer cell pathways that help cancer cells uptake of glucose as thats all a cancer cell can feed off.

One crucial thing regarding recurrence is that conventional chemo & surgery do not eliminate the dormant cancer stem cells, even if you are declared cancer free or No Evidence of Disease, in remission etc, these CS Cells can be just 'sleeping' and thats why so many people have recurrences. Ivermectin & fenbendazole are able to destroy these cells so there is extremely reduced chance of recurrence.

Another video of cases here:

  Fen ben for cancer?

Hi started taking liposomal nano curcumin drops today as did some reading and it certainly won’t hurt. Here’s to hoping that it will help with the natural defenses 

Yeah, I really rate curcumin & more importantly loads of cancer researchers & oncologists all around the world.

Hi hope you dont mind my joining your thread 

Just wondering if you have any suggestions for counteracting the neuropathy caused by the chemo hubby really struggling with it at the moment thanks in advance RB

Hi Rhubarbdragon 

I would talk to your husband's oncologist as soon as possible, as when I started to get neuropathy during breast cancer chemo treatment, my consultant immediately reduced the chemo concoction by 20%.  If neuropathy really takes hold, it is very difficult and sometimes impossible to reverse.

Good luck :)

Hello Carol1964 

Thank you for taking time to reply

He has an appointment this week so will see how that goes. best wishes 

Hi. My son only had his 1st chemo last week so I don't know much about that sorry. I hope your hubby can get help with it.x

Hi the pins and needles with FLOT chemo is a *** and yesterday I woke up with a numb right hand. I was very worried that it might not go away however it seems to have eased off a bit today. Good luck. The treatment is such a nasty concoction of drugs and has been very emotionally draining due to the nasty side effects. However it does end and helped me to eat normally which is a plus. Hang in there 

Hi Karren 

Thank you for taking time to reply 

I hope your sons treatment is going as well as possible and he is responding well.

Fyi

The chemo side effects are cumulative/ build up so just watch out for it. 

This is second time around for Hubby and I guess that is why its so bothersome for him 

It had eased off inbetween times.

Its just hard watching him go thru it .

Thanks again for support

RB

Hi Boxbrain0

Thank you for taking time to reply and sharing your experience with this.

Hubby is on his second time around of chemo and it seems to be worse than before.

He has an appt this week with his team and going on past I suspect they will reduce the dose 

Which hopefully will help .

Take care of yourself too

Many thanx RB

Hi Boxbrain0

Thank you for taking time to reply and sharing your experience with this.

Hubby is on his second time around of chemo and it seems to be worse than before.

He has an appt this week with his team and going on past I suspect they will reduce the dose 

Which hopefully will help .

Take care of yourself too

Many thanx RB

Hows your hubby doing now?

Hi Karen

Thank you for asking :-)

He has been extremely fatigued so not able to do much. 

From blood tests  he has  low iron ( another side effect) which they can treat so Im hoping that improves the tiredness for him.

Hard seeing our loved ones struggling I can only imagine how it must be as a Mum.

Hugs 

Sending positive vibes to everyone 

Hope the iron gives your hubby more energy. No need to answer if you don't want to but did your hubby have treatment a while ago and then it came back?

Hi Karen its okay

To clarify and to lessen your worry by comparing to something that doesnt apply....

Hubby has been palliative  treatment from the get go. He has secondaries else where

So yes he had treatment which gave him some relief for a few months

Athen it has grown again hence more treatment. .

The first time after completing the chemo the neurothapy improved  somewhat which was good and able to be more active etc.

The side effects are cumulative so this has flared it up for him 

Its hard to watch let alone go through it. And nothing I can do nor say makes it better .

Encourage Dean to be open and honest They can reduce the doses to make them more tolerable. 

It really is one day at a time Karen rotten cliche that it is 

And I looked it up the term for all this rollercoaster of emotions is anticipatory grief .....our loved ones are going through it and so are we 

It helped to know its a real thing

Any how I hope Dean gets some relief on Monday

Hubby turn Tuesday

Take care 

You're so right about nothing you can say or do makes it better, but we keep trying don't we, and we are there if they need us. Dean always says how lucky he is to not be going through this by himself, as he knows there are plenty of people who have absolutely no one & go home to an empty house.

Best vibes for Tuesday

Thankyou Karen 

Ditto for Dean 

Hi all so today I am now sitting outside the Cancer unit  and about to go in and have my CT scan done to see how the chemo has gone. I’m so scared of it as it’s yet another result to wait for. The operation absolutely terrifies me however so does not being able to have it. This silly damn disease just turns people into irrational looneys. You ladies that care are the most important people in our lives and it sometimes just needs a hand hold and nothing more. Our moods are up and down constantly and any time we seem irritable or just a moody git really is not meant against you. Sometimes just going through the doors of the hospital is so horrible but we try and pretend it’s ok. Thank you for all you do 

Hello Boxbrain0

Just picked up your message and I am moved at your words.

And want to say here for handholding venting hysterical laughter ( more me probably eek)

And any other shares.

I hope the CT scan brings good news / and the Cancer is doing a runner for you 

Sending Hugs

RB x

Everything you say I can identify with as I see it with Dean. He's been a right mardy git many times - still he was even before all this!

I hope you get really great results from your scan. As you have been able to eat so much more easily I'd take that as a very good sign its shrunk, but I get it that you don't try and anticipate with this.

Deans terrified of the op as well & I understand why. On the one hand you're 'lucky' if you can have it as so many can't but it looks an ordeal. At least you will have an amazing story to tell for years to come once you are through this part of it. I was only thinking this morning if only we could fast forward 12 - 18 months and it all be behind us.  

Hi Karen

Oh yep mood swings especially from steroids not fun to be on receiving end and horrible for our loved ones going through it.

A heads up the cancer and the chemo can cause low iron /anaemia which can add to the fatigue .

Hubby having to have blood transfusions to bring it back up so bare in mind and keep checking blood results.

Obviously not being able to eat a good diet doesnt help either.

Fear of the operation is understandable its not a small thing to undergo. Its not an option for hubby so cant say more than that.

Re looking back 

We have been on this path for over a year you quickly become all about the cancer and adapt to things but 

I see we are still dealing with "the new" every day

Sometimes it wears you out and you really dont "get it right" for your

Loved one but we are doing our best and we are all human.

..ultimately it really is one day at a time 

Id say 

Do stuff to keep you a float cos its a long road.so you dont lose yourself and also gives you the energy to be there.

I take my hat off to anyone enduring cancer treatments they are all awful grueling and traumatic. 

Strength to everyone

RB