Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

Hope you have a fab weekend away, what a good idea. It must feel counter intuitive when you feel the best you have felt in a while to then go into surgery.

1. So everyone I took the plunge and my long hair and beard of 40 years was all shaved off yesterday. It was a bit of a shock as I just don’t look like me anymore. It’s the beard that is the most difficult bit. And of course the blooming weather decides to get cold the day after so my cheeks feel literally numb. However I was very relieved to find out that my head is a good shape for shaving and has no weird bumps on it. I have decided that I may keep shaving the head but grow a long beard when it comes back eventually. I may even have some Viking tattoos on the side of my head. Yes it appears I am suffering from chemo brain mush and finally losing my marbles. Onwards and upwards. I have had the most amazing week of eating and have been out for meals and and having normal food with no discomfort or pain. It has been lovely to feel human again.Chemo again Tomorrow and I just hope that this cycle is as good as the last. Fingers crossed

Thats great re the eating and going out for meals. Hair is a massive part of your identity so it must be hard to lose that but good for you on making it into a positive. Dean has already lost his head hair since his 20s but has a big thick beard so isn't looking forward to losing that. Good luck with this next chemo.

Hi hows everyone doing? Is anyone interested in knowing about other things you can do to fight this? I'm definitely not trying to sell you anything or get commission! Just some things my son has been doing in addition to chemo etc (it starts Monday - it was put back a few days as he is having a tooth out today and they didn't want risk of infection. 

Hi well anything that can help is always worth a look at. However as you will find out the amount of meds that you end up with whilst on chemo to counteract the side effects is mad so to add anything else that you take could be a bit much. But quite frankly I personally am open to anything. It does however get to the point where all your life becomes about Cancer and this alongside the intense brain fog that comes with chemo means it becomes difficult to take information in. Another tip for your son is to always tell the hotline nurses or oncologist about every little side effect as it makes a massive difference as they can give you meds that sort it out for the next cycle. 
regards Marc

You're totally right about life becoming just about the cancer. Dean had his first chemo Monday - so far feels fine except tired he says. Anyway I'll put it out there what we're doing - some of it you may well think we are mad but bear in mind we have researched the hell out of all of these things and put together a protocol based on the evidence and the advice seen on videos or read from articles made by doctors (some are oncologists).

First thing he started taking was liposomal nano curcumin. Curcumin is shown in controlled studies to kill cancer cells by apoptosis and to interfere with most of the cancer cell pathways. Its found in turmeric spice but its not water soluble or very bioavailable in it's usual form so a bit useless like that. When its 'wrapped' in a lipid (fat) layer and made into extremely tiny grains (liposomal nano), its up to 2000 times more absorbable to the body. 

If you go to Youtube and enter Repurposed drugs for cancer you will find information and evidence there (ivermectin & fenbendazole) One such video here: Repurposed drugs

These drugs work by interfering with the cancer cell pathways that help cancer cells uptake of glucose as thats all a cancer cell can feed off.

One crucial thing regarding recurrence is that conventional chemo & surgery do not eliminate the dormant cancer stem cells, even if you are declared cancer free or No Evidence of Disease, in remission etc, these CS Cells can be just 'sleeping' and thats why so many people have recurrences. Ivermectin & fenbendazole are able to destroy these cells so there is extremely reduced chance of recurrence.

Another video of cases here:

  Fen ben for cancer?

Hi started taking liposomal nano curcumin drops today as did some reading and it certainly won’t hurt. Here’s to hoping that it will help with the natural defenses 

Yeah, I really rate curcumin & more importantly loads of cancer researchers & oncologists all around the world.

Hi hope you dont mind my joining your thread 

Just wondering if you have any suggestions for counteracting the neuropathy caused by the chemo hubby really struggling with it at the moment thanks in advance RB

Hi Rhubarbdragon 

I would talk to your husband's oncologist as soon as possible, as when I started to get neuropathy during breast cancer chemo treatment, my consultant immediately reduced the chemo concoction by 20%.  If neuropathy really takes hold, it is very difficult and sometimes impossible to reverse.

Good luck :)

Hi Rhubarbdragon 

I would talk to your husband's oncologist as soon as possible, as when I started to get neuropathy during breast cancer chemo treatment, my consultant immediately reduced the chemo concoction by 20%.  If neuropathy really takes hold, it is very difficult and sometimes impossible to reverse.

Good luck :)

Hello Carol1964 

Thank you for taking time to reply

He has an appointment this week so will see how that goes. best wishes 

Hi the pins and needles with FLOT chemo is a *** and yesterday I woke up with a numb right hand. I was very worried that it might not go away however it seems to have eased off a bit today. Good luck. The treatment is such a nasty concoction of drugs and has been very emotionally draining due to the nasty side effects. However it does end and helped me to eat normally which is a plus. Hang in there 

Hi Boxbrain0

Thank you for taking time to reply and sharing your experience with this.

Hubby is on his second time around of chemo and it seems to be worse than before.

He has an appt this week with his team and going on past I suspect they will reduce the dose 

Which hopefully will help .

Take care of yourself too

Many thanx RB

Hows your hubby doing now?

Hope you are good. Just wanted to ask, Dean had his first chemo and I think we may have expected too much re him being able to eat better. I know it will be different for everyone. He has had a sore mouth & throat (fairly common with chemo) so that eating has felt painful & scratchy for the last about 8 days. You did say didn't you that you could eat a lot better about day 10 of the 1st chemo cycle?

There is something called mucositis which is fairly common from chemo as a side effect which it could be - Dean will ask when he goes for 2nd chemo on Monday14th. His oncologist called him today and asked if hes noticed any shrinkage, but he couldn't say because hes had the painful throat and mucous production. He did say prior to the soreness that food seemed to be going past better where the tumour is. Not sure though. We were hoping it'd be a case of yay I can eat better. He seems a bit down about it which I hate to see.

Hi Karen 

Im sorry to hear Deans suffering with this it must be really painful and frustrating.

Did the Dr suggest any medication to help with the ? Ulceration?

I would give his 24/7 contact a call if not and ask for some advice....it will be a long uncomfortable weekend otherwise 

Can he tolerate cool foods

plain yogurts? Most important 

His he drinking,/ keeping fluids up 

Hopefully once on top of the sore mouth etc he will be able to judge better re eating.

I think it will be very individual my hubby has to have lots of sauce gravy with things to help them go down ....and often has pureed things like stews etc.

I hope this helps a little bit 

Hi Karen

Thank you for asking :-)

He has been extremely fatigued so not able to do much. 

From blood tests  he has  low iron ( another side effect) which they can treat so Im hoping that improves the tiredness for him.

Hard seeing our loved ones struggling I can only imagine how it must be as a Mum.

Hugs 

Sending positive vibes to everyone 

Hi ya  Boxbrain0 

Thanks for your reply 

Yeah hubby is struggling this time round. 

They are prescribing sone meds to help with the pain.

Just hoping this will ease off and its worth it 

( hubby treatment is palliative)

Hope the iron gives your hubby more energy. No need to answer if you don't want to but did your hubby have treatment a while ago and then it came back?

Hi again. Dean is not one to ask much of the medical team (roll eyes emoji if I knew how to post one here) I try not to go on at him and he says the pain and soreness is going away now - but he has the chemo again this coming Monday so it could all start up again. I have said he needs to ask Monday when he goes, and I recommend calling the actual oncology team. The daft thing is that for a few weeks before the chemo he felt the tumour had shrunk a bit due to other alternative things he started about 6 weeks before. Since chemo session it feels like were back about 2 or 3 months

His problem is the mucous he says, as it just sits there and when he eats, most of the food stays down (he doesn't eat much at a time though) but the water he's taken with it will come back up, along with saliva or mucous he says. Anyway I will 'bully' him to call them. I am praying that it's simply inflammation from the response to the chemo drugs and that it settles down and he can notice shrinkage soon as bl***y hell he could do with a break. He looked so sad yesterday. Yes, as mom its heart breaking. But heart breaking to see any loved one suffer.