Newly diagnosed with oesophageal cancer and the Fear

Hi I was diagnosed with oesophageal cancer last month and I have had a laparoscopy and having an endoscopic ultrasound tomorrow. I wondered if anyone has any ideas how I can help the absolute overwhelming fear that I am experiencing. I am having really bad dreams and hardly sleeping. The smallest mention of cancer on TV sends me into a panic and I am so worried about upsetting my wife and 20 year old son. It seems to never leave my thoughts. 

Parents
  • Hi I am having the same procedure on Wednesday I have found it doesn't matter what anybody says the fear is constantly with you ,I am the same ,I don't switch off at night neither.I think my fear is to find out what stage i am at.Hope you find something to help you .

  • Its all constant fear. I know its not happening to me, but my son, but its constant fear as to what theyre going to say. My son will be told the stage soon as well but hasn't got appointment through yet. Keep googling what I know so far about his tumour size and no spread etc to try and predict - it's driving me mad!

  • Thats great re the eating and going out for meals. Hair is a massive part of your identity so it must be hard to lose that but good for you on making it into a positive. Dean has already lost his head hair since his 20s but has a big thick beard so isn't looking forward to losing that. Good luck with this next chemo.

  • Hi hows everyone doing? Is anyone interested in knowing about other things you can do to fight this? I'm definitely not trying to sell you anything or get commission! Just some things my son has been doing in addition to chemo etc (it starts Monday - it was put back a few days as he is having a tooth out today and they didn't want risk of infection. 

  • Hi well anything that can help is always worth a look at. However as you will find out the amount of meds that you end up with whilst on chemo to counteract the side effects is mad so to add anything else that you take could be a bit much. But quite frankly I personally am open to anything. It does however get to the point where all your life becomes about Cancer and this alongside the intense brain fog that comes with chemo means it becomes difficult to take information in. Another tip for your son is to always tell the hotline nurses or oncologist about every little side effect as it makes a massive difference as they can give you meds that sort it out for the next cycle. 
    regards Marc

  • Offline in reply to Boxbrain0 Unpublished Reply

    You're totally right about life becoming just about the cancer. Dean had his first chemo Monday - so far feels fine except tired he says. Anyway I'll put it out there what we're doing - some of it you may well think we are mad but bear in mind we have researched the hell out of all of these things and put together a protocol based on the evidence and the advice seen on videos or read from articles made by doctors (some are oncologists).

    First thing he started taking was liposomal nano curcumin. Curcumin is shown in controlled studies to kill cancer cells by apoptosis and to interfere with most of the cancer cell pathways. Its found in turmeric spice but its not water soluble or very bioavailable in it's usual form so a bit useless like that. When its 'wrapped' in a lipid (fat) layer and made into extremely tiny grains (liposomal nano), its up to 2000 times more absorbable to the body. 

    If you go to Youtube and enter Repurposed drugs for cancer you will find information and evidence there (ivermectin & fenbendazole) One such video here: Repurposed drugs

    These drugs work by interfering with the cancer cell pathways that help cancer cells uptake of glucose as thats all a cancer cell can feed off.

    One crucial thing regarding recurrence is that conventional chemo & surgery do not eliminate the dormant cancer stem cells, even if you are declared cancer free or No Evidence of Disease, in remission etc, these CS Cells can be just 'sleeping' and thats why so many people have recurrences. Ivermectin & fenbendazole are able to destroy these cells so there is extremely reduced chance of recurrence.

    Another video of cases here:

      Fen ben for cancer?

  • Hi started taking liposomal nano curcumin drops today as did some reading and it certainly won’t hurt. Here’s to hoping that it will help with the natural defenses 

  • Yeah, I really rate curcumin & more importantly loads of cancer researchers & oncologists all around the world.

  • Hi hope you dont mind my joining your thread 

    Just wondering if you have any suggestions for counteracting the neuropathy caused by the chemo hubby really struggling with it at the moment thanks in advance RB

  • Hi  

    I would talk to your husband's oncologist as soon as possible, as when I started to get neuropathy during breast cancer chemo treatment, my consultant immediately reduced the chemo concoction by 20%.  If neuropathy really takes hold, it is very difficult and sometimes impossible to reverse.

    Good luck :)

  • Hello Carol1964 

    Thank you for taking time to reply

    He has an appointment this week so will see how that goes. best wishes 

  • Hi. My son only had his 1st chemo last week so I don't know much about that sorry. I hope your hubby can get help with it.x

Reply Children
  • Hi Karren 

    Thank you for taking time to reply 

    I hope your sons treatment is going as well as possible and he is responding well.

    Fyi

    The chemo side effects are cumulative/ build up so just watch out for it. 

    This is second time around for Hubby and I guess that is why its so bothersome for him 

    It had eased off inbetween times.

    Its just hard watching him go thru it .

    Thanks again for support

    RB

  • Thanks for the advice. He's had a rough few days. Had chemo last Monday 31st and was fine up till Thursday and said he felt like he'd been poisoned and slept on & off for almost 2 and a half days. Upset tummy etc. Another 3 to go. Yes its awful seeing someone you love go through it isnt it. :(

  • Hi all. 
    Getting prepped for the “Big Op” on Thursday. 
    obvifeeling apprehensive but this is the way forward. 
    I’ve picked up one of those old people chairs with the electrics on as it may be easier to sleep on once I’m out of hospital. 
    it’s also “Takeaway Week” for me as I’ll be getting fed via a tube for a bit once I’m home. 

    I know it’s bad to eat all that kind of stuff but it helps psychologically. 
    Had chippy Saturday and went out for a curry last night

  • Eat what you want whilst you can !

    Sending positive vibes for Thursday 

  • Well basically they are being poisoned the chemo is toxic eek

    Did the med team give your Son meds for the tummy trouble?

    The fatigue is part of it too

    Depending on the chemo they can get very sensitive to cold too. 

    So gloves

    Does your Son have a Pic line in?

    The temporary tattoo "arm" covers make a great and cheaper and less medicalised way of keeping it covered. 

    We take each day at a time 

    And I get out for a walk as often as possible to have some head space otherwise it is all about cancer...

    Sending positive vibes

    Take care  

  • Sorry to have missed this message Mouser. I thought about you this week more than once while at work of all places, remembering you have the op on 10th. Hope its gone well and I know you won't be up to message us all back yet but let us know how you are doing when u can. Great idea about the chair.

  • Hi, yes he does have a picc line. His tummy upset only lasted a few days but now he's just tired a lot. I keep trying to get him out for walks especially with the weather being so good the last 2 weeks. I go at least 3 times a week after work to the forest by where I live as yes, everything else is about cancer. Its not Dean making it that way, its me I find it hard not to think about it.

  • Hello Mouser 

    Hope all went well and your recovery is smooth as possible

    Sending best wishes

    Ps recliners are great