Tony - has anyone had pembrolizumab immunotherapy?

I have been offered pembrolizumab immunotherapy. Can anyone who has experienced this tell me what  their experience is please

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  • Hi Carol, I haven’t used this chat thing before so I hope I am doing this right.

    many thanks for your reply and comments. I am a little reassured.

    one thing I am still a bit concerned about isdiet.   In the info. i Had from the oncologist it said to avoid fresh fruit and whole meal cereal, both of iwhich I eat a lot of.  I wonder if you had any issues over diet. Any more info. Would be greatly appreciated.

    Regards,  Tony

  • Hi Tony 

    I wasn't advised on any dietary needs for Pembro and just carried on as normal.  Although I had little appetite when I started Pembro as I was having it alongside chemo at the start and hadn't much appetite for anything during that time.  But when I continued Pembro on its own after surgery and chemo, I wasn't advised to change my diet or anything or to avoid certain foods.  Maybe the advice is related to the type of cancer you have?   I don't eat wholemeal cereal, but do eat fresh fruit and didn't have any issues and it certainly wasn't mentioned in any treatment or pre-treatment sessions.  I had breast cancer. If you have any kind of stomach/digestive system cancer then this may be the reason.  I would reach out to your oncologist/oncology team and ask the reasons why if you're not sure. 

  • Hi Carol,  I havelooked at other sites and they don’t all agree. Most seem to suggest the usual low fat, low sugar and more fruit and veg.  I think most of the advice is concerning the reduction of side effects rather than affecting treatment. I was probably reading too much into it so I’ll keep on with,what most people call,a healthy diet. I think I’m getting a bit paranoid over the whole thing. Hopefully I’ll be better once I’ve started on the program. I will see what the oncologists says when I next see them. I’m very grateful for your and other peoples interest. It feels a lot better being able to share concerns with people who have had or having similar experiences

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  • Hi Carol,  I havelooked at other sites and they don’t all agree. Most seem to suggest the usual low fat, low sugar and more fruit and veg.  I think most of the advice is concerning the reduction of side effects rather than affecting treatment. I was probably reading too much into it so I’ll keep on with,what most people call,a healthy diet. I think I’m getting a bit paranoid over the whole thing. Hopefully I’ll be better once I’ve started on the program. I will see what the oncologists says when I next see them. I’m very grateful for your and other peoples interest. It feels a lot better being able to share concerns with people who have had or having similar experiences

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