Hi Carol, I haven’t used this chat thing before so I hope I am doing this right.
many thanks for your reply and comments. I am a little reassured.
one thing I am still a bit concerned about isdiet. In the info. i Had from the oncologist it said to avoid fresh fruit and whole meal cereal, both of iwhich I eat a lot of. I wonder if you had any issues over diet. Any more info. Would be greatly appreciated.
I wasn't advised on any dietary needs for Pembro and just carried on as normal. Although I had little appetite when I started Pembro as I was having it alongside chemo at the start and hadn't much appetite for anything during that time. But when I continued Pembro on its own after surgery and chemo, I wasn't advised to change my diet or anything or to avoid certain foods. Maybe the advice is related to the type of cancer you have? I don't eat wholemeal cereal, but do eat fresh fruit and didn't have any issues and it certainly wasn't mentioned in any treatment or pre-treatment sessions. I had breast cancer. If you have any kind of stomach/digestive system cancer then this may be the reason. I would reach out to your oncologist/oncology team and ask the reasons why if you're not sure.
I wasn't advised on any dietary needs for Pembro and just carried on as normal. Although I had little appetite when I started Pembro as I was having it alongside chemo at the start and hadn't much appetite for anything during that time. But when I continued Pembro on its own after surgery and chemo, I wasn't advised to change my diet or anything or to avoid certain foods. Maybe the advice is related to the type of cancer you have? I don't eat wholemeal cereal, but do eat fresh fruit and didn't have any issues and it certainly wasn't mentioned in any treatment or pre-treatment sessions. I had breast cancer. If you have any kind of stomach/digestive system cancer then this may be the reason. I would reach out to your oncologist/oncology team and ask the reasons why if you're not sure.
Hi Carol, I havelooked at other sites and they don’t all agree. Most seem to suggest the usual low fat, low sugar and more fruit and veg. I think most of the advice is concerning the reduction of side effects rather than affecting treatment. I was probably reading too much into it so I’ll keep on with,what most people call,a healthy diet. I think I’m getting a bit paranoid over the whole thing. Hopefully I’ll be better once I’ve started on the program. I will see what the oncologists says when I next see them. I’m very grateful for your and other peoples interest. It feels a lot better being able to share concerns with people who have had or having similar experiences
