Colorectal cancer with possible liver mets

Hi,  I have just received a confirmed diagnosis of a colorectal cancer after having a colonoscopy  3 weeks ago and a CT scan a fortnight ago. I had no symptoms, this has all happened following my first routine bowel screening because I recently turned 50!

i had a previous colonoscopy 2 years ago which was clear so each step of my journey so far I’ve gone in to naively assuming all would be well.

However, it’s the gift that just keeps giving and I met with the colorectal surgeon today who told me the CT scan had revealed areas of concern on both lobes of my liver that are more than likely mets from the colorectal tumour. I already had an MRI scheduled for next week but will now have another on my liver and also a PET scan. So many ‘what ifs’ and I just need a plan.

I can’t believe all this is going on inside my body and I was feeling ok. I am trying my hardest to keep looking at the positives (Thank God for the bowel screening) but it’s getting difficult as I share the news with the people I love  and watch their worlds change forever (I have 4 kids and we told them tonight). I am scared but what I want most of all is for my kids to be ok. 

I’ve reached out to connect with a few of you who seem to have gone through / are going through similar to me, I hope that’s ok  xx

Parents Reply Children
  • Hi yes it was me ,its hard to believe you had a Colonoscopy 2 years ago and it was clear and they say its supposed to last 10 years its a good job you got checked out ,its got me nervous now because like I said before I had one 2 years ago and Ive just had another Colonoscopy which was clear although they took 2 biopsies and I've just had a CT scan which I'm waiting for results of , it sounds like they have a plan sorted for you it must be difficult making sure they have the best treatment plan they can get ,I hope things go well with your treatment they are amazing people x 

  • I think I’ve just been unlucky that it spread. The bowel tumour is quite small. From the start I felt reassured by the fact I had the colonoscopy 2 years ago - it meant that anything that was there was fairly new. The secondaries were a shock but it is what it is and I just need to trust the experts. You’re right - they are amazing. Let me know how you get on. Clare

  • Did they tell you after the Colonoscopy that they'd seen something ,or did they take biopsies during Colonoscopy and found it ?? 

  • Hi Jenny, they found an ulcerated polyp when they did the colonoscopy so this was biopsied.  They told me about that the day of the colonoscopy and that it was approx 18mm. When I had the colonoscopy two years ago, they didn’t find anything but took biopsies that came back clear x

  • As you say quite small it makes you wonder how it has spread to the liver , you must be so relieved they have found it and you are in safe hands ,I hope your chemo goes well ,I'll et you know how I get on ,its torture waiting for results ....