Starting treatment

Hi, I’m new to this forum; I was diagnosed with locally advanced tonsil cancer (it’s spread to one of my lymph nodes) a couple of weeks ago and start 7-weeks of chemoradiotherapy on Monday. I’m so nervous for what’s to come; the team of clinicans have prepared me as best they can for what’s to come in the coming weeks but I’m very apprehensive. I’ve been through radiotherapy before when I had Hodgkins Lymphoma almost 24-years ago but this treatment sounds far more challenging with much worse side effects. Has anyone else had treatment to the throat/neck who’s willing to share their experience? 

  • Good morning Hereigoagain

    I'm sorry to hear about your recent diagnosis of tonsil cancer. It's understandable that you're feeling anxious ahead of treatment starting tomorrow. 

    I wanted to post to let you know that we have had quite a number of members here on the forum who have posted to share their experiences of radiotherapy. I'd suggest reading through some of the posts on this thread. I'm also going to tag in a member called  aka Hazel who has shared her experience, advice, and tips for coping with lots of members through a blog that she wrote during and after her treatment. I know that many people have found this helpful. I'm sure that if you reply to some of the posts on the thread I've linked you'll be able to connect with others who have been through this treatment. 

    I know from the many posts that I've read here on the forum that the next few months will most likely be quite difficult for you. Please know that the Cancer Chat community is here for you and will offer any advice and support that we can to help you through this. 

    If you want to talk with one of our nurses at any point you can call them on 0808 800 4040, Monday to Friday 9am to 5pm. Or alternatively, you can post in the Ask the Nurses topic area. 

    I hope that tomorrow goes smoothly for you. Keep in touch and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi Jen  I’m Hazel aka radioactive raz. 6 years post radiotherapy and chemotherapy for right side tonsil cancer hpv 16 positive with 7 affected lymph nodes. I can’t lie treatment is brutal and recoveeey can be challenging simply because it affects our delicate mouth and throats. But I’m s wimp and  I did it. My blog link below might hroll any questions ask. Trust your team they do this every day remember. Glad you recovered from lymphoma.
    good luck fir tomorrow

    www.radioactiveraz.wordpress.com

    Hazel. . 

  • Thank you so much Jenn; I’m very grateful to you for the supportive reply and helpful signposting!

  • Hi Hazel, thank you so much for posting; I really appreciate your reply. Mine is right-sided and HPV positive too. I’ll have a read of your blog too( I’m sure that wasn’t easy to write but must’ve helped so many people. I have a great team (clinically) and wonderful family and friends so  sure I’ll get through it but can’t help fearing what’s to come. I think I tend to worry about others too; I don’t want them to have to watch me go though what’s to come but it can’t be avoided! Thanks again for your reply.

  • Hi Jen it’s doable it’s not pleasant but bests the alternative always shoot to help a fellow cancer patient. You’ll get there we all do it’s baby steps where in the country are you 

    hugs Hazel 

  • Yes, the alternative just doesn’t bear thinking about! I’m in Nottinghamshire so will be treated in Nottingham. I was treated there 24 years ago and had wonderful care and having met my team, feel confident that I’ll get great care this time too!