Kadi

Hi kadi, I wasn't asked . I had biobsys in my breast and from under my arm when I was seen at the breast clinic in May 2020. 

The biobsys came back and showed that cancer had also spread to my  lymph nodes  .

So I was told id need lumpectomy and all my lymph nodes removed from under my right arm.

If I was asked I'd definitely gone ahead and had them removed ,as just wanted the cancer cut out of me.

Yes I did get a few problems  I had seromas develop under my armpit,that's where fluid builds up,I had it drained,it filled up again within a few weeks, it was drained again. Then I went on to develop very mild lymphedema in my right arm,hand wrist. 

I went to my local hospital lymphedema clinic got measured  and fitted with a sleeve.  Didn't get on with the sleeve  ,so didn't bother wearing it. I googled how to do gentle excersises  and  do manually  sweeping  movements,along arm up to my shoulder,and across the top of my breast bone. That helped as well ,as when sitting down raising my arm up slightly on a cushion. 

I didnt lift anything heavy  anymore as they tell you not too.

The hospital doesn't run the lymphedema clinic anymore,but was told if I get any problems to see my gp,who would  refer me and sent me to the  nearest hospital that holds a lymphedema clinic.

But now few years on, I  dont really have any problems with my lymphedema, in my right arm etc ,it was only very mild to start with,and my arm  hands and wrist don't really look any different from my left arm now ,you wouldn't know I have it .

So I'd still have my lymph nodes out even if I'd have known  I'd develop the issues I did go on to develop.  We are all differnt and look at things  differently,.

But only you can make that decision, I know you will make the right one for you.  Good luck .

Thank you for sharing your experience. It’s very helpful and good to know that things improved. 

Kadi

Thank you Kadi.

Kadi

Thank you Kadi.