Kadi - recently diagnosed with DCIS. Not sure if I want my lymph nodes removed if it's not necessary

Hi, I’ve recently been diagnosed with DCIS and have chosen to have a single mastectomy. The surgeon is also going to remove a few lymph nodes from my armpit in order to check for invasive cancer.  Since my appointment, I have been reading about lymph node removal and the potential problems this can cause such as lymphoedema, infection etc. 

I’ve been informed that I can refuse to have the lymph nodes removed but may then need a further operation if the cells are not contained within the ducts.

I don’t want to have the lymph nodes removed if it’s not necessary but wonder if, apart from having a second operation, there’s a reason for agreeing to their removal?

Has anyone had any experience of this please?

It’s so difficult as I don’t want to make the wrong choice.

Thank you.

Parents
  • Hi Kadi

    I felt the complete opposite to you when I was diagnosed. I wanted to make sure nothing was overlooked and if that meant removing lymph nodes then so be it. In my case there were three reactive lymph nodes removed, thankfully all three were clear. I would have worried more if my lymph nodes were not removed and checked as its vital to know if cancer has spread. The chance lymphedema is nothing compared to cancer spread.

    Mines were removed 6 years ago and I have not had lymphedema.

    I do urge you to think carefully about your decision. 

  • Thank you very much for your advice. 

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