Kadi - recently diagnosed with DCIS. Not sure if I want my lymph nodes removed if it's not necessary

Hi, I’ve recently been diagnosed with DCIS and have chosen to have a single mastectomy. The surgeon is also going to remove a few lymph nodes from my armpit in order to check for invasive cancer.  Since my appointment, I have been reading about lymph node removal and the potential problems this can cause such as lymphoedema, infection etc. 

I’ve been informed that I can refuse to have the lymph nodes removed but may then need a further operation if the cells are not contained within the ducts.

I don’t want to have the lymph nodes removed if it’s not necessary but wonder if, apart from having a second operation, there’s a reason for agreeing to their removal?

Has anyone had any experience of this please?

It’s so difficult as I don’t want to make the wrong choice.

Thank you.

Parents
  • Hi Kadi and welcome to the Cancer Chat community.

    I'm sorry to hear you have been diagnosed with DCIS and that you have some concerns about the lymph node removal.

    Hopefully some of our members who have been in this position will share their experiences and advice with you soon, but in the meantime, our team of cancer nurses may be able to address some of your questions, so if you'd like to have a chat with them, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.

    We're thinking of you Kadi and hope you're able to come to a decision about this soon.

    Kind regards,

    Steph, Cancer Chat Moderator

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