Pleomorphic lobular carcinoma in situ diagnosis

Hello, I have just been diagnosed with PLCIS in my left breast and wondered if anyone can give me more information or have also been diagnosed with this. After a second biopsy I was told that I have a 13mm area very close to my chest wall which will require a Wide local excision and am now waiting for a date for this. 

Thanks on advance

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  • Welcome to the forum, Cazzy67.

    I'm sorry to hear about your recent diagnosis.

    It's natural to seek more information and connect with others who may have had a similar experience and I hope you'll just what you need in this respect among us on Cancer Chat.

    As for your questions and concerns about your upcoming procedure, it might be helpful to reach out to your medical team for more information. They can provide valuable insights, support, and resources to help you navigate this difficult time. That being said, if you feel like asking some general questions to our team of nurses prior to your next appointment, they'd be happy to chat with you Monday - Friday between 9a.m - 5p.m on this freephone 0808 800 4040.

    Remember to take things one step at a time and prioritise self care during this time.

    Stay strong, Cazzy67.

    All the best,

    Renata, Cancer Chat Moderator

  • Hi Renata,

    thank you for your reply. I have now had my date for the lumpectomy. The date is 12th of April which is great as I was told end of May initially. 

    Have the school holidays to keep me busy with my two boys (10+12)

    Take care Carole

  • Thank you I will definitely have a look at that. All this waiting is awful. Take care, good luck with your treatment. X x

  • Yes once your treatment starts , you’ll feel better . I had WLE 2 weeks ago . It wasn’t as bad as I expected . Managed on paracetamol , rest up for the 1st few days . Good luck x

  • Hi, yes they told me prior to surgery that they would be removing lymphnodes, not sure about the size removed but I know they also removed a 9mm mass, I have a follow up appointment on the 29th  for pathology results, these results will decide on the rest of my treatment, if it's in my lymphnodes I may need chemo if not then probably radiotherapy. Waiting is the worst part, it's a scary time and you just want to know! I also found they couldn't always answer all my  questions with certainty, I was answered with.. 'we wont know until after your surgery!'.. to a lot of them., which I found frustrating but I also get why at the same time. You will feel a little better once things start moving for you, I know I did, until then, lots of self care. Xxx

  • Hi Janam, just read over my first post and saw I said left breast. My head is like mash, it is my RIGHT breast!!! How are you feeling now? No mention of lymph nodes when I had appointment telling me results of 2nd biopsy so assume they won't do anything with them. Waiting 25days for results sound awful, I am in Aberdeen so not sure how long mine will take. I know they only give results on a wednesday as this is when MDT meet. Did your biopsy show pleomorphic? This is the word that's stressing me out . 

    I hope your results come back with nothing in the nodes. Please keep me updated if you have time. Take care. X x 

  • Hi kf68, just wondering if you have had your results back yet or still waiting. Also I keep forgetting to ask people what position the WLE was on their breast. My biopsy was quite high up near the t op of my breast at 12o'clock position so just assuming they will go back in there. Also how big the scar will be? Sorry about all the questions but Google is too scary

    Take care X x 

  • Where you told you have calcifications? If so, pleomorphic describes the type of calcifications, there size, shape, formation. 

  • I’m really sorry but  sure if I replied to this already ?

    results back - grade 2, 20mn( not 15), clear margins and no lymphs involved .

    waiting for a call from the oncologist .

    Mine was at the side , half way down . The breast scar looks fine . 

    The sentinel node biopsy is a bit raised and I’m not sure I’ll be shaving my armpits any time soon  but I’m sure it will be fine in a few months with some bio oil . 

    Don’t google ! If you’re on instagram, look up Liz o Riordan. She is an ex breast surgeon who’s had BC . She has a book x 

  • I'm doing ok thank you, I've found I'm tiring very easily since surgery, even though I'm doing absolutely nothing! And Pain isnt too bad. Should have had a call from district nurse as I should have had dressings changed today and wound checked but heard nothing from them. I pray too that my lymphnodes are clear. I will update you on the 29th x

  • Yes, it started with them seeing calcifications. 

  • Thank you, mine is right at top of breast so not sure if they go in at the same place as biopsy as it will be very visible. Sounds like it was a good result with clear margins and no lymphs involved. I have looked up Liz O'Riordan and she is very interesting and helpful. Thank you again for taking the time to reply. Take care. X x

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  • Thank you, mine is right at top of breast so not sure if they go in at the same place as biopsy as it will be very visible. Sounds like it was a good result with clear margins and no lymphs involved. I have looked up Liz O'Riordan and she is very interesting and helpful. Thank you again for taking the time to reply. Take care. X x

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