Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

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  • Hi all, just wondered how everyone is getting on. I recently had my Dexa scan to check bone density and it came back normal, which is great. I also got in touch with plastic surgery department, to confirm a date for my next surgery. I got put through to an admissions department, who told me he has his own person that deals with this, but she was on leave. They did look at the list and said there were quite a few in front of me. Also that the surgeon had taken a lot of leave, so everything has been put back. It could apparently be months away. So disappointing, as I thought it was any time now. I did get a number for the lady who deals with the admissions, so hope to get some clarification soon. 

    Hopefully, we'll soon all be enjoying the lovely spring weather later this week. Take care everyone and I hope you're all doing  well. Xx

  • Hi Pippin,

    This is great news about your Dexa scan, but disappointing news about your surgery. Did the person who you spoke to say when your consultant's secretary will be back from leave?

    I hope that you are back walking again and enjoying the spring flowers and milder sunny weather.

    Jolamine xx

  • Hi Jolamine, I hope you are feeling well at the moment. I've just had a call back, but I've been told they can't give me a time frame at the moment. I've explained not knowing how long I have to wait is making me anxious. She did ask if I would consider swapping to a different surgeon, but I don't really want to do that. I have just left another message to say I would consider going private, as I know the surgeon does a private clinic also. Obviously would depend on how much it would cost. Hopefully they will get back to me, to give me some information on how to go about this. We shall see. Xx

  • Hi Pippin,

    I am sorry to hear that you didn't get any further today. I can appreciate that you don't want to change surgeon at this stage - I would feel the same too. I hope that you can get further forward with private care and that you will find this affordable.

    Jolamine xx

  • Good morning Jolamine, unfortunately going private isn't going to be possible. The prices I have been given are way beyond what we could afford. So I'll just have to be patient and wait it out. There's not much else I can do really. Feeling a bit down, especially as I thought my surgery was only a few weeks away. I hope you have a lovely weekend. Xx

  • Hi Pippin,

    I suspected that this might be the case, while hoping that it wasn't. I know how disappointing this must be. You should still manage to get it done throughout the summer, which should be a better time for healing, than in the winter months - I'm sure that you don't want any further trouble with post-op healing!

    I hope that your wait won't be much longer - don't forget to let us know when you hear anything. Enjoy your weekend.

    Jolamine xx

Reply
  • Hi Pippin,

    I suspected that this might be the case, while hoping that it wasn't. I know how disappointing this must be. You should still manage to get it done throughout the summer, which should be a better time for healing, than in the winter months - I'm sure that you don't want any further trouble with post-op healing!

    I hope that your wait won't be much longer - don't forget to let us know when you hear anything. Enjoy your weekend.

    Jolamine xx

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