Hi everyone, just thought I'd give you an update, as I had my post op assessment today. It was the best possible news I could have had. They took 20 lymph nodes out, none of which had cancer showing. There was no sign of either tumour and no cancer cells in any of the breast tissue. They still want me to have radiotherapy as a precautionary measure and to reduce the risk of cancer coming back. Hope you are all OK. Xx

Hi Pippin24   That's amazing news!  Well done you!  Radiotherapy will be a breeze after everything you've been through.  Do you know how many sessions you will need? 

All good here thanks.  Had a poorly pup for a couple of days but she seems to be much better today.  My last immunotherapy session is scheduled for 21 November - all being well (e.g. bloods are ok and they can find a vein for treatment!) I will be ringing that bell!  

I'm meeting up with the "Moving Forward" ladies on Monday evening for dinner and a catch-up.  I'm looking forward to that.  Am also out to dinner tonight lol. Thank goodness for my PT to help me work it all off!  He's gradually increasing what I do and I am definitely feeling better for it.  Yesterday he introduced light weights and I found out I couldn't quite straighten my left arm directly in front of me!  That was a new one lol.  So I'm working on that in between sessions too. 

Hope everyone is doing well.  

Carol xx

Oh I'm so sorry to hear about your mum.  I do hope they listen to her feelings and give her the chance to make a decision that's right for her and the family.  What a side swipe for you all.  Thinking of you and hope the wound check went well and they have come up with a better solution for you. xx

Sorry just catching up on posts 

I was prescribed amitrytaline which I still take but didn’t really make a difference.  I have numbness , tingling from elbow down to fingertips both arms.  4 toes on right foot are numb. Awful pain in left shoulder and left hip and varying pain in other joints with no strength in arms or legs.  

how annoying your wound isn’t healing - mine did take many weeks.  I had iodine patches for quite sometime then cutimed which actually worked much better than iodine as it dried wound out allowing it to heal 

hope you get it sorted xx

Thank you, we need all the prayers we can get at the moment. We will get through this, we are a very close family. How are you doing at the moment? Xx

Thank you, it's good to know you have people to share with, just makes things a little bit easier to bear. They were quite happy with how the wound is looking, they could apparently see changes that we hadn't notice. They said it will probably be at least 4 weeks, but we'll see. How are things with you at the moment?

Hi NGS, sorry I asked how are doing, then just saw your second post explaining how you are. Really feel for you as seems like you are going through several different kinds of pain. I really hope things start to improve for you soon. Is there any other meds they could try? They put something in my wound today to seal a little area that was bleeding  hopefully this might help. It was called something nitrate, it sort of burns it to seal it. Apart from that they seemed really happy with how it looks. Thinking of you and sending you a big hug. Xx

Hi sorry to read about your mum.  Hope everything goes well for her but really sad news for her age   I've had a terrible reaction to the chemo.  Not eaten since Saturday.  Feeling extremely nauseous and finally diarrhoea.  Really no energy and stayed in bed.  Finally called 111 and oncology nurse but just told to take sickness tablets.  District Nurse very helpful when she called today for injections and I maybe turning a corner.  What do you eat because I have tried dry toast and ginger biscuits but can't eat more than a mouthful.  My polybalm has arrived too now.  Hope they can tweak treatment for next session.

Thank you.   I've had a terrible reaction to the chemo.  Not eaten since Saturday.  Feeling extremely nauseous and finally diarrhoea.  Really no energy and stayed in bed.  Finally called 111 and oncology nurse but just told to take sickness tablets.  District Nurse very helpful when she called today for injections and I maybe turning a corner.  What do you eat because I have tried dry toast and ginger biscuits but can't eat more than a mouthful.  My polybalm has arrived too now.  Hope they can tweak treatment for next session

Hi ROBIN71, thank you, I do feel so sad that my mum now has to go through this. She has been through enough over the last few years, but we will get through it together. So sorry to hear that you've had such a bad reaction to the chemo. Hopefully your body will start to adjust as time goes on, or perhaps they may try some different meds for you. Not really sure what to suggest with regards to food  but maybe little and often of whatever you might fancy at the time. Good to hear your polybalm has arrived. I used it twice a day while on chemo and have gone down to once a day, as phesgo can still make the nails brittle. Be sure to get plenty of rest, when you need it. Xx

Hi Pippin,

Talk about hitting you when you're down. I am so sorry to hear about your mum. Have they told her what type, or stage of breast cancer, that she's got? This happened to my mum too, only she had hers' first and we sadly lost her, just before I was diagnosed. I can understand your mum wanting to get Christmas out of the way, before she considers whether or not to have surgery - sounds as if you'll al have some difficult decisions to make, yet again.

On a brighter note, I'm glad to hear that they were happy with your wound today. Was it possibly silver nitrate that they used to seal the wound?

Thinking of your family and hoping and praying for a less prolonged treatment for your mum, than you've had.

Jolamine xx

Hi NGS,

I'm really hoping so, as I have lost confidence in going out on my own, in case I collapse.

I am so sorry to hear about the pain that you're having in your joints and the pins and needles in your hands and feet. Have you mentioned these effects to your care team? I hope that you can find something more effective than  Amitriptyline to help.

Jolamine xx

Hi NGS,

I'm really hoping so, as I have lost confidence in going out on my own, in case I collapse.

I am so sorry to hear about the pain that you're having in your joints and the pins and needles in your hands and feet. Have you mentioned these effects to your care team? I hope that you can find something more effective than  Amitriptyline to help.

Jolamine xx