Hi everyone, just thought I'd give you an update, as I had my post op assessment today. It was the best possible news I could have had. They took 20 lymph nodes out, none of which had cancer showing. There was no sign of either tumour and no cancer cells in any of the breast tissue. They still want me to have radiotherapy as a precautionary measure and to reduce the risk of cancer coming back. Hope you are all OK. Xx

Hi Pippin24   That's amazing news!  Well done you!  Radiotherapy will be a breeze after everything you've been through.  Do you know how many sessions you will need? 

All good here thanks.  Had a poorly pup for a couple of days but she seems to be much better today.  My last immunotherapy session is scheduled for 21 November - all being well (e.g. bloods are ok and they can find a vein for treatment!) I will be ringing that bell!  

I'm meeting up with the "Moving Forward" ladies on Monday evening for dinner and a catch-up.  I'm looking forward to that.  Am also out to dinner tonight lol. Thank goodness for my PT to help me work it all off!  He's gradually increasing what I do and I am definitely feeling better for it.  Yesterday he introduced light weights and I found out I couldn't quite straighten my left arm directly in front of me!  That was a new one lol.  So I'm working on that in between sessions too. 

Hope everyone is doing well.  

Carol xx

Thanks Jolamine, it really was so lovely to be out with the family and the show was great. Just a regular scan to check lung nodules, that showed in first ct scan. Hopefully, they will still be the same. Not so worried now, since finding out all lymph nodes were clear. Will let you know how wound check goes on Wednesday, unfortunately I think it will be a slow process. Hope you enjoyed your weekend. Xx

Hi NGS thank you. I will be going to get mine taken out today but get abit of swelling on the hand in the morning when I wake up but then it goes down. Is that meant to happen. My upper arm underneath it hurts quite abit too. I am.going to.mention it today when I go to get the drain out. 

Hi Pippin,

Here's hoping that the CT doesn't show anything new. Finding out that all lymph nodes were clear must have been a great relief and I know how much that reduces your anxiety. You must be getting pretty fed up with your gaping wound, but I suppose that you just have to remain patient.

We had a good weekend thank you. We went to see an illusionist at the local arts centre on Friday night and it was a very entertaining evening. 

Jolamine xx

Hi Jolamine, I'm not so anxious about getting the ct scan results this time, due to the fact all my lymph nodes were clear. I think this means that the cancer is less likely to have spread. The tummy wound is not very nice, just fortunate that hubby isn't squeamish, so can do the dressing in-between hospital visits. Think it's going to be a very long process unfortunately and I can't get out for my daily walks. Sounds like you had a really good weekend, always nice to go to an entertaining event. Any update on your tilt test appointment?

Hi Pippin,

I now have a date of 18th December for the tilt test - it can't come soon enough!

Jolamine xx

Hi Jolamine, sorry for the late reply, I didn't get a notification, seems to happen sometimes. So pleased to hear that you have an appointment for your tilt test. Really hoping this will finally give you some answers. On my way for my second visit to the hospital this week, this time for wound check. Hoping they might come up with a better option of treatment, as at the moment it isn't improving. I've also git an appointment next week for radiotherapy scan and markings. They said I'll receive my schedule at the appointment and should start a couple of weeks later. A bit of a trek to this hospital, so will be a tiring few weeks. Had some bad news yesterday regarding my dear old mum. She has just been diagnosed with breast cancer and they suggested surgery early December. She doesn't want surgery before Christmas, if at all. She's had several surgeries in the last few tears and at 88 I think she's had enough. As a family, we just felt we were coming out the other side of a difficult time,  only to be pushed back into a new battle. I'm really heartbroken. Xx

Oh Pippin I am so sorry to hear this and truly gutted for you and your family.  As you say you’ve just started to come through the other end of one battle and what a blow to hear this news. 
my thoughts and prayers are with you all 

xxx 

Fabulous news - hopefully you can get some answers xx

Oh I'm so sorry to hear about your mum.  I do hope they listen to her feelings and give her the chance to make a decision that's right for her and the family.  What a side swipe for you all.  Thinking of you and hope the wound check went well and they have come up with a better solution for you. xx

Sorry just catching up on posts 

I was prescribed amitrytaline which I still take but didn’t really make a difference.  I have numbness , tingling from elbow down to fingertips both arms.  4 toes on right foot are numb. Awful pain in left shoulder and left hip and varying pain in other joints with no strength in arms or legs.  

how annoying your wound isn’t healing - mine did take many weeks.  I had iodine patches for quite sometime then cutimed which actually worked much better than iodine as it dried wound out allowing it to heal 

hope you get it sorted xx

Sorry just catching up on posts 

I was prescribed amitrytaline which I still take but didn’t really make a difference.  I have numbness , tingling from elbow down to fingertips both arms.  4 toes on right foot are numb. Awful pain in left shoulder and left hip and varying pain in other joints with no strength in arms or legs.  

how annoying your wound isn’t healing - mine did take many weeks.  I had iodine patches for quite sometime then cutimed which actually worked much better than iodine as it dried wound out allowing it to heal 

hope you get it sorted xx

Hi NGS, sorry I asked how are doing, then just saw your second post explaining how you are. Really feel for you as seems like you are going through several different kinds of pain. I really hope things start to improve for you soon. Is there any other meds they could try? They put something in my wound today to seal a little area that was bleeding  hopefully this might help. It was called something nitrate, it sort of burns it to seal it. Apart from that they seemed really happy with how it looks. Thinking of you and sending you a big hug. Xx

Hi sorry to read about your mum.  Hope everything goes well for her but really sad news for her age   I've had a terrible reaction to the chemo.  Not eaten since Saturday.  Feeling extremely nauseous and finally diarrhoea.  Really no energy and stayed in bed.  Finally called 111 and oncology nurse but just told to take sickness tablets.  District Nurse very helpful when she called today for injections and I maybe turning a corner.  What do you eat because I have tried dry toast and ginger biscuits but can't eat more than a mouthful.  My polybalm has arrived too now.  Hope they can tweak treatment for next session.

Hi ROBIN71, thank you, I do feel so sad that my mum now has to go through this. She has been through enough over the last few years, but we will get through it together. So sorry to hear that you've had such a bad reaction to the chemo. Hopefully your body will start to adjust as time goes on, or perhaps they may try some different meds for you. Not really sure what to suggest with regards to food  but maybe little and often of whatever you might fancy at the time. Good to hear your polybalm has arrived. I used it twice a day while on chemo and have gone down to once a day, as phesgo can still make the nails brittle. Be sure to get plenty of rest, when you need it. Xx