Hi everyone, just thought I'd give you an update, as I had my post op assessment today. It was the best possible news I could have had. They took 20 lymph nodes out, none of which had cancer showing. There was no sign of either tumour and no cancer cells in any of the breast tissue. They still want me to have radiotherapy as a precautionary measure and to reduce the risk of cancer coming back. Hope you are all OK. Xx

Hi Pippin24   That's amazing news!  Well done you!  Radiotherapy will be a breeze after everything you've been through.  Do you know how many sessions you will need? 

All good here thanks.  Had a poorly pup for a couple of days but she seems to be much better today.  My last immunotherapy session is scheduled for 21 November - all being well (e.g. bloods are ok and they can find a vein for treatment!) I will be ringing that bell!  

I'm meeting up with the "Moving Forward" ladies on Monday evening for dinner and a catch-up.  I'm looking forward to that.  Am also out to dinner tonight lol. Thank goodness for my PT to help me work it all off!  He's gradually increasing what I do and I am definitely feeling better for it.  Yesterday he introduced light weights and I found out I couldn't quite straighten my left arm directly in front of me!  That was a new one lol.  So I'm working on that in between sessions too. 

Hope everyone is doing well.  

Carol xx

Fabulous news - hopefully you can get some answers xx

Oh I'm so sorry to hear about your mum.  I do hope they listen to her feelings and give her the chance to make a decision that's right for her and the family.  What a side swipe for you all.  Thinking of you and hope the wound check went well and they have come up with a better solution for you. xx

Sorry just catching up on posts 

I was prescribed amitrytaline which I still take but didn’t really make a difference.  I have numbness , tingling from elbow down to fingertips both arms.  4 toes on right foot are numb. Awful pain in left shoulder and left hip and varying pain in other joints with no strength in arms or legs.  

how annoying your wound isn’t healing - mine did take many weeks.  I had iodine patches for quite sometime then cutimed which actually worked much better than iodine as it dried wound out allowing it to heal 

hope you get it sorted xx

Thank you, we need all the prayers we can get at the moment. We will get through this, we are a very close family. How are you doing at the moment? Xx

Thank you, it's good to know you have people to share with, just makes things a little bit easier to bear. They were quite happy with how the wound is looking, they could apparently see changes that we hadn't notice. They said it will probably be at least 4 weeks, but we'll see. How are things with you at the moment?

Hi NGS, sorry I asked how are doing, then just saw your second post explaining how you are. Really feel for you as seems like you are going through several different kinds of pain. I really hope things start to improve for you soon. Is there any other meds they could try? They put something in my wound today to seal a little area that was bleeding  hopefully this might help. It was called something nitrate, it sort of burns it to seal it. Apart from that they seemed really happy with how it looks. Thinking of you and sending you a big hug. Xx

Hi sorry to read about your mum.  Hope everything goes well for her but really sad news for her age   I've had a terrible reaction to the chemo.  Not eaten since Saturday.  Feeling extremely nauseous and finally diarrhoea.  Really no energy and stayed in bed.  Finally called 111 and oncology nurse but just told to take sickness tablets.  District Nurse very helpful when she called today for injections and I maybe turning a corner.  What do you eat because I have tried dry toast and ginger biscuits but can't eat more than a mouthful.  My polybalm has arrived too now.  Hope they can tweak treatment for next session.

Thank you.   I've had a terrible reaction to the chemo.  Not eaten since Saturday.  Feeling extremely nauseous and finally diarrhoea.  Really no energy and stayed in bed.  Finally called 111 and oncology nurse but just told to take sickness tablets.  District Nurse very helpful when she called today for injections and I maybe turning a corner.  What do you eat because I have tried dry toast and ginger biscuits but can't eat more than a mouthful.  My polybalm has arrived too now.  Hope they can tweak treatment for next session

Hi ROBIN71, thank you, I do feel so sad that my mum now has to go through this. She has been through enough over the last few years, but we will get through it together. So sorry to hear that you've had such a bad reaction to the chemo. Hopefully your body will start to adjust as time goes on, or perhaps they may try some different meds for you. Not really sure what to suggest with regards to food  but maybe little and often of whatever you might fancy at the time. Good to hear your polybalm has arrived. I used it twice a day while on chemo and have gone down to once a day, as phesgo can still make the nails brittle. Be sure to get plenty of rest, when you need it. Xx

Hi Pippin,

Talk about hitting you when you're down. I am so sorry to hear about your mum. Have they told her what type, or stage of breast cancer, that she's got? This happened to my mum too, only she had hers' first and we sadly lost her, just before I was diagnosed. I can understand your mum wanting to get Christmas out of the way, before she considers whether or not to have surgery - sounds as if you'll al have some difficult decisions to make, yet again.

On a brighter note, I'm glad to hear that they were happy with your wound today. Was it possibly silver nitrate that they used to seal the wound?

Thinking of your family and hoping and praying for a less prolonged treatment for your mum, than you've had.

Jolamine xx

Hi Pippin,

Talk about hitting you when you're down. I am so sorry to hear about your mum. Have they told her what type, or stage of breast cancer, that she's got? This happened to my mum too, only she had hers' first and we sadly lost her, just before I was diagnosed. I can understand your mum wanting to get Christmas out of the way, before she considers whether or not to have surgery - sounds as if you'll al have some difficult decisions to make, yet again.

On a brighter note, I'm glad to hear that they were happy with your wound today. Was it possibly silver nitrate that they used to seal the wound?

Thinking of your family and hoping and praying for a less prolonged treatment for your mum, than you've had.

Jolamine xx

Hi Jolamine, still not consistently getting notifications, which is really annoying. Unfortunately my mum only got a message on her phone, which asked her to come to the hospital that day. She got in a cab and went on her own, normally someone would go with her. She doesn't know what type, of cancer, just that it is low grade. Myself and my brothers have recently got poa, so I just need to register it and will be able to make some phone calls to the hospital myself. She is insistent about not having any operation before Christmas and they said there is no rush. This works better for me, as my radiotherapy will be finished then, so will be able to give her the support she needs. It was silver nitrate, thanks for that, I'm hoping this will help it heal a bit quicker. Thank you so much for your thoughts and prayers, it really is appreciated. Xx

Hi Pippin,

I am delighted to hear that  you and your brothers all have Power of Attorney. This makes a huge difference when dealing with these matters. Make sure that you register it as soon as possible, as there can be quite a difference between organisations in getting this put in place.

What a pity that your mum was given this news when she was on her own. It is good to hear that the cancer is low grade, as delaying her op until after Christmas shouldn't make any difference. It should also be easier for you to support her then, when your own treatment is finished. Depending upon the strength used, Silver Nitrate can look black when it dries, so don't panic if you see this when re-dressing your wound. The discoloration soon fades away and it is good for drying wounds up.

Kind regards,

Jolamine xx

Will be redressing the wound in the morning, so thanks for the heads up about the discolouration, always good to know what to expect. I thought the oozing might have eased up a bit, but doesn't seem to be much of a change. It's still seeping through the dressing. I've upped my protein intake, as this apparently helps wound healing. Hope you're feeling OK  take care. Xx

Hi Pippin,

I hope that the wound looks a little dryer by morning.

Jolamine xx

Thank you  think it's going to take several weeks to heal. It's a shame because they have told me not to do my long walks with hubby, which I really miss. Especially as he's still going on his own. Have a lovely weekend, hope you're doing something nice. I'm off to see mum and dad over the weekend, think my mum needs a big cuddle. Xx

Hi Pippin,

Hubby and I are going out to lunch with my son today. What a pity that your walks are 'on hold' for now. I'm sure that hubby is not enjoying them as much on his own either. It's definitely time to give your mum a big cuddle - enjoy your visit.

Jolamine xx

Hubby definitely misses me being with him. Enjoy your lunch out with your hubby and son. Xx

Thank you Pippin.

We had a lovely lunch and I even managed a little Christmas shopping after that!

Jolamine xx

Hi Jolamine, pleased you enjoyed your lunch and got to do some Christmas shopping. I haven't started mine yet, really must get onto it soon. Would like to get sorted before I start radiotherapy,  as won't get the chance to do it then. Might have to do online shopping this year. We went out for a curry last nice, which I really enjoyed. It's lovely to get back to doing normal things. Xx

Hi Pippin,

I'm glad to hear that you enjoyed your curry last night - it really does does good to get back to some normality in our lives! I still have a few presents to buy for Christmas, but want to get them in early this year, as most will have to be posted. Why not do online shopping this year? You have enough going on in your life at present and there's no reason why you shouldn't make things as easy as you can for yourself.

Jolamine xx