Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi all, going home today, after having a good chat with the dr this morning. She said after my shower the dressings could be changed, as fluid on bandages was probably causing the irritation. However, when nurse came in she said they were just going to tape over the top. No point doing that,  so have asked them to check with the dr. I was able to have a lovely shower on my own and even managed to wash my hair. The dr also said she would prescribe the anti histamine I've been having trouble getting. She doesn't see a problem as lots of people take them all the time. Feel happy and confident to be going home. Have to come in for a wound check on Tuesday. Hope you've all had a lovely weekend. Xx

  • Hi Pippin,

    I'm glad to hear that you managed a couple more days in hospital, before they turfed you out. I hope that you are managing well at home and that you are not having any further bother with the tape. Many people develop an allergy to certain types of tape. There are specific hypo-allergenic tapes that can be used instead, if this problem persists. You must feel a lot better after having your shower and hair wash - it's amazing how luxurious these everyday tasks seem, when you've not bee able to do them for while.

    You will find it difficult to do some of the exercises for a time after having reconstruction, but do what you can. I hope that you managed to get a prescription for the antibiotics before you left. Did you get a softie before you were discharged, or will you have to wait until you have healed a little more first? Did anyone check your bras before you left hospital, or has that been overlooked? You will probably know yourself what feels best, as soon as you try them on.

    That's another stage of your journey behind you now and I wish you a speedy recovery.

    Jolamine xx

Reply
  • Hi Pippin,

    I'm glad to hear that you managed a couple more days in hospital, before they turfed you out. I hope that you are managing well at home and that you are not having any further bother with the tape. Many people develop an allergy to certain types of tape. There are specific hypo-allergenic tapes that can be used instead, if this problem persists. You must feel a lot better after having your shower and hair wash - it's amazing how luxurious these everyday tasks seem, when you've not bee able to do them for while.

    You will find it difficult to do some of the exercises for a time after having reconstruction, but do what you can. I hope that you managed to get a prescription for the antibiotics before you left. Did you get a softie before you were discharged, or will you have to wait until you have healed a little more first? Did anyone check your bras before you left hospital, or has that been overlooked? You will probably know yourself what feels best, as soon as you try them on.

    That's another stage of your journey behind you now and I wish you a speedy recovery.

    Jolamine xx

Children
  • Hi Jolamine, I have not been given much information regarding the exercises, so not sure if imperials overdoing things.The nursecfid finally remove the piece if type causing irritation. But only replace with micropore which isn't waterproof. I did gave dome leakage overnight and will be pleased to gave a eound check tomorrow. I put a clear waterproof plaster over the tape, do test I could shower. Didn't get too much feedback on Brad and so far haven't worn one will maybe try one tomorrow. Will let you know how appointment goes tomorrow. How are you doing at the moment?