Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi everyone, thank goodness it's now over and done with. I ended up with a different breast surgeon, due to the delay, which I was a bit disappointed about. I really liked the surgeon I was meant to have, but the dr who did it seemed lovely too. The plastic surgeon was the same Dr and he's done a wonderful job. I have got one pert boob and one droopy one at the moment lol! They're going to do surgery on the other side in a few months. They ended up taking all my lymph nodes instead of partial clearance, which worries me slightly, as not sure why. I've only got one drain in and they hope to remove it before going home, which is great. Also took catheter out today and I had a shower. Mobility wasn't great yesterday, but so much better today. Haven't needed to wear a bra yet as they are checking blood vessels with ultrasound every hour. So far so good. Hope you're all doing ok. Xx

  • Hi Pippin,

    I hope that you feel a lot more relieved, now that your first surgery is over. What a pity that the delay meant that you had a different surgeon than you expected, but it's good to hear that you were happy with the replacement too. I am delighted to hear that the plastic surgeon did such a good job too and that you're happy with your nice new, pert breast - here's hoping that they soon improve the droopy one too! 

    You must be delighted to finally have got rid of your catheter and no doubt, you feel better for having a shower? It's good to hear that you already notice a change in your mobility and that your drain should come out before you're discharged - it gives you much more freedom, when it's removed.

    Have you been told when you're likely to get home yet?

    Jolamine xx

Reply
  • Hi Pippin,

    I hope that you feel a lot more relieved, now that your first surgery is over. What a pity that the delay meant that you had a different surgeon than you expected, but it's good to hear that you were happy with the replacement too. I am delighted to hear that the plastic surgeon did such a good job too and that you're happy with your nice new, pert breast - here's hoping that they soon improve the droopy one too! 

    You must be delighted to finally have got rid of your catheter and no doubt, you feel better for having a shower? It's good to hear that you already notice a change in your mobility and that your drain should come out before you're discharged - it gives you much more freedom, when it's removed.

    Have you been told when you're likely to get home yet?

    Jolamine xx

Children
  • Hi Jolamine, they initially told me it would be 5 days stay, but I suppose that could change. I'm really in no rush and would rather the drain comes out first. Still haven't needed to wear a pist op bra, as they're checking flap regularly, to make sure blood vessels have taken. Still.in my sauna room, as they have to keep it hot to encourage blood flow. Can't believe how much I'm sleeping. Hope you are well. Xx