Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi NGS, Carol and Greeny80, thanks for your replies, feeling pretty down at the moment. I only have a bit of a croaky throat, slight runny nose and infrequent tickly cough. I only contacted then in case I should have a preventative anti biotic. BCN suggested covid test, so I could tell pre op I had tested negative! Maybe I shouldn't have bothered, they don't even test prior to op and I'll probably be better by next week. After all the uncertainty over the phesgo, then told I can have it, that too is now on hold! Have no idea now when surgery will be and it's been nearly 3 months since I finished chemo. Also my daughter got married in Las Vegas on Sunday, haven't had the heart to tell her yet. We are meant to be having a big family meal out on Saturday to celebrate, not sure I will make it. Anyway it is what it is, so I just need to get my positive head back on. How is everyone doing?

  • Hey Pippin,

    I'm not surprised you're feeling a littte low, not only feeling poorly but also it's understanably hard when something gets moved when you've been so zoned in on that specific date and physching yourself up for it..so it's totally normal...and so sorry that you might have to miss your daughters wedding celebration on Saturday...maybe you'll be testing negative by then? Keeping everthing crossed....and you will get another date in soon for the op, but you don't want to hvae it when your body is fighting something or when your immune system is low so try and concentrate on getting well and then hopefully you'll get another date in soon.

    All ok here. My in-laws left on Sunday after a 3 week stint...my mother in law also had covid and we had to keep her away from my father in law as he's immunot compromised so it was an interesting visit!...have to say i'm enjoying a quiet house this week!

    Have ECG and bloods tomorrow, then port removal on Monday. Dexa scan to look at my bones in a couple of week along with MRI and then start amebacicclib in November. So far feeling ok with the anastrozole although sleep not great (Have any of you been advised on magnesium to aid sleep?? Need to check with my oncologist!) also slighlty achy but nothing too bad and nothing which is hindering me too much at the moment so holding onto the positives!

    Hair growing back fairly quickly!...in all places! Have just booked myself a wax appt!!!!!!!

    No other news this end but keep us posted on a new op date and really hope that covid is mild and quick and keeping everything firmly crossed that you get to see your daughter this weekend....take care xx

Reply
  • Hey Pippin,

    I'm not surprised you're feeling a littte low, not only feeling poorly but also it's understanably hard when something gets moved when you've been so zoned in on that specific date and physching yourself up for it..so it's totally normal...and so sorry that you might have to miss your daughters wedding celebration on Saturday...maybe you'll be testing negative by then? Keeping everthing crossed....and you will get another date in soon for the op, but you don't want to hvae it when your body is fighting something or when your immune system is low so try and concentrate on getting well and then hopefully you'll get another date in soon.

    All ok here. My in-laws left on Sunday after a 3 week stint...my mother in law also had covid and we had to keep her away from my father in law as he's immunot compromised so it was an interesting visit!...have to say i'm enjoying a quiet house this week!

    Have ECG and bloods tomorrow, then port removal on Monday. Dexa scan to look at my bones in a couple of week along with MRI and then start amebacicclib in November. So far feeling ok with the anastrozole although sleep not great (Have any of you been advised on magnesium to aid sleep?? Need to check with my oncologist!) also slighlty achy but nothing too bad and nothing which is hindering me too much at the moment so holding onto the positives!

    Hair growing back fairly quickly!...in all places! Have just booked myself a wax appt!!!!!!!

    No other news this end but keep us posted on a new op date and really hope that covid is mild and quick and keeping everything firmly crossed that you get to see your daughter this weekend....take care xx

Children
  • Hi Greeny80, not knowing how long I'll have to wait is such an awful feeling. It's already been so long since chemo finished, I'm sure I'm now feeling twinges in my boob, so it could be growing again. Hopefully will be covid free by the weekend's celebrations, but who knows. Good to hear you can now have a rest after all your visitors, although it sounds like you have a few appointments coming up. It will be good to have your port taken out on Monday, another thing to tick off.  My hair has also been growing quite well and have been shaving my legs again regularly. Eyebrows and eyelashes also growing back, which is great. Sorry to hear your sleep not so good, not heard anything about magnesium myself, be interesting to hear what oncologist says about it. Hope all goes well with everything, take care. Xx

  • HI Greeny,

    I'm glad to hear that you're enjoying some peace and quiet, now that your visitors have left. Here's hoping that all goes well with your ECG and bloods tomorrow. I'm sure that you'll be glad to see the back of your port on Monday.

    I was advised to try Magnesium to help with insomnia, but I didn't find it of much use. Make sure to check with your team, before you take it - hope that it works for you.

    Jolamine xx

  • Thanks Jolamine,

    Yes bloods and ECG all done ready for port removal on Monday. hurrah!

    Yes will speak to my oncologist about the magnesium, i don't want to take any "medicinal" pills to aid sleep, so only want to go down the natural route if poss at the mo...not sure how much is just media spin etc!!...or whether magnesium can help but i'll chat to my oncologist. That said i slept a lot better last night so that's good!

    how are things with you?? xx

  • Hi Greeny,

    That's great - I'm sure that Monday can't come quick enough, in order to get rid of the port. I'm glad to hear that you slept better last night. I agree that you're better avoiding the medicinal route to aid sleep, so will be interested to see what your oncologist has to say about Magnesium.

    I'm ok thanks - just looking forward to our Golden Wedding celebrations with the family, over the weekend.

    Jolamine xx