Oncologist appointment tomorrow - what questions should I ask?

After being diagnosed on 18th January and going through all the various test, I finally get to see the oncologist tomorrow. Would like to hear from anyone who has any suggestions about what questions would be good to ask. 

Also what are your experiences of how long it took for treatment to start after first oncology appointment. As my breast cancer is grade 3 and fast growing, I'm worried about it spreading, before my treatment even gets started. 

Was it suggested you have a PICC line or port?

Parents
  • Hi everyone, hope you're all making the most of this lovely weather. My daughter's on her way over with the grandchildren, so I'm looking forward to a lovely afternoon.

    NGS- sorry to hear that your rash has got worse, it sounds really uncomfortable. Why do our minds always go to the worst case scenarios. I've been doing exactly the same about aching bones. Have they tried you on anti histamine, especially as you have it on both sides. I've been getting really itchy arms, which I think is the phesgo injections. I've got cream and anti histamine  which does help. It seems to get worse when it's hot. If it is the letrozole, they may just give you some meds to counteract it, or give you an alternative to let letrozole. Hopefully you'll get dome answers at your appointment tomorrow. Let us know  how you get on. Xx

    Carol- good to hear that they changed you over to the Zoledronic infusions,  so much more convenient. I felt a bit shivery and achy the day after, but was back to normal after that. I did have the phesgo on the same day, so that may have been the reason. Still if it's only for 1 day every 6 months, that's not so bad. I'm feeling really well at the moment, just need to sort out a few appointments  before I go away. My echocardiogram is due the week after surgery, so want to try and get that done a bit sooner. Also my phesgo is due on day of surgery, not sure what happens about that. I also need to find out about post op bras. How do I know what one to buy or what size? They told me my boobs will be smaller, but not what size they'll be. 

    Greeny80 - lovely to hear from you. So pleased that you had such  a lovely holiday. Xx

Reply
  • Hi everyone, hope you're all making the most of this lovely weather. My daughter's on her way over with the grandchildren, so I'm looking forward to a lovely afternoon.

    NGS- sorry to hear that your rash has got worse, it sounds really uncomfortable. Why do our minds always go to the worst case scenarios. I've been doing exactly the same about aching bones. Have they tried you on anti histamine, especially as you have it on both sides. I've been getting really itchy arms, which I think is the phesgo injections. I've got cream and anti histamine  which does help. It seems to get worse when it's hot. If it is the letrozole, they may just give you some meds to counteract it, or give you an alternative to let letrozole. Hopefully you'll get dome answers at your appointment tomorrow. Let us know  how you get on. Xx

    Carol- good to hear that they changed you over to the Zoledronic infusions,  so much more convenient. I felt a bit shivery and achy the day after, but was back to normal after that. I did have the phesgo on the same day, so that may have been the reason. Still if it's only for 1 day every 6 months, that's not so bad. I'm feeling really well at the moment, just need to sort out a few appointments  before I go away. My echocardiogram is due the week after surgery, so want to try and get that done a bit sooner. Also my phesgo is due on day of surgery, not sure what happens about that. I also need to find out about post op bras. How do I know what one to buy or what size? They told me my boobs will be smaller, but not what size they'll be. 

    Greeny80 - lovely to hear from you. So pleased that you had such  a lovely holiday. Xx

Children
No Data